Interesting survey........

Discussion in 'Fibromyalgia Main Forum' started by amymb74, Sep 6, 2002.

  1. amymb74

    amymb74 New Member


    This is quite long but thought it was interesting to skim through:

    (this is off the from fatigued to fantasic site)
    These are cumulative results of the March poll: 217

    respondents, 92% female, 8% male

    Total Men Women
    Average age 44 46 44
    Age of FM onset 30 31 30
    Diagnosed at age 40 43 40
    Years untreated 10 11 10
    Yrs with FM symptoms 14 15 13


    --------------------------------------------------------------------------------

    Pain levels: 175 of the women and the 17 men were asked to state their present pain levels on a scale of 0 (none) to 10 (the worst pain they'd ever experienced)

    Total Men Women
    5.5 5.5 5.6


    --------------------------------------------------------------------------------

    Fibromites involved in the testing of the survey were asked to list all their allergies. The question on allergies was removed from further testing since the results didn't point to any possible cause of FM.

    However, according to two studies I found in Medline, Penicillin allergy is found in only 6-8% of the population. Because the original 25 testers cited a 28% allergy to penicillin, the question, along with asking for an explanation of the allergic symptoms, was returned to the March surveys. The 67 people questioned validated the previous question with 25% of both the 8 men and the 59 women being signiificantly allergic to penicillin.

    Allergies Bee Stings 16%
    Cherries 4%
    Coconut 4%
    Codeine 36%
    Demerol 4%
    Epinephrine 4%
    Keflex 4%
    Macrodantin 8%
    Morphine 4%
    Mycins 8%
    Nickel 16%
    Penicillin 28%
    Perfumes 4%
    Ragweed 8%
    Roses 4%
    Shellfish 8%
    Spinach 4%
    Sulfa 8%
    Talwin 4%
    Ultram 4%


    --------------------------------------------------------------------------------

    These results are from the 217 surveyed:

    Employment changes since onset of Fibromyalgia Total Men Women
    Before After Before After Before After
    Good Health 77% 36% 76% 53% 78% 35%
    Exercise 59% 34% 82% 41% 57% 33%
    Employed 89% 24% 100% 53% 89% 21%
    Household Duties 88% 8% 94% 24% 87% 7%
    Blue-Collar 9% 2% 6% 6% 9% 2%
    White-Collar 39% 22% 29% 35% 40% 21%
    Mid-Mgmt 20% 5% 18% 6% 21% 5%
    Upper Mgmt 10% 4% 12% 12% 10% 4%
    Professional 37% 18% 47% 29% 36% 17%
    Student 14% 7% 18% 6% 14% 7%
    Working from home 8% 17% 6% 18% 8% 17%
    Retirements 2% 28% 6% 24% 2% 28%




    These are the careers as cited by the original 25 survey testers:


    Business 32%
    Education 16%
    Medicine 12%
    Computer 8%
    Library Science 4%
    Arts 4%


    --------------------------------------------------------------------------------

    Status Changes after Onset of Fibromyalgia Total Men Women
    Better Worse Better Worse Better Worse
    Relationships 41% 59% 35% 65% 42% 59%
    Careers 28% 72% 35% 65% 27% 73%
    Finances 31% 69% 35% 65% 31% 70%
    Self-Esteem 29% 71% 47% 53% 28% 72%


    --------------------------------------------------------------------------------

    PRECIPITATING FACTORS that brought the onset of FMS could be identified by 78% of the 217 folks surveyed.

    Total Men Women
    As Stated By: 78% 71% 79%
    Stress 37% 25% 38%
    Injury 42% 42% 42%
    Chronic Illness 8% 8% 8%
    Pregnancy 7% 0% 8%
    Surgery 9% 8% 9%
    Infection 21% 25% 20%


    --------------------------------------------------------------------------------

    FLARES causes could be identified by 77% of the 175 women and 17 men asked

    Flare Total Men Women
    As Stated By: 77% 65% 78%
    Stress 67% 91% 65%
    Overdoing 46% 64% 44%
    Weather 24% 9% 25%
    Other (mainly flu) 13% 9% 13%
    Injury 10% 0% 11%




    --------------------------------------------------------------------------------

    The 25 individuals involved in the initial testing of the survey were asked to differentiate whether the following occurred before or after their perceived onset of Fibromyalgia. These questions were removed from future testing since they didn't appear to be possible factors in the cause of Fibromyalgia.

    Before After
    Appendicitis 24% 8%
    Chickenpox 76% 8%
    Fluoroscopy 16% 12%
    Herpes Simplex 4% 20%
    Herpes Zoster 8% 4%
    Polio 8% 0%
    Measles 56% 8%
    MRI 24% 44%
    Mumps 48% 4%
    PET Scan 4% 4%
    STD's 8% 0%
    General Anesthesia 72% 40%
    Tonsillitis 40% 12%
    Whooping Cough 8% 0%
    X-Rays (more than 10) 40% 52%


    --------------------------------------------------------------------------------

    These results came from the testing of the tool and were removed


    40% of us smoke or are ex-smokers

    40% of us have used street drugs.

    24% were addicts and/or alcoholics in the past. In the research stated below, 16% had used drugs.

    60% report their teeth are in good shape and only 28% report ever having unrepaired fillings for any length of time.

