Interstitial Cystitis Help

Discussion in 'Chit Chat' started by susabar, May 19, 2008.

  1. susabar

    susabar New Member

    Hi Everyone,
    I am a member of the FM boards.. although I don't have much time to post. My 14 year old daughter was recently diagnosed with Interstitial Cystitis, Vulvar vestibultitis, and pelvic floor dysfunction. Symptoms were off and on the last 18 months, I had her to many urologists and finally after the last 5 months of intense pain , she has been properly diagnosed. The problem is.. I have FM, a super stressful hospital job,I "lost" my husband 4 years ago to a Vicodin addiction. She's been getting tutored since February, has been going to doctors down town ( very inconvient) specials therapists far away and she is still pretty bad off. Now hubby is trying to get half the equity from our home ( which in Pennslyvania is pretty cut and dried) I can't afford to go part-time, retire, go on disability etc etc... I honestly fantasize about getting hit by a bus. ( my sister and I jokingly call this, " Taking the bus " ) I have no relatives except my elderly father who is needy also. PLEASE encourage me !!
    Thanks everyone. P.S. my fibromyalgia is through the roof !!
  2. susabar

    susabar New Member

    Hi Molly,
    This is ironic but I work in a Microbiology laboratory where we perform Lyme antibody tests ! I also have gone the route of all natural products but the diet thing is really tough for a 14 year old.
    I notice when I eat candy I can actually feel pain going through me about 20 minutes later. Does that stop me ? Not if it's M&M peanuts !!

    L, Susabar
  3. pawprints

    pawprints New Member

    Please ask a specialist who deals with IC about Elmiron. It can be a wonderful solution, along with diet changes to help. I had many bladder fills with DMSO, Heparin...this also helped.

    Buy some Prelief over the counter and have her try this as well as Baking soda taken orally. These reduce the acidity of the body.

    Also, see if there is an Accupuncture school near you that could offer her low cost treatment for this problem. You have to attack it for many angles. No one cure fits all and sometimes it takes a while for any of these to work. Hang in there...there is relief. Beware, stress aggravates IC. I know, easier said than done...especially with all that is going on.

    Good luck!
  4. Waynesrhythm

    Waynesrhythm Member

    Hi Susabar,

    You may have missed some of the previous responses you got to your post in March on IC. You can access that post by clicking <a href="">here</a>.

    There's also a large number of posts on IC on the CFS/FM board. A listing of some of these posts can be accessed by clicking <a href="">here</a>.

    Regards, Wayne
    [This Message was Edited on 05/21/2008]
  5. Bluebottle

    Bluebottle New Member

    There's a wonderful forum run by nurses here: