I'm REALLY feeling bad now!!!

Discussion in 'Fibromyalgia Main Forum' started by Bellesmom, Dec 5, 2002.

  1. Bellesmom

    Bellesmom New Member

    For more than a year I have been trying to save up to go to a specialist to confirm my diagnosis with fibromyalgia (made over 2 years ago) and because I have a disability claim in process and need another doctor.

    Well, I called a highly recommended rheumatologist who specialists in Fibromyalgia. He won't even SEE me without my having medical insurance (I have no insurance, limited resources). He did (thru his receptionist) say he would talk to my PCP but I wanted an appt of my own. He said no, too expensive. Now I was already aware that I am a 2nd class citizen without insurance but not to be able to BUY a doctor appointment? Come on. My PCP doesn't want anything to do with me. He did diagnose me but gave me a few pills and said he did his part already. I was so upset I hung up and cried for an hour.

    I know there is nothing anyone can say but if someone will just write back to me and try to cheer me up I would appreciate it. I was so looking forward to seeing another doctor since I am starting my appeal for reconsideration. This is really not a good thing for me right now.

    Thanks all...

    Pam
  2. Bellesmom

    Bellesmom New Member

    For more than a year I have been trying to save up to go to a specialist to confirm my diagnosis with fibromyalgia (made over 2 years ago) and because I have a disability claim in process and need another doctor.

    Well, I called a highly recommended rheumatologist who specialists in Fibromyalgia. He won't even SEE me without my having medical insurance (I have no insurance, limited resources). He did (thru his receptionist) say he would talk to my PCP but I wanted an appt of my own. He said no, too expensive. Now I was already aware that I am a 2nd class citizen without insurance but not to be able to BUY a doctor appointment? Come on. My PCP doesn't want anything to do with me. He did diagnose me but gave me a few pills and said he did his part already. I was so upset I hung up and cried for an hour.

    I know there is nothing anyone can say but if someone will just write back to me and try to cheer me up I would appreciate it. I was so looking forward to seeing another doctor since I am starting my appeal for reconsideration. This is really not a good thing for me right now.

    Thanks all...

    Pam
  3. teach6

    teach6 New Member

    I tried twice to respond to your post, but both times I got an error message and lost my reponse. Look for one that I wrote under a new post title Bellesmom.

    I hope it is helpful to you. I couldn't believe that a doctor wouldn't allow you to pay cash to see him. Probably just as well. I hope you have good luck in finding a new doc. I gave you some suggestions for doing that in my other post.

    Barbara

    Wouldn't you know it, now it works!![This Message was Edited on 12/05/2002]
  4. Kathryn

    Kathryn New Member

    Wish I knew what to tell you. I have no idea where you are or what your situation is, but most communities have some sort of indigent medical assistance. You might check with United Way or some of the churches. Just because one doctor refused to see you, doesn't mean another will. The first might be over rated anyway. With this ailment, you need to learn persistance, persistance, persistance. If you get shot down one place, find another way to get what you need. Help is out there, it just might be a full time job to find it. Good luck.
    Kathryn
  5. Shirl

    Shirl New Member

    I am so sorry you are being treated so badly! That is awful, for doctors to be so coldhearted toward someone who is suffering because of money.

    Why can't they make a payment plan for you or anyone who needs help this badly.

    I wish I could let you use my insurance, we pay it, and I am afraid of doctors, so I don't use it. I guess they would throw us both in jail for that one!

    You are no second class citizen, the doctors are the low lifes!!

    You are a sick person in need of help. I sure hope you get something done, I wish I could help you.

    All I take for Fibro is supplements, the only prescription med I take is low dose Xanax, once a day.

    I can't take most meds, so I just gave up on it all and did research, read books, got on this board, and I feel better now than I have in many years.

    Don't let anyone tell you that you are a second class anything, you are very important, as each of us are. We are number one class people!

    You take care, and come here anytime you want, we are very glad to be here for you.

    Shalom, Shirl
  6. queenbee69

    queenbee69 New Member

    My boyfriend has no insurance either, but he goes to the heatlh center and is seen on a sliding scale basis.. He was dd. with diabeties not to long ago and even gets one of his meds. free. Just a thought...good luck..queenbee
  7. pam_d

    pam_d New Member

    Hi, I'm another Pam! I'm sorry about what you are encountering. I have never been able to figure out WHY there are doctors who won't accept a cash payment?

    In the past I have sometimes CHOSEN to pay cash (even when I had insurance) so that my visit wouldn't be billed to my insurance co. (like once when when I had a flaky dr. who tried to dx me with something I was certain from previous testing I did NOT have---and I didn't want it appearing in my insurance records). On my way out of the office, I simply said "I'd like to pay cash, please---don't bill my insurance" and they said, fine & tore up the ins. billing slip. Some doctors do not have a problem with this.