    52% reported having been sexually, emotionally, and/or physically abused. This finding matched the study done by Boisset-Pioro-MH; Esdaile-JM; Fitzcharles-MA. "Sexual and physical abuse in women with fibromyalgia syndrome." Arthritis-Rheum. 1995 Feb; 38(2):235-41. AN: 95151052.


    TRAVEL

    We not only reside all over the world, we also travel all over the world. There were no pointers indicating further research.



    MEDICAL IMPACT

    Respondents report that FMS costs $7,445 per year and that they are paying an additional $1,868 themselves per year. This matched another study I found on the cost of FM care.

    Respondents state that they know of an average of 2 relatives with FMS and 4 non-relatives with FMS.

    Total Men Women
    High school Grad 94% 100% 94%
    Some college 89% 94% 89%
    College degree 48% 71% 46%
    Post-grad 33% 71% 30%



    Self-Perceived Disability vs Doctors' Opinion Total Doc Men Doc Women Doc
    Disabled 64% 49% 47% 47% 65% 49%



    Ethnicity as stated by 61 respondents
    Breakdown of country of origin or race exactly as stated by those surveyed

    Scotland 1.58 2.6%
    Ireland 3.24 5.3%
    England 2.41 4.0%
    Germany 3.16 5.2%
    American Indian 2.83 4.6%
    Switzerland 1.50 2.5%
    France 0.83 1.4%
    Afro-American 1.00 1.6%
    Jew 4.00 6.6%
    Caucasian 34.00 55.8%
    Austria 1.00 1.6%
    American 1.50 2.5%
    Italy 1.00 1.6%
    Russia 0.50 0.8%
    Netherlands 0.33 0.5%
    India 0.33 0.5%
    Norway 0.33 0.5%
    Sweden 0.33 0.5%
    Denmark 0.33 0.5%
    Poland 0.50 0.8%
    Wales 0.25 0.4%



    Average Numbers of Doctors Seen
    Total Men Women
    7.1 9.4 7.0




    Medical Specialties visited by FMers
    Specialty Total Men Women
    Anesthesia 2% 6% 2%
    Cardiology 5% 0% 5%
    Chiropractic 18% 18% 18%
    D.O. 20% 29% 19%
    Endocrinology 18% 24% 18%
    ENT 5% 6% 5%
    Family GP 25% 12% 26%
    Gastrology 6% 0% 6%
    GYN/OB 14% 0% 16%
    Internal Medicine 71% 82% 70%
    MSW 43% 35% 44%
    Neurology 26% 29% 26%
    Neurosurgeon 5% 12% 5%
    Oncology 2% 0% 2%
    Ophthalmology 6% 0% 7%
    Orthopedic 14% 18% 14%
    Pain Specialist 6% 12% 5%
    P.T./Physiatrist 19% 12% 20%
    Plastic Surgeon 1% 0% 1%
    Psychiatry 42% 24% 44%
    Pulmonary 2% 0% 2%
    Radiology 1% 0% 1%
    Rheumatology 78% 88% 78%
    Surgery 4% 0% 4%
    Urology 4% 0% 4%

    N.B. I did not add the Aromatherapists, Accupuncturists, Naturalpaths, Reflexologists, or Homeopaths due to their limited numbers.



    Frequency of Doctor Visits
    Weekly 6% 0% 6%
    Biweekly 13% 0% 15%
    Monthly 20% 41% 19%
    Every 2-5 months 30% 35% 30%
    Every 6-11 months 20% 18% 21%
    Once a Year 4% 0% 5%



    Because the original 25 testers cited a 28% allergy to penicillin, the question, along with an explanation of the symptoms of allergy, was returned to the March surveys. The 67 people questioned validated the previous question with 25% of both the 8 men and the 59 women being signiificantly allergic to penicillin.




    Full List of Medications.

    N.B.: "Amino Acids" and various amino acids as well as "Herbs" and various herbs are listed separately because that was the way folks offered them.

    Additionally, the "Medications Tried" column is not accurate because many people stated that they couldn't remember all of the ones they had been on over the years.


