Immune System Drops In Minutes

Discussion in 'Fibromyalgia Main Forum' started by joeb7th, Jun 8, 2008.

  1. joeb7th

    joeb7th New Member

    Hi everybody.

    I am posting this as I am hoping it reveals just a little more of what may be wrong with me/us.

    Throughout the day I can literally feel my immune system drop. This happens several times every day and is torturous.

    It's taken me two years to be able to isolate some of these symptoms and be able to describe the process of exactly what happens to me when this happens.

    I'll start off by saying that I wake up every day and feel so bad. I tremor and have chills and then weird sweat spells that don't make sense. Bt mostly I am so cold. I also feel "wrong" inside. Combination of sick but not on the edge of vomiting, and stressed inside like my organs or hormones are just going bananas. My nervous system feels heightened and wired and again, wrong. Just "wrong."

    I am also so paralyzed with exhaustion and depression and a weakness all at the same time. I have to just sit and hold my head and shake ... until about mid-day or later when this "usually" lets up and I feel about 20% better. Then, later in the day I can literally feel my body in and out ( or what I believe is my endocrine/immune system/nerve system

    One of the ways I know this is my lungs. Not long after all this started I got bronchial asthma for the first time in my life. This feels like a cold air in the lungs and a heaviness and even soreness in there when it's bad. And I wheeze. Throughout the day when this feeling comes into my lungs...everything else I described falls deeper into their stress and crazy feelings too.

    I call this my dropping or crashing time. But, the feeling in the lungs is the clearest and most reliable symptom I get when this happens. When I am not feeling these stresses in my lungs...I "always" feel better everywhere else. So, this is why I am now believing that throughout the day my system...hormone, endocrine,immune or whatever they want to call it goes haywire and up and down and generally just stays at this unpredictable and precarious state.

    I don't know what to make of it all or who to see anymore about it ( I have seen every specialist and they all just give up ) but this description I am sharing with you is as close to close as I have ever been able to describe what I feel throughout the day. And my nerves system is so intertwined with all of this. Truly like it is damaged also and feels everything twice the normal range . Everything together leaves you so exhausted that to describe how much is almost impossible.

    I guess the only thing I can compare it all to is like someone being tortured with electric wires attached to their bodies and these being charged irratically off and on thoughout the entire day and an IV hooked up to you that feeds crazy mixed up hormones and the wrong mix of chemicals
    into your system all day at the same time. One day of what I feel and go through now is worse than a lifetime of the worst symptoms I ever felt before. I am amazed at how I have been able to keep going on with this as long as I have as well as so many of you out there as well.
    But, I am also so depressed at times I almost rush to the ER but I don't because of fear I will be locked up and have psychotropic drugs put into me against my will.
  2. Elisa

    Elisa Member

    Hi Joeb7th,

    I am so sorry...I do know what you mean in many ways. I especially understand the lung issue - I too, as an adult, developed, what seems like, asthma. I have taken antibiotics for 2 yrs to help me breath.

    My first thought is an acupunturist from China (they are in med school 7 yrs) - with lots of training - they understand the description you provide and it may make a lot of sense to them and maybe they can help.

    Many here think a naturopath is the way to go - that may be true too - I have no experience with them because there aren't any in my area.

    I hope the "collective wisdom" of this board can help you and I do understand the depression, weakness and all - it is so hard and so terribly sad.

    God Bless You Joeb7th,

    [This Message was Edited on 06/08/2008]
  3. findmind

    findmind New Member

    As I was reading your very well described symptoms, all I could see was you not getting enough blood up thru your heart and into your lungs and brain.

    This would cause all the body systems to go haywire, I'm sure!

    Have you had an Impedance Cardiograph?
    Do a search above to get the company name (BioZ, I think). You can call them and they'll tell you who does them in your immediate vicinity, even zip codes around you. They don't cost much, $125 I think, and only take 1/2 hour to do. Take the findings to a cardiologist.

    Otherwise, I hope others here can give you some clues, if that's not the problem.

    Best to you,
  4. MamaDove

    MamaDove New Member

    Hi Hon,

    I am saddened to see you are still having multiple issues and no relief seems in sight...You know I know what you are talking about in many of your posts...We have been there ;)

    I am beginning a new med today,LDN (low dose naltrexone) that is touted as an 'immune booster'...not the suppressants that we have been prescribed for all these autoimmune issues...

    It has taken me 18 months to get this drug along with all the other tests to help determine WHAT IS WRONG and HOW DO I FIX IT??? I can no longer rely on doctors but have been fortunate to find fantastic ones now that are actually concerned about what I have and have been willing to look into anything I choose...I just picked up my LDN this morning from the compounder and I will begin it tonite...I was ocnsidering starting a thread about my experience from day one, well night one, cause you take this at nite...

    I just wanted to let you know I was thinking of you and advise you to look into LDN and see if it may be something you could consider, esp. since you mentioned the 'low immune system' feeling...I know how that feels and am hoping that LDN is my magic bullet...

    Peaceful days ahead~MamaDove
  5. joeb7th

    joeb7th New Member

    I wish we were allowed to email each other sometimes. I really want to know what the LDN does for momma dove and I need to check further on the low cardigrpah tests.

    Please...let us know what the LDN does for you momma dove. I checked the web site and it sounds more promising than most other remedy tries.

    I was especially pulled into the improvement of the Crohns disease ( wow what a picture ) and the central nervous system.

    I would certainly be interesated in trying this and can't wait until Mommadove gets back to us throughout her trials on this.

    Thanks, JB