Insomnia

Discussion in 'Fibromyalgia Main Forum' started by WorldFalls, Oct 8, 2002.

  1. WorldFalls

    WorldFalls New Member

    I don’t know if I have fibromyalgia or if something else is causing my pain. But it keeps me awake when it flairs up. I’m so tired right now that I can’t stand it. I haven't slept more than 12 hours total in the last seven days. I’d give anything to have a complete and restful night’s sleep. I lay in bed for hours trying to sleep. When I do fall asleep I can’t stay that way because of the aches and these annoying tingling feelings I get. I’m so tired and so frustrated right now. The pain has been awful lately, and nothing I take for it helps (I have tried aleve and tylonol and in the past vicodin). I'm beginning to feel like a hypochondriac because between the pain and allergies and asthma, I always feel unwell these days. I kind of feel like my doctor doesn't take me seriously. :( He's always really rushed and I never get a change to explain to him my problems. He just tosses out RX's for vicodin and/or sleeping pills, which I can't take. Do any of you have a hard time sleeping? What do you do for it? Taking benzo’s aren’t an option for me. I'd really appreciate any advice you can offer. I just don't know what to do anymore.

    Elayna
  2. WorldFalls

    WorldFalls New Member

    I don’t know if I have fibromyalgia or if something else is causing my pain. But it keeps me awake when it flairs up. I’m so tired right now that I can’t stand it. I haven't slept more than 12 hours total in the last seven days. I’d give anything to have a complete and restful night’s sleep. I lay in bed for hours trying to sleep. When I do fall asleep I can’t stay that way because of the aches and these annoying tingling feelings I get. I’m so tired and so frustrated right now. The pain has been awful lately, and nothing I take for it helps (I have tried aleve and tylonol and in the past vicodin). I'm beginning to feel like a hypochondriac because between the pain and allergies and asthma, I always feel unwell these days. I kind of feel like my doctor doesn't take me seriously. :( He's always really rushed and I never get a change to explain to him my problems. He just tosses out RX's for vicodin and/or sleeping pills, which I can't take. Do any of you have a hard time sleeping? What do you do for it? Taking benzo’s aren’t an option for me. I'd really appreciate any advice you can offer. I just don't know what to do anymore.

    Elayna
  3. EllenComstock

    EllenComstock New Member

    Hi, Elayna:

    Insomnia is a common problem for people with fibromyalgia, but I don't know why. Of course the pain can certainly keep you awake. Sounds like you need another doctor. I would check to see if there are any fibromyalgia specialists in your area. There aren't many around-the one I go to is 45 minutes from home and one hour from work.
    Dr. Barbour has me on melatonin (a natural substance found in the brain that helps to induce sleep), plus Elavil 10 mg. I take this plus ultracet (for pain) an hour before I go to bed to give them time to work. I also sleep with a pillow underneath or between my knees (keeps the spine more in alignment. Since I started doing this I wake with less stiffness and pain). I also put an ice pack on my back and neck at bedtime. This doesn't work every night, but at least now I have more good nights whereas before I never had a good night. Of course what helps one person may not help another.

    I hope you can get more rest soon. I am still trying to work full-time and I understand how hard it is to get through the day when you haven't slept. Good luck to you!

    Ellen
  4. klutzo

    klutzo New Member

    The insomnia in FMS patients is mostly due to an abnormally low level of the neurotransmitter serotonin.
    You need to see a Rheumatologist and get a diagnosis ASAP, as your description sounds like a textbook case of FMS. Some of us would kill for a doctor who freely gives out sleeping pills and Vicodan! Most of us have to beg for any drug help at all other than low dose anti-depressants, which is what you will probably get if you are dx'd with FMS. If you are willing to take the anti-depressants be watchful for weight gain,which means you need to change to a different one, or serious memory problems, which could mean you need to stop them.
    If you prefer the natural route, try ZMA (do a search of previous posts for info), Magnesium with Malic acid, or herbal preps including lemon balm, valerian and passionflower. A GABA supplement can also help, and virtually all FMSers need B Complex.
    Please do not Dx yourself though. You have to know what you have to get proper treatment. Keep us posted and we're glad to have you here!
    Klutzo
  5. lizi

    lizi New Member

    I agree that you need to find a good doctor and get a definite diagnosis. Sleep disturbances is one of the symptoms of FM/CFS, which is what I have. I take Klonopin, which I think is a benzo, but also take a muscle relaxer, Zanaflex. Some people get relief and sleep with the muscle relaxers alone. I also have the benefit of taking Lorcet, and that helps me too.
    Good luck. Keep looking for help. A good nights sleep is essential.
  6. debrastets

    debrastets New Member

    What is that? Maybe two out of seven i will sleep pretty good and thats when i am dead tired! Some of the meds. i take even keep me awake. I know how you feel ! And you can tell it by looking at me that i dont sleep much! I have people asking me now if i have a black eye ;because i have dark circle under my eyes! And if we could just rid the pain! Good luck ; hope you get some rest!
  7. karen2002

    karen2002 New Member

    I agree with the posts, stating you need to find a Doctor, and then a Dx....try the "Good Doctors Lists", here at this site. After searching on my own to no avail, I tried a Doc on their list, and he is great! If there isn't one listed in your area, try to find a support group in your area...(I think there is a list of groups here, too) and ask the members who they recommend.
    I tried flexeril @ bedtime---didn't do a thing for me. I have recently started taking a low dose of elavil before bedtime--I can fall asleep now, but wake frequently, about 20 times or so...and finally give up. I have sleep apnea, bruxism (teeth grinding), and sleep/talking/walking,lol,so I am too busy to sleep :) not to mention...waking up every time I must move--because of the pain. I have learned though, that there are times during the day, when I am tired enough that I can get in a nap or two---and I take advantage of them.
    Best Wishes,
    Karen
  8. WorldFalls

    WorldFalls New Member

    ...is a very special place.

    Earlier when I posted, I was so upset. I hadn't been to sleep in two days, and had spent the last four years dealing with a doctor who pretty much got me in and out of the office so quick that I couldn't even explain my problems!

    Well, after reading your comments, I decided to call my doctors office and make an appt. I was going to request a referal to a Rheumatologist (sp?) and if he didn't give it to me I had decided to come home and call my health insurance company and change doctors! Well, as it turned out, my doctor was booked and I got an appt with the on-call doctor. He was fabulous! He listened compassionately to my complaints. I felt heard for the first time! It was amazing. I told him what I had been experiencing. The pain, insomnia, allergies, numbness and tingling...and he did an exam and sure enough, he came out with fibromyalgia. He ordered some test so he could rule out other things, and after the tests comes in, he is going to send me to the Rheumatologist. He sent me home with extra strength vicodin. He offered sleeping pills, but I declined. I'm going to try melatonin tonight. Needless to say, I'm going to switch doctors!

    I want to thank you all for responding. I was really at my end this morning. I have a supportive and loving family, but they just don't know what I'm dealing with. For the first time, I feel like there are other people out there who really understand. Thanks again.

    Elayna
  9. chrissy

    chrissy New Member

    hi elayna, the pain is due to low levels of endorphins in the cerebro spinal fluid. DLPA (DL phenylalanine) is a natural endorphin booster which works better than morphine to relieve the pain and can be taking with any medication. I bought it at a homeopathic pharmacy and boy! has it made a difference. I also take calcium with magnesium at night, as well as l5HTP (tryptophan ) and melatonin as well as glucosamine. That's a lot of pillls but they are natural, non addictive and I SLEEP .`Good luck !