    Full List of Medications Presently On Tried
    A&D 2% 0%
    Acidophilus 5% 0%
    Aldactone 0.5% 0%
    Aloe Vera 1% 0%
    Ambien 8% 7%
    Amino Acids 10% 5%
    Atarax 1% 2%
    Ativan 6% 2%
    Arthotec 1% 0%
    B-Complex 19% 0%
    B-6 9% 0%
    Baclefen 1% 0%
    Benedryl 6% 2%
    Benemid 0% 0.5%
    Bentyl 1% 1%
    Vitamin C 18% 0%
    Calan 1% 0.5%
    Calcium 18% 0%
    Calms Forte 2% 0.5%
    Claritin 3% 1%
    Clinoril 0.5% 0.5%
    Clorazepate 0.5% 0%
    Codeine 6% 7%
    CoQ10 5% 2%
    Cylert 1% 0.5%
    Cytomel 1% 0%
    Dalmane 0% 1%
    Darvocet 10% 6%
    Daypro 1% 3%
    Demoral 0% 1%
    Desyrel 8% 12%
    DHEA 4% 1%
    Depakote 0.5% 0.5%
    Dexedrine 1% 0%
    DLPA 1% 2%
    Vitamin E 12% 0%
    Echinacea 1% 2%
    Effexor 2% 1%
    Elavil 14% 31%
    Esgic 2% 0%
    Evening Primrose Oil 5% 0.5%
    Feldene 0.5% 1%
    Fiorcef 2% 1%
    Fiornal 2% 0%
    Flaxseed 1% 0%
    Flexeril 17% 13%
    Garlic 2% 0%
    Gingko 5% 2%
    Gingseng 1% 4%
    Grapeseed 1% 0%
    Guaifenesin 6% 2%
    Halcion 0% 0.5%
    Herbs 11% 2%
    Ibuprofen 15% 15%
    Indocin 0.5% 3%
    Imitrex 3% 0%
    Imovane 0% 0.5%
    Iron 3% 0%
    Klonipin 7% 1%
    Lasix 0.5% 0%
    Levoxyl 2% 0.5%
    Librium 1% 1%
    Licorice 1% 0.5%
    Lithium 0.5% 0%
    Londine 2% 4%
    Lozol 0.5% 0%
    Lursell 0.5% 0%
    Luvox 0% 1%
    Magnesium 19% 9%
    Malic Acid 7% 0%
    Malic/Magnesium 0% 6%
    Manerix 1% 0%
    Maxide 0.5% 0%
    Melatonin 6% 6%
    Methadone 1% 0%
    Multi-Vitamins 23% 0%
    Mycelex 1% 0%
    NADH 0.5
    Naproxen 6% 10%
    Nardil 0% 1%
    Nefedar 0.5% 0%
    Neurotonin 3% 0%
    Nortripaline 3% 11%
    NSAIDS 0% 15%
    Oxycontin 1% 0%
    Oxytocin 0.5% 0%
    Paxil 8% 8%
    Percodan 2% 5%
    Phen/Fen 1% 0%
    Picolinate 3% 0%
    Pindolol 0.5% 0%
    Potassium 0.5% 0%
    Prednisone 1% 3%
    Premarin 6% 0%
    Premphase 0.5% 0%
    Prempro 1% 0%
    Prilosec 5% 0%
    Probanthine 0% 0.5%
    Propulsid 1% 0%
    Provera 2% 0%
    Prozac 11% 14%
    Psyllium 1% 0%
    Pycnogenol 3% 2%
    Redux 0.5% 1%
    Reglan 0% 0.5%
    Relafen 3% 2%
    Restoril 3% 1%
    Robaxin 1% 3%
    Seldane 1% 0%
    Serzone 4% 2%
    Sinemet 1% 0%
    Sinequan 5% 8%
    Skelaxin 2% 0.5%
    Soma 7% 4%
    Stadol 1% 0.5%
    St. John's Wort 0% 0.5%
    Synthroid 6% 1%
    Tagament 3% 0%
    Talwin 0.5% 1%
    Tofranil 1% 2%
    Trilafon 0% 0.5%
    Tryptophan or 5-HTP 2% 2%
    Tylenol 17% 11%
    Ultradol 0.5% 0%
    Ultram 10% 4%
    Valerian Root 2% 2%
    Valium 2% 5%
    Vicodan 9% 1%
    Voltaren 1% 1%
    Wellbutrin 1% 2%
    Xanax 6% 7%
    Zantac 4% 0%
    Zoloft 10% 12%
    Zovirax 2% 0%



    In addition to Fibromyalgia, we average 3 other diagnosis each.

    Additional Diagnosis Total Men Women
    Arthritis 15% 18% 15%
    Asthma 10% 6% 11%
    ADD 1% 0% 2%
    Bursitis 2% 6% 2%
    Cancer 2% 0% 2%
    Cardiac Problems 1% 0% 2%
    Carpal Tunnel 8% 0% 9%
    CFS 22% 12% 23%
    DDD 11% 6% 12%
    Depression 16% 12% 17%
    Diabetes 2% 12% 2%
    Epilepsy 0.5% 0% 1%
    Hashimoto 1% 0% 2%
    Hepatitis 3% 6% 3%
    High Blood Pressure 19% 24% 19%
    Hypothyroid 13% 6% 14%
    IBS 14% 12% 14%
    Lupus 2% 0% 2%
    Meniere's 1% 0% 2%
    Migraine 53% 71% 52%
    Mitral Valve 12% 6% 13%
    MCS 3% 0% 4%
    Myofascial Pain Syndrome 12% 12% 12%
    Osteoporosis 3% 0% 4%
    Panic Disorder 47% 53% 47%
    PTSD 3% 0% 3%
    Reflux esophagitis 38% 35% 38%
    Renal Disease 0.5% 0% 1%
    Reynaud's 14% 6% 15%
    Scolosis 4% 12% 4%
    Spondylosis 1% 0% 2%
    Candiasis 2% 0% 3%
    TMJ 7% 0% 8%



    Occurrence of Symptoms


    The number shown represents the relative number of times the symptom was reported by patients as beginning after the [perceived] onset of FM as compared to before onset. For example, two times as many patients reported "buckling knee" started after the onset of FM as those who reported that it started prior to the onset of FM.

