Ok, here is my story... Any support/feedback/etc. is SO welcome. I am 23, and have been suffering with FMS since I was 12 (undiagnosed until 2 yrs ago.. NO ONE wants to believe this could happen to someone who hasn't even hit puberty, lol). It was always kinda bad,or at least I thought so at the time. At 20, I got pregnant (cue huge "uh oh"). The pregnancy was a nightmare, but it was nothing compared to what happened once I had my daughter... It set off FMS From Hell. Most days I can't even sit up for more than a few minutes without wanting to die. I feel like I am totally screwing up my child because I can't do the things that I see other moms doing with their kids. It doesn't help that I live in Phoenix, where the average daily temperature from May until November is about a billion degrees. I am trying to improve my life. I am going to school full time, and I am engaged to be married. The trouble is, he doesn't get FMS. He, like a lot of people, just does not understand that sometimes (ok, a lot of times) I can't go and do and see. It's a nightmare to even get out of bed in the morning, and I can't even get him to change my daughter's pants before he goes to work (it isn't his child). I admit to not being straight-forward about how I am feeling, at least most of the time. I don't want to whine, even when my muscles are cramping so badly that I can't breathe. When I do finally break down and whine about it, I think he just doesn't hear me, or maybe this kind of seemly causeless pain escapes him. I know it is unfair to him to have to take care of me... I never wanted that. There is the truth... I have never been one to accept being taken care of. I have been the one taking care of other people for so long (my family history would slay you, I am sure), and I don't know what to do in this horridly helpless situation. I am the strong one- I don't cry unless I am alone, I don't ask for help, I don't do any of the things this disease is making me do... I am pretty isolated. All of my friends abandoned me somewhere between the pregnancy and the FMS escalation. I don't have much family that I can talk to anymore because they all have lives and dramas of their own. My fiance, for all his good qualities, is apparently incapable of talking to anyone outside of the internet world- especially not about serious stuff. So, day after day, I am alone with this. Add to the equation my school, my 2and a half year old, and all the housework that comes with this life... I am hopelessly lonely. This is my first attempt at this kind of a group. I have been denying that I need support for a very long time, so forgive me for the verbal vomit. I just need someone to talk to who understands either side of this syndrome... Please.