    If you are offering cash---and I mean CASH, not a check that could potentially bounce---why in the world is a doctor's office so cold-hearted that they won't see a patient who obviously truly has a need??? I will never understand this.

    I'm sorry about all this, Pam, & I hope you find a sympathetic doctor's office who is willing to work with you. Good luck!

    Hugs,
    Pam
  8. lilwren

    lilwren New Member

    If we didn't have to spend so much energy just trying to find a doctor, then convince him/her we're sick we could spend that energy on healing. It sounds to me like he is just using it as an excuse so he won't have to deal with a tough case. Most doctors are just in it for the money and someone like us is too much work for them.

    I hope you find someone who can help. The 'health center' sounded like a good idea. Good luck Pam.

    love,
    Sharon L
  9. karen2002

    karen2002 New Member

    Pam---don't be disheartened! Sounds like just another Bad Doc. I see a fibro/cfs specialist. I have no insurance--and pay with cash/check everytime I see him. No problem. They get their money immediately, and don't have to bill insurance, etc. This Doc you were going to see, wasn't worth it. Do find another Fibro/Cfs Specialist. Interview the receptionists as to how many fibro/cfs patients they treat, and if they accept cash payments. Don't let these guys stress you out. Just keep truckin'
    Karen
  10. tandy

    tandy New Member

    Hi Pam!!! Is this a screwy world or what??/ I've had the same thing happen to me~ I called to get an appointment with a Rhuemy that I had heard was really good.The receptionist asked me what insurance I had...I told her and she said "Oh we don't take that sorry". So at that point I said i'd be willing to pay cash.She said that they could'nt do that b/c that would be overriding the insurance that I have!!! So,No they were'nt willing to make an appointment!!Bas***ds!! Its just unfair~Does'nt even make sense to me. Good luck to you~
    Best regards,
    Tracey
  11. twjen

    twjen New Member

    I know how you feel. Not the Insurance part, but feeling 2nd class and treated that way. You dont deserve that at all. Did you inform the Dr. that you have the money to pay in advance? This sounds like discrimination to me. But sometimes its not worth the stressfull effort to report these kinds of things that I believe should be against the law. I feel discriminated against right now also and it is degrading to be treated this way. Maybe you should direct your efforts into seeing if you could qualify for some type of insurance through family services, or maybe there is a clinic you could find that treats people without insurance on a sliding scale. Several years ago (before fm) I didnt have insurance and found a clinic through family services that wasnt in the phone book. It was actually a really nice place and they only charged me 20 dollars and gave me perscription voucher to get it for free. Or if all else fails you might look into contacting university hospital
    or other, to see what they may be able to offer you with research programs and free Dr. evalution. Wish I could do more to help. Hope some people will have to answer to God for their unexusable behavior toward us. God Bless! Jen
  12. catgal

    catgal New Member

    Hi Pam~~I don't have insurance either, and my medical expenses run me over $400 a month which is half of a paycheck for me. I have FM, CFS, Degenerative Disc Disease, Rheumatoid Arthritis, and severe Asthma & Allergies.

    I would encourage you to find another PCP who is interested in your health care and well being. As for the Rheumatologist--find another one. By this guy's attitude, he obviously wasn't the right one for you anyway. Keep looking, asking other people, put the word out that you are searching for a good rheumatologist. Something will come through eventually.

    Don't let "the system" get you down. It's YOUR money and YOUR body, so stay in control of that concept.

    There are many medical referral agencies on the net that can direct you to a good FM specialist or rheumatologist in your area. Just keep putting one foot in front of the other and advocate for yourself. I have gotten up and walked out of doctor's offices because of their louzy attitudes and lack of concern for my health problems. They didn't deserve my money nor my faith in them. I needed help, not attitude. Keep searching, and I am sure the right one will appear. Best Wishes to you, Carol....
  13. Shelly P

    Shelly P New Member

    Hi Pam--

    I'm so sorry that these doctors are giving you the run around. It must be so frustrating for you, especially since you're not feeling well as it is!

    Here's what I did when I realized that doctors would not be much help for me: I read as much as I could about FM and came up with my own plan for healing. I started eating healthier, taking supplements religiously, and exercising a few times a week. I also started to recognize my limitations and rested when I needed to rest, without feeling guilty. It's been about 15 months since my initial diagnosis and it seems like I finally have my condition under control (knock on wood.) I still get the occasional nasty flair, but I try not to panic and think "this too will pass."

    I know that my plan for healing will not work for everyone and I'm not discouraging you to see a doctor. Often times, we need doctors to make us well. I'm just saying that while you're working to get hooked up with the "right" doctor, why not try a few things on your own to help yourself?

    Good luck and take care of yourself!!

    Shelly :)