    Given that FM is often claimed to be the manifestation of sleep dysfunction, it is astounding to see that sleep dysfunction is 2.81 times more often reported as commencing after the onset of FM. This would suggest that neither FM nor the pain of FM is caused by sleep dysfunction.

    Perhaps of most significance is that the results may well exemplify the progressive nature of Fibromyalgia, beginning with complaints of vague physical irritants and progressing in complexity and severity until the patient experiences widespread, debilitating physical and mental symptoms.


    1.01 menstrual problems
    1.11 cramps
    1.12 PMS
    1.14 Mitral valve prolapse
    1.15 inversion sprain of ankle
    1.24 sciatica
    1.45 mouth sores
    1.45 weak ankles
    1.47 migraine headache
    1.50 sore throat
    1.53 chronic cough
    1.55 toothache
    1.56 conjunctivitis
    1.58 bruising
    1.60 vasomotor rhinitis
    1.64 swollen glands
    1.68 anxiety
    1.69 mouth lesions
    1.71 mood swings
    1.77 pelvic pain
    1.77 bloating
    1.78 carbohydrate craving
    1.83 mold and yeast sensitivity
    1.85 high or low temperature
    (most often cited as "low")

    1.86 fungal infections
    1.88 high blood pressure
    1.93 dermagraphia
    1.95 leg cramps
    2.00 buckling knee
    2.05 tennis elbow
    2.16 breast pain
    2.17 eye or ear pain or dysfunction
    2.17 pain
    2.19 irritability
    2.21 hypoglycemic-like syndrome
    2.28 hypersensitive nipples
    2.29 painful intercourse
    2.30 sensitivity to cold
    2.30 nausea
    2.36 itching and/or rashes
    2.53 hair loss
    2.54 fatigue
    2.56 tearing and red eyes
    2.56 weight gain
    2.57 nail ridges and/or beads
    2.60 non-IgE allergy
    2.61 tinnitus
    2.68 directional disorientation and visual perception problems
    2.70 tender lymph nodes
    2.79 Reynaud's Syndrome
    2.81 sleep dysfunction (alpha-delta sleep anomaly and/or fragmented, non-restorative sleep)
    2.85 photophobia
    2.96 reflux esophagitis
    2.97 sensitivity to odors and foods
    3.00 hypothyroidism
    3.00 muscle twitching
    3.06 immune dysfunction
    3.24 stiffness
    3.25 mottled skin on inner arms and thighs
    3.27 panic attacks
    3.32 chest pain
    3.33 high cholesterol
    3.37 diffuse swelling
    3.38 environmental sensitivity
    3.50 disrupted fat metabolism
    3.50 sleep apnea
    3.63 electromagnetic sensitivity
    3.67 groin pain
    3.87 dysphagia
    4.00 shortness of breath
    4.15 motor coordination problems
    4.17 high HDL
    4.19 lack of endurance
    4.39 numbness and tingling sensations
    4.48 trouble concentrating
    5.13 problems climbing stairs
    5.50 pseudoangina
    5.67 weakness
    5.84 confusional states
    5.86 deficits in cognitive thought processes
    6.21 speech and language difficulties
    6.25 difficulties with sequential problems
    9.38 memory impairment



    82% of the 217 respondents are availing ourselves of regular therapy.

    Therapy Therapy Total Men Women
    Total 82% 94% 81%
    Acupuncture 8% 13% 7%
    BioFeedback 2% 6% 2%
    Chiropractic 25% 13% 27%
    Exercise 76% 75% 76%
    Massage 37% 31% 38%
    Relaxation Techniques 12% 13% 12%
    Stretching 24% 19% 24%
    Other 13% 6% 14%


    --------------------------------------------------------------------------------

    80% of the 175 women and the 17 men asked could state which therapy was best for them.


    Reported Best Treatment Total Men Women
    Total 80% 88% 79%
    Chiropractic 4% 0% 4%
    SSRI's 7% 0% 7%
    Massage 22% 7% 23%
    Exercise 16% 40% 13%
    Cyclic Anti-depressants 8% 7% 9%
    Myofascial Release 1% 0% 1%
    Analgesics 10% 7% 11%
    Narcotics 11% 13% 11%
    Muscle Relaxants 8% 13% 7%
    Other 24% 20% 24%



    Weight Total Men Women
    Overweight 76% 71% 77%
    Underweight 5% 6% 5%
    Average
    (overweight) 32.0 pounds 17.4 pounds 33.3 pounds




    I found these results very interesting. Each of us have had an average of 5 vaccines.

    Tetanus 92%
    Polio 84%
    DPT 56%
    Measles 48%
    Typhoid 40%
    Mumps 32%
    HepatitisB 32%
    Cholera 28%
    Typhus 28%
    Yellow Fever 24%
    Chickenpox 20%



    END
  2. amymb74

    amymb74 New Member


    This is quite long but thought it was interesting to skim through:

    (this is off the from fatigued to fantasic site)
    These are cumulative results of the March poll: 217

    respondents, 92% female, 8% male

    Total Men Women
    Average age 44 46 44
    Age of FM onset 30 31 30
    Diagnosed at age 40 43 40
    Years untreated 10 11 10
    Yrs with FM symptoms 14 15 13


    --------------------------------------------------------------------------------

    Pain levels: 175 of the women and the 17 men were asked to state their present pain levels on a scale of 0 (none) to 10 (the worst pain they'd ever experienced)

    Total Men Women
    5.5 5.5 5.6


    --------------------------------------------------------------------------------

    Fibromites involved in the testing of the survey were asked to list all their allergies. The question on allergies was removed from further testing since the results didn't point to any possible cause of FM.

    However, according to two studies I found in Medline, Penicillin allergy is found in only 6-8% of the population. Because the original 25 testers cited a 28% allergy to penicillin, the question, along with asking for an explanation of the allergic symptoms, was returned to the March surveys. The 67 people questioned validated the previous question with 25% of both the 8 men and the 59 women being signiificantly allergic to penicillin.

    Allergies Bee Stings 16%
    Cherries 4%
    Coconut 4%
    Codeine 36%
    Demerol 4%
    Epinephrine 4%
    Keflex 4%
    Macrodantin 8%
    Morphine 4%
    Mycins 8%
    Nickel 16%
    Penicillin 28%
    Perfumes 4%
    Ragweed 8%
    Roses 4%
    Shellfish 8%
    Spinach 4%
    Sulfa 8%
    Talwin 4%
    Ultram 4%


    --------------------------------------------------------------------------------

    These results are from the 217 surveyed:

    Employment changes since onset of Fibromyalgia Total Men Women
    Before After Before After Before After
    Good Health 77% 36% 76% 53% 78% 35%
    Exercise 59% 34% 82% 41% 57% 33%
    Employed 89% 24% 100% 53% 89% 21%
    Household Duties 88% 8% 94% 24% 87% 7%
    Blue-Collar 9% 2% 6% 6% 9% 2%
    White-Collar 39% 22% 29% 35% 40% 21%
    Mid-Mgmt 20% 5% 18% 6% 21% 5%
    Upper Mgmt 10% 4% 12% 12% 10% 4%
    Professional 37% 18% 47% 29% 36% 17%
    Student 14% 7% 18% 6% 14% 7%
    Working from home 8% 17% 6% 18% 8% 17%
    Retirements 2% 28% 6% 24% 2% 28%




    These are the careers as cited by the original 25 survey testers:


    Business 32%
    Education 16%
    Medicine 12%
    Computer 8%
    Library Science 4%
    Arts 4%


    --------------------------------------------------------------------------------

    Status Changes after Onset of Fibromyalgia Total Men Women
    Better Worse Better Worse Better Worse
    Relationships 41% 59% 35% 65% 42% 59%
    Careers 28% 72% 35% 65% 27% 73%
    Finances 31% 69% 35% 65% 31% 70%
    Self-Esteem 29% 71% 47% 53% 28% 72%


    --------------------------------------------------------------------------------

    PRECIPITATING FACTORS that brought the onset of FMS could be identified by 78% of the 217 folks surveyed.

    Total Men Women
    As Stated By: 78% 71% 79%
    Stress 37% 25% 38%
    Injury 42% 42% 42%
    Chronic Illness 8% 8% 8%
    Pregnancy 7% 0% 8%
    Surgery 9% 8% 9%
    Infection 21% 25% 20%


    --------------------------------------------------------------------------------

    FLARES causes could be identified by 77% of the 175 women and 17 men asked

    Flare Total Men Women
    As Stated By: 77% 65% 78%
    Stress 67% 91% 65%
    Overdoing 46% 64% 44%
    Weather 24% 9% 25%
    Other (mainly flu) 13% 9% 13%
    Injury 10% 0% 11%




    --------------------------------------------------------------------------------

    The 25 individuals involved in the initial testing of the survey were asked to differentiate whether the following occurred before or after their perceived onset of Fibromyalgia. These questions were removed from future testing since they didn't appear to be possible factors in the cause of Fibromyalgia.

    Before After
    Appendicitis 24% 8%
    Chickenpox 76% 8%
    Fluoroscopy 16% 12%
    Herpes Simplex 4% 20%
    Herpes Zoster 8% 4%
    Polio 8% 0%
    Measles 56% 8%
    MRI 24% 44%
    Mumps 48% 4%
    PET Scan 4% 4%
    STD's 8% 0%
    General Anesthesia 72% 40%
    Tonsillitis 40% 12%
    Whooping Cough 8% 0%
    X-Rays (more than 10) 40% 52%


    --------------------------------------------------------------------------------

    These results came from the testing of the tool and were removed


    40% of us smoke or are ex-smokers

    40% of us have used street drugs.

    24% were addicts and/or alcoholics in the past. In the research stated below, 16% had used drugs.

    60% report their teeth are in good shape and only 28% report ever having unrepaired fillings for any length of time.

    52% reported having been sexually, emotionally, and/or physically abused. This finding matched the study done by Boisset-Pioro-MH; Esdaile-JM; Fitzcharles-MA. "Sexual and physical abuse in women with fibromyalgia syndrome." Arthritis-Rheum. 1995 Feb; 38(2):235-41. AN: 95151052.


    TRAVEL

    We not only reside all over the world, we also travel all over the world. There were no pointers indicating further research.



    MEDICAL IMPACT

    Respondents report that FMS costs $7,445 per year and that they are paying an additional $1,868 themselves per year. This matched another study I found on the cost of FM care.

