In cas anyone is looking for FMS/CFS Doc in Philadelphis area

Discussion in 'Fibromyalgia Main Forum' started by garyandkim, Sep 15, 2002.

  1. garyandkim

    garyandkim New Member

    We went through so many. Then we Found Doctor Steven Katz on the Co-Cure good doctors list 3 years ago. We love him and have sent many to him that also love him. He is Board certified in FMS, CFS and Infectious disease. He has 2 offices on in Fairless Hills and one in Plymouth Meeting right off 476. Go to the doctors list on the home page and you can read a blurb.

    When you call you leave a message on his phone and he calls you back. We talked for over an hour. We brought our long list of symtoms and he went over everything. He listens and the first couple apts are about 90 mins. Then 45 mins. to an hour after that unless you don't want one that long. He talks to you and listens and doesn't blow you off. He really cares.

    Hope this helps someone, Kim and Gary

    I kind of pushed hard for Rach to see him because she wasn't getting anywhere and he found that she had Chari Malformation. Found in a simple MRI. He does check out every possibility and anything new and does routine testing often. He has found a couple simple things in these tests that our PCP didn't fine. He is also an Internist. He is very consiensious and so careing. Like the old fashion docs. There for you.


    Ps. We also have found many specialists that believe in FMS and CFS of you need a name we can give you them, like Cardeologist, Enrocrenologist, Nerologist, Urologist.[This Message was Edited on 09/15/2002]
  2. garyandkim

    garyandkim New Member

    We went through so many. Then we Found Doctor Steven Katz on the Co-Cure good doctors list 3 years ago. We love him and have sent many to him that also love him. He is Board certified in FMS, CFS and Infectious disease. He has 2 offices on in Fairless Hills and one in Plymouth Meeting right off 476. Go to the doctors list on the home page and you can read a blurb.

    When you call you leave a message on his phone and he calls you back. We talked for over an hour. We brought our long list of symtoms and he went over everything. He listens and the first couple apts are about 90 mins. Then 45 mins. to an hour after that unless you don't want one that long. He talks to you and listens and doesn't blow you off. He really cares.

    Hope this helps someone, Kim and Gary

    I kind of pushed hard for Rach to see him because she wasn't getting anywhere and he found that she had Chari Malformation. Found in a simple MRI. He does check out every possibility and anything new and does routine testing often. He has found a couple simple things in these tests that our PCP didn't fine. He is also an Internist. He is very consiensious and so careing. Like the old fashion docs. There for you.


    Ps. We also have found many specialists that believe in FMS and CFS of you need a name we can give you them, like Cardeologist, Enrocrenologist, Nerologist, Urologist.[This Message was Edited on 09/15/2002]
  3. garyandkim

    garyandkim New Member

  4. Cindi

    Cindi New Member

    Hi,

    I couldn't find the "blurb" on Dr. Katz, but I'm new to this site, so I might have missed it!

    I'm 43, have been diagnosed with Fibromyalgia for 5 years, and Lupus and Sjogren's Syndrome for almost 2 years. I have a good Rheumy who is far away,and even though he is good, I think I want more from him regarding each diagnosis, than I'm actually getting. Ironically, I live right around the corner from one of Dr. Katz's offices. I am also in the process of searching for one doctor who could take care of all of my many needs. Because of ever-changing symptoms, I am still in the process of putting ALL the pieces of the puzzle together!
    Do you think that Dr. Katz is the type of doctor to work with a situation like mine??

    I plan to "browse" this site and read as many posts as possible. I am in need of support, since my health isn't getting any better...actually it's getting worse. I am a mom-of-3, and my youngest, who is 14, has a genetic disorder with many medical problems. He has had 5 brain surgeries, and too many hospitalizations to count!! I advocate for him medically AND educationally, and that means I have to be as healthy as possible, which I'm not. My husband also has Crohn's Disease, and I worry about his health as well.

    Thanks for listening! I plan to come here as often as possible to learn from the other people here, and hopefully lend my support as well!!

    Take care,
    Cindi
  5. garyandkim

    garyandkim New Member

    sent me to other docs when nessisary. Did you look on the co-cure good doctors list for Pa. he is there. You go tot he home page here and then on the right of the home page there is a beige area look for Doctors referal and click then look for Co-cure good dos list then go to Pa and click. If you need more in fo I will try to help. Or you could call info and give his name and town. Good luck, Kim
  6. Cindi

    Cindi New Member

    Hi Kim,

    I appreciate your reply. I found Dr. Katz on the Co-Cure list. I saw a Physiatrist after I was first diagnosed with Fibro, who had an office in the same medical complex as him! When I was searching for doctors, wouldn't you think that the Psysiatrist should have known who Dr. Katz was??? After all, they were in the same complex, and saw patients with the same needs. Amazing, huh?

    Looking forward to meeting people here, and people in the PA area. BTW, do you go to any FMS/CFS support groups? I know of a great group, but am not always able to attend meetings. I do stay in touch by phone, e-mail, and newsletters, though.
    If you have a chance, tell me a little about yourself!

    Thanks again...
    Cindi
  7. garyandkim

    garyandkim New Member

    for those who want to share I am not sue if we e her and then she sends. I know there is a group that meets in Bryn Mawr, Dr. Katz talked there last week. I didn't make it. It was at the Founders building. They I think still call it the Founders Bank building.

    I am seeing the neurologist right next door to Katz's office tomorrow for the EMGs. I know that there are a few of us in our area. Some checking out Katz. He is great at giving doctors names out to see.

    I have never gone to a group. It is hard with a 3 year old and Gary is just not able to go and can't be alone to long. I hate to go most places alone. I did counceling when I was younger.

    That sounds like a great idea to get us all here in touch. I will try and find Shirls e address and ask her to give it to you or anyone that would like it.


    Take care, Kim
  8. Cindi

    Cindi New Member

    Hi Kim-

    I think maybe you misunderstood me! I meant that I keep in touch with people that I already MET in a support group that I sometimes go to. I wouldn't mind getting to know people here, but I wasn't "asking" for e-mail addresses.
    BTW, I will try to see Dr. katz at his Fairless hills office - it's closer to where I live!

    Thanks for your support.
    Cindi
  9. ephemera

    ephemera New Member

    DO you have a connection for the fibro group in Bryn Mawr? A contact person or phone #?

    Thanks for any info.

    best thoughts
  10. garyandkim

    garyandkim New Member

    or a doc there they might. I will ask Dr Katz. I'll laeve him a voice mail and see. I wounder there is supose tobe a place here that has a listing of groups I'll try again to find it. Maybe the home pg. If I do I will also ask how to get it added on the list. I've never used asuport group for these DD things. I am curious about them. I just don't really have any energy to go any more places then I do now. Have you ever been to one? Are the seats comfortable?

    Be back when I find something out. If you do first let me know please, Kim
  11. ephemera

    ephemera New Member

    Dear Kim and Gary & others:

    I called around & found out the info through Kessler Rehabilitation on Bryn Mawr Ave. Meetings & presentations are 2nd Tues every month at Founder's Bank @ 3:30 PM. Next is Oct 8th. Future topics include nutrition. (Don't know why the mid-day time, afterall, we're not all ladies-who-lunch!!)

    Hope this helps. If you give them your phone # they will notify you of next meeting.

    Best thoughts for your weekend.

    ephemera