I have a blog on CFIDS, FM and IC Disease and I thought I would copy and paste here my post from 2 days ago. If you have anything I can add to it of irritating things people say, please let me know! Irritating Things People Say And Do Isn't it amazing some of the things that people will say to us regarding our illnesses? With strangers, you can understand why they would not be very sympathetic, but when it is friends, family members, and loved ones, you think you would get more empathy. It is very hard for people who do not suffer with these diseases to understand how we feel and we do need to vent sometimes. But we just want someone who will listen to us and not look at us like we have three eyeballs. I thought it would be a great way for me to vent by listing some of the things that have been said to me and what my response has been, or what I would like to say... 1. "Well, it could be worse. You could have cancer." Response: "Yes, it could be worse. But by saying that to me, you are downplaying how I truly feel and making light of my situation, and dismissing my feelings. After all, I have talked to people with cancer and many of their symptoms are the same as what I go through every day." 2. "You just have to push yourself! Make yourself get up and go!" Response: "Duh! Don't you think I would if I could? Do you really think I just want to lay in this bed? I am telling you that today, I CANNOT do it!" 3. "You could be in my shoes and have MY problems, which are worse than yours." (Don't you HATE when people do this? Turn the subject around to be about their problems in hopes of making your illness seem insignificant?") Response: I am sorry that you are ill also, but unless you are in my shoes you cannot honestly say that your problems are worse and by saying that, you are completely being ignorant towards my feelings and not realizing that I am suffering from a very real, debilitating disease. 4. "You would feel better if you would go to bed at night and sleep instead of staying up till the wee hours of the morning." Response: Do you think that I would purposely stay up till 3:00 or 4:00 a.m., sleep only a few hours, just to get up, feel miserable because I am sick and because I haven't slept, then have to take care of a child all day? Yeah, sounds like my idea of a fun time! Insomnia is part of my illness and if it was always that easy to go to sleep, even with the aid of sleep medications, don't you think I would be sleeping?" 5. "You don't look sick." (I haven't had this happen to me too many times just because I do look awful much of the time. My husband says my eyes give me away, but on the few occassions I have looked good, I get this.) Response: Well gee, I'm sorry! I will make sure my outside matches how bad I feel on the inside next time. Any suggestions? 6. "I am twice your age and can do twice as much as you! It's your generation - all lazy." Response: I am sorry you feel that way. Me, lazy? Ask anyone who knows me and they will tell you otherwise. Age doesn't determine health status. Sorry that you havea such little knowledge about chronic illness - it must be the generation you are from. 7. "You just need to snap out of it and take anti-depressants or something! No one can be sick EVERY DAY!" Response: Sorry, but being a hypochondriac is not on my top ten list of life aspirations. This just goes to show how unknowledged you are and how little you know. 8. Don't you just love the stares you get from people when they see you riding around in the electric carts at Wal-Mart? They give you the once over don't they?