    Respondents state that they know of an average of 2 relatives with FMS and 4 non-relatives with FMS.

    Total Men Women
    High school Grad 94% 100% 94%
    Some college 89% 94% 89%
    College degree 48% 71% 46%
    Post-grad 33% 71% 30%



    Self-Perceived Disability vs Doctors' Opinion Total Doc Men Doc Women Doc
    Disabled 64% 49% 47% 47% 65% 49%



    Ethnicity as stated by 61 respondents
    Breakdown of country of origin or race exactly as stated by those surveyed

    Scotland 1.58 2.6%
    Ireland 3.24 5.3%
    England 2.41 4.0%
    Germany 3.16 5.2%
    American Indian 2.83 4.6%
    Switzerland 1.50 2.5%
    France 0.83 1.4%
    Afro-American 1.00 1.6%
    Jew 4.00 6.6%
    Caucasian 34.00 55.8%
    Austria 1.00 1.6%
    American 1.50 2.5%
    Italy 1.00 1.6%
    Russia 0.50 0.8%
    Netherlands 0.33 0.5%
    India 0.33 0.5%
    Norway 0.33 0.5%
    Sweden 0.33 0.5%
    Denmark 0.33 0.5%
    Poland 0.50 0.8%
    Wales 0.25 0.4%



    Average Numbers of Doctors Seen
    Total Men Women
    7.1 9.4 7.0




    Medical Specialties visited by FMers
    Specialty Total Men Women
    Anesthesia 2% 6% 2%
    Cardiology 5% 0% 5%
    Chiropractic 18% 18% 18%
    D.O. 20% 29% 19%
    Endocrinology 18% 24% 18%
    ENT 5% 6% 5%
    Family GP 25% 12% 26%
    Gastrology 6% 0% 6%
    GYN/OB 14% 0% 16%
    Internal Medicine 71% 82% 70%
    MSW 43% 35% 44%
    Neurology 26% 29% 26%
    Neurosurgeon 5% 12% 5%
    Oncology 2% 0% 2%
    Ophthalmology 6% 0% 7%
    Orthopedic 14% 18% 14%
    Pain Specialist 6% 12% 5%
    P.T./Physiatrist 19% 12% 20%
    Plastic Surgeon 1% 0% 1%
    Psychiatry 42% 24% 44%
    Pulmonary 2% 0% 2%
    Radiology 1% 0% 1%
    Rheumatology 78% 88% 78%
    Surgery 4% 0% 4%
    Urology 4% 0% 4%

    N.B. I did not add the Aromatherapists, Accupuncturists, Naturalpaths, Reflexologists, or Homeopaths due to their limited numbers.



    Frequency of Doctor Visits
    Weekly 6% 0% 6%
    Biweekly 13% 0% 15%
    Monthly 20% 41% 19%
    Every 2-5 months 30% 35% 30%
    Every 6-11 months 20% 18% 21%
    Once a Year 4% 0% 5%



    Because the original 25 testers cited a 28% allergy to penicillin, the question, along with an explanation of the symptoms of allergy, was returned to the March surveys. The 67 people questioned validated the previous question with 25% of both the 8 men and the 59 women being signiificantly allergic to penicillin.




    Full List of Medications.

    N.B.: "Amino Acids" and various amino acids as well as "Herbs" and various herbs are listed separately because that was the way folks offered them.

    Additionally, the "Medications Tried" column is not accurate because many people stated that they couldn't remember all of the ones they had been on over the years.


    Full List of Medications Presently On Tried
    A&D 2% 0%
    Acidophilus 5% 0%
    Aldactone 0.5% 0%
    Aloe Vera 1% 0%
    Ambien 8% 7%
    Amino Acids 10% 5%
    Atarax 1% 2%
    Ativan 6% 2%
    Arthotec 1% 0%
    B-Complex 19% 0%
    B-6 9% 0%
    Baclefen 1% 0%
    Benedryl 6% 2%
    Benemid 0% 0.5%
    Bentyl 1% 1%
    Vitamin C 18% 0%
    Calan 1% 0.5%
    Calcium 18% 0%
    Calms Forte 2% 0.5%
    Claritin 3% 1%
    Clinoril 0.5% 0.5%
    Clorazepate 0.5% 0%
    Codeine 6% 7%
    CoQ10 5% 2%
    Cylert 1% 0.5%
    Cytomel 1% 0%
    Dalmane 0% 1%
    Darvocet 10% 6%
    Daypro 1% 3%
    Demoral 0% 1%
    Desyrel 8% 12%
    DHEA 4% 1%
    Depakote 0.5% 0.5%
    Dexedrine 1% 0%
    DLPA 1% 2%
    Vitamin E 12% 0%
    Echinacea 1% 2%
    Effexor 2% 1%
    Elavil 14% 31%
    Esgic 2% 0%
    Evening Primrose Oil 5% 0.5%
    Feldene 0.5% 1%
    Fiorcef 2% 1%
    Fiornal 2% 0%
    Flaxseed 1% 0%
    Flexeril 17% 13%
    Garlic 2% 0%
    Gingko 5% 2%
    Gingseng 1% 4%
    Grapeseed 1% 0%
    Guaifenesin 6% 2%
    Halcion 0% 0.5%
    Herbs 11% 2%
    Ibuprofen 15% 15%
    Indocin 0.5% 3%
    Imitrex 3% 0%
    Imovane 0% 0.5%
    Iron 3% 0%
    Klonipin 7% 1%
    Lasix 0.5% 0%
    Levoxyl 2% 0.5%
    Librium 1% 1%
    Licorice 1% 0.5%
    Lithium 0.5% 0%
    Londine 2% 4%
    Lozol 0.5% 0%
    Lursell 0.5% 0%
    Luvox 0% 1%
    Magnesium 19% 9%
    Malic Acid 7% 0%
    Malic/Magnesium 0% 6%
    Manerix 1% 0%
    Maxide 0.5% 0%
    Melatonin 6% 6%
    Methadone 1% 0%
    Multi-Vitamins 23% 0%
    Mycelex 1% 0%
    NADH 0.5
    Naproxen 6% 10%
    Nardil 0% 1%
    Nefedar 0.5% 0%
    Neurotonin 3% 0%
    Nortripaline 3% 11%
    NSAIDS 0% 15%
    Oxycontin 1% 0%
    Oxytocin 0.5% 0%
    Paxil 8% 8%
    Percodan 2% 5%
    Phen/Fen 1% 0%
    Picolinate 3% 0%
    Pindolol 0.5% 0%
    Potassium 0.5% 0%
    Prednisone 1% 3%
    Premarin 6% 0%
    Premphase 0.5% 0%
    Prempro 1% 0%
    Prilosec 5% 0%
    Probanthine 0% 0.5%
    Propulsid 1% 0%
    Provera 2% 0%
    Prozac 11% 14%
    Psyllium 1% 0%
    Pycnogenol 3% 2%
    Redux 0.5% 1%
    Reglan 0% 0.5%
    Relafen 3% 2%
    Restoril 3% 1%
    Robaxin 1% 3%
    Seldane 1% 0%
    Serzone 4% 2%
    Sinemet 1% 0%
    Sinequan 5% 8%
    Skelaxin 2% 0.5%
    Soma 7% 4%
    Stadol 1% 0.5%
    St. John's Wort 0% 0.5%
    Synthroid 6% 1%
    Tagament 3% 0%
    Talwin 0.5% 1%
    Tofranil 1% 2%
    Trilafon 0% 0.5%
    Tryptophan or 5-HTP 2% 2%
    Tylenol 17% 11%
    Ultradol 0.5% 0%
    Ultram 10% 4%
    Valerian Root 2% 2%
    Valium 2% 5%
    Vicodan 9% 1%
    Voltaren 1% 1%
    Wellbutrin 1% 2%
    Xanax 6% 7%
    Zantac 4% 0%
    Zoloft 10% 12%
    Zovirax 2% 0%



    In addition to Fibromyalgia, we average 3 other diagnosis each.

    Additional Diagnosis Total Men Women
    Arthritis 15% 18% 15%
    Asthma 10% 6% 11%
    ADD 1% 0% 2%
    Bursitis 2% 6% 2%
    Cancer 2% 0% 2%
    Cardiac Problems 1% 0% 2%
    Carpal Tunnel 8% 0% 9%
    CFS 22% 12% 23%
    DDD 11% 6% 12%
    Depression 16% 12% 17%
    Diabetes 2% 12% 2%
    Epilepsy 0.5% 0% 1%
    Hashimoto 1% 0% 2%
    Hepatitis 3% 6% 3%
    High Blood Pressure 19% 24% 19%
    Hypothyroid 13% 6% 14%
    IBS 14% 12% 14%
    Lupus 2% 0% 2%
    Meniere's 1% 0% 2%
    Migraine 53% 71% 52%
    Mitral Valve 12% 6% 13%
    MCS 3% 0% 4%
    Myofascial Pain Syndrome 12% 12% 12%
    Osteoporosis 3% 0% 4%
    Panic Disorder 47% 53% 47%
    PTSD 3% 0% 3%
    Reflux esophagitis 38% 35% 38%
    Renal Disease 0.5% 0% 1%
    Reynaud's 14% 6% 15%
    Scolosis 4% 12% 4%
    Spondylosis 1% 0% 2%
    Candiasis 2% 0% 3%
    TMJ 7% 0% 8%



    Occurrence of Symptoms


    The number shown represents the relative number of times the symptom was reported by patients as beginning after the [perceived] onset of FM as compared to before onset. For example, two times as many patients reported "buckling knee" started after the onset of FM as those who reported that it started prior to the onset of FM.

    Given that FM is often claimed to be the manifestation of sleep dysfunction, it is astounding to see that sleep dysfunction is 2.81 times more often reported as commencing after the onset of FM. This would suggest that neither FM nor the pain of FM is caused by sleep dysfunction.

    Perhaps of most significance is that the results may well exemplify the progressive nature of Fibromyalgia, beginning with complaints of vague physical irritants and progressing in complexity and severity until the patient experiences widespread, debilitating physical and mental symptoms.


    1.01 menstrual problems
    1.11 cramps
    1.12 PMS
    1.14 Mitral valve prolapse
    1.15 inversion sprain of ankle
    1.24 sciatica
    1.45 mouth sores
    1.45 weak ankles
    1.47 migraine headache
    1.50 sore throat
    1.53 chronic cough
    1.55 toothache
    1.56 conjunctivitis
    1.58 bruising
    1.60 vasomotor rhinitis
    1.64 swollen glands
    1.68 anxiety
    1.69 mouth lesions
    1.71 mood swings
    1.77 pelvic pain
    1.77 bloating
    1.78 carbohydrate craving
    1.83 mold and yeast sensitivity
    1.85 high or low temperature
    (most often cited as "low")

    1.86 fungal infections
    1.88 high blood pressure
    1.93 dermagraphia
    1.95 leg cramps
    2.00 buckling knee
    2.05 tennis elbow
    2.16 breast pain
    2.17 eye or ear pain or dysfunction
    2.17 pain
    2.19 irritability
    2.21 hypoglycemic-like syndrome
    2.28 hypersensitive nipples
    2.29 painful intercourse
    2.30 sensitivity to cold
    2.30 nausea
    2.36 itching and/or rashes
    2.53 hair loss
    2.54 fatigue
    2.56 tearing and red eyes
    2.56 weight gain
    2.57 nail ridges and/or beads
    2.60 non-IgE allergy
    2.61 tinnitus
    2.68 directional disorientation and visual perception problems
    2.70 tender lymph nodes
    2.79 Reynaud's Syndrome
    2.81 sleep dysfunction (alpha-delta sleep anomaly and/or fragmented, non-restorative sleep)
    2.85 photophobia
    2.96 reflux esophagitis
    2.97 sensitivity to odors and foods
    3.00 hypothyroidism
    3.00 muscle twitching
    3.06 immune dysfunction
    3.24 stiffness
    3.25 mottled skin on inner arms and thighs
    3.27 panic attacks
    3.32 chest pain
    3.33 high cholesterol
    3.37 diffuse swelling
    3.38 environmental sensitivity
    3.50 disrupted fat metabolism
    3.50 sleep apnea
    3.63 electromagnetic sensitivity
    3.67 groin pain
    3.87 dysphagia
    4.00 shortness of breath
    4.15 motor coordination problems
    4.17 high HDL
    4.19 lack of endurance
    4.39 numbness and tingling sensations
    4.48 trouble concentrating
    5.13 problems climbing stairs
    5.50 pseudoangina
    5.67 weakness
    5.84 confusional states
    5.86 deficits in cognitive thought processes
    6.21 speech and language difficulties
    6.25 difficulties with sequential problems
    9.38 memory impairment



    82% of the 217 respondents are availing ourselves of regular therapy.

    Therapy Therapy Total Men Women
    Total 82% 94% 81%
    Acupuncture 8% 13% 7%
    BioFeedback 2% 6% 2%
    Chiropractic 25% 13% 27%
    Exercise 76% 75% 76%
    Massage 37% 31% 38%
    Relaxation Techniques 12% 13% 12%
    Stretching 24% 19% 24%
    Other 13% 6% 14%


    --------------------------------------------------------------------------------

    80% of the 175 women and the 17 men asked could state which therapy was best for them.


    Reported Best Treatment Total Men Women
    Total 80% 88% 79%
    Chiropractic 4% 0% 4%
    SSRI's 7% 0% 7%
    Massage 22% 7% 23%
    Exercise 16% 40% 13%
    Cyclic Anti-depressants 8% 7% 9%
    Myofascial Release 1% 0% 1%
    Analgesics 10% 7% 11%
    Narcotics 11% 13% 11%
    Muscle Relaxants 8% 13% 7%
    Other 24% 20% 24%



    Weight Total Men Women
    Overweight 76% 71% 77%
    Underweight 5% 6% 5%
    Average
    (overweight) 32.0 pounds 17.4 pounds 33.3 pounds




    I found these results very interesting. Each of us have had an average of 5 vaccines.

    Tetanus 92%
    Polio 84%
    DPT 56%
    Measles 48%
    Typhoid 40%
    Mumps 32%
    HepatitisB 32%
    Cholera 28%
    Typhus 28%
    Yellow Fever 24%
    Chickenpox 20%



    END
  3. thereseuk

    thereseuk New Member

    for posting. It has been an interesting read. I,ve saved it to my favourites.
    love therese
  4. Shoobie

    Shoobie New Member

    This is great!! Thanks for posting!

    We can really use these topics in our research here!

    -Shoobie
  5. SharonR

    SharonR New Member

    Very interesting, this is what we are looking for.
    Smiles
    SharonR
    [This Message was Edited on 09/07/2002]
  6. Milo83

    Milo83 New Member

    Thanks for the post..Very interesting..
    Donna
  7. selma

    selma New Member

    All stats are dependent on interpretation, but these are interesting to read.
  8. coyote

    coyote New Member

    I could relate to a lot of what's in this list, especially the drug allergies. I'm allergic to penecillin, keflex, erythromycin, bactrim, aspirin and bee stings.
    the drug allergies are common in my family.
  9. Jennifer

    Jennifer New Member

    Amy, thanks so much for the survey. Most of it fit me to a t.. jennifer
  10. pam_d

    pam_d New Member

    I have many drug & food allergies & sensitivities myself. Thanks for the info!

    Hugs,
    Pam