Is Amoxocillin appropriate for Lyme?

Discussion in 'Lyme Disease Archives' started by bct, Jun 24, 2006.

  1. bct

    bct Active Member

    A doc. at a walk-in clinic (I had a tick on my back and wanted to make sure it was all removed) gave me a RX for Amoxicillin 500mgs 3 X day for 30 days.

    Since it was the 6th tick bite I've had this year he also did a blood test, hasn't come back yet.

    I started the abx a week ago, and am getting bad nausea from it. Also a temp. of about 99.4 off/on through the day. Is this herxing?

    Do you think the Amox. rx. is appropriate?

    Thanks to anyone who can help,
    Barry

  2. kellyann

    kellyann New Member

    but I'm not a doctor. My doctor has given me amoxocillin. It is a good sign you are running a slight fever, that means the medication is working. I pray that you don't get Lyme, or if you do it won't be a chronic case of it! It sounds to me like your doctor is on top of it.



    Good Luck with your health!
    Kellyann!
  3. jarjar

    jarjar New Member

    I have read where amoxy is appropriate for Lyme. I'm wanting to say I may have read where Dr. B mentioned amoxy a couple of years back.
    Being nauseated should be die off. Low grade fever sounds positive also.

    jar
  4. hopeful4

    hopeful4 New Member

    Hi Barry,
    I'm concerned that this was your 6th tick-bite of the year. Was that over a period of many months? How long ago was the first bite? Is this the first time you are being treated? I'm not a doctor, but my concern is that you could have already contracted lyme disease by the time you got that 6th bite. And with so many bites, I do not know whether the regimen your dr. gave you is enough. What about co-infections? Most people with lyme disease are also infected with other organisms: bartonella, babesia, ehrlichia, mycoplasma, to name a few. Were you tested for these as well?

    The walk-in clinic doctor has done a good thing in getting you started on anti-biotics and testing you. However, I must say that unless this doctor is highly knowledgeable about lyme, that you should now follow-up by seeking out an LLMD (lyme literate medical doctor). You can do this at lymenet dot org, or possibly through a support group in your state.

    The testing for lyme is highly unreliable. That is why lyme disease is a clinical diagnosis, based on your history (6 tick bites!), your symptoms, and the labs. The most reliable of the tests is the IGENEX Labs Western Blot. Ask for and keep a copy of this test.

    By the way, did you ever have a rash? Did you ever keep a tick and have it sent away for testing?

    As lyme patients we owe it to ourselves to read up on lyme disease and see that we receive proper treatment...or else it will come back to bite us, so to speak. Incomplete treatment can cause resistance, and make you very sick.

    Please do yourself a favor. Print out and read a copy of: DIAGNOSTIC HINTS AND TREATMENT GUIDELINES FOR LYME AND OTHER TICK BORNE ILLNESSES

    by Joseph J Burrascano, Jr., M.D.

    Updated September, 2005

    http://www.ilads.org/burrascano_0905.html
    (edited to remove message board and/or chat sites per rules)

    Pursue and be persistent for your own well-being.

    Best wishes,
    Hopeful4




  5. bct

    bct Active Member

    Thanks for your input and concern.

    If you would please read my post of 5/22 (How is Chronic Lyme best dxd?) you will see my concerns.

    I have lived in the deep woods for the last 30 plus years, homesteading. I have had tick bites more than I can count, usually the adults, but I have dug out the little nymphs before.

    After a nymph was taken off my back about fout yrs. ago (I thought it was an itchy spot for days before someone looked closely and picked it out) I had a period of drenching night sweats and day-time fevers. Since I had been dxd. with chronic lymphocytic leukemia in 2001, I was afraid it was the leukemia kicking in. I did't give Lyme a moments thought.

    Well, it wasn't the leukemia, as my white cells were remaining stable. I chalked it up to a CFS flare.

    So you are right in that I COULD have chronic lyme, and I am now think seriously about it. Not too sure what to do.
    I find the major lyme boards hard to use, so am sticking here for the time being.

    Tomorrow I go for my quaterly check-up with my oncologist.
    The last two times my white-cell count was curiously down and the doc. was perplexed. But it is a good sign. I've never had to have any treatment; just monitoring.

    The doc. who put me on Amox. took blood first for the usual Western Blot/Elisa tests. I later found out that they have Igenix kits at the lab. When should I take the Igenix test, and which one? I suppose I have to wait until some time after the antibiotics are used up, but I don't know -- and I'm sure the doc. won't since he is not an LLMD.

    Any thoughts, anyone?

    [This Message was Edited on 06/26/2006]
  6. hopeful4

    hopeful4 New Member

    bct,
    This is my thought: Find an LLMD. Make an appointment. Go.

    After reading several of your posts here and other threads, it sounds like you are a strong candidate for chronic lyme disease.

    This is a serious, multi-system illness. When you had to deal with leukemia, did you go to a walk-in clinic? No. You went to an oncologist, and you are still in that Doctor's care. If you had heart disease, you would go to a cardiac specialist. Sounds like you have chronic lyme disease and possible co-infections. To be treated properly you must see an LLMD. Given your history, a 30-day supply of amoxicillin will not be enough.

    I repeat: Please do yourself a favor. Print out and read a copy of: DIAGNOSTIC HINTS AND TREATMENT GUIDELINES FOR LYME AND OTHER TICK BORNE ILLNESSES

    by Joseph J Burrascano, Jr., M.D.

    Updated September, 2005

    http://www.ilads.org/burrascano_0905.html

    I'm not usually so blunt. I'm getting the sense that for some reason you are resisting the advice that people are giving you. As my dear Aunt, rest her soul, used to say: Nobody can do it for you, you have to do it for yourself.

    Truly wishing you the best,
    Hopeful4
  7. jarjar

    jarjar New Member

    All you need is the Igenex IgG and IgM western blot don't waste money on the PCR testing offered by igenex.

    As far as low WBC I found out from my last appt with my doc that it is a red flag of the coinfection of Ehrlichiosis.

    You might want to try the LLNP that I mentioned to you in San Francisco awhile back if you have not found a good lyme doc. Its worth the drive to work with someone that studies lyme full time.

    Jar
  8. victoria

    victoria New Member

    I hope you take the wonderful advice up above, Hopeful4 has an excellent comparison -

    - you need a LLMD, just as you need an oncologist...

    all the best,
    Victoria

  9. bct

    bct Active Member

    Thank god that's over. Constant nausea, temps around 99.

    Thanks to all who have replied. I've found an LLMD who will see me, but won't accept medicaid for his Lyme patients. That means I'll have to save up some cash -- pretty hard to do -- and make a trip, and stay in a motel, etc. etc.

    I just saw my oncologist and I'm fine there. He actually thinks I could have chronic lyme too, and wants to refer me to an infectious disease doc (not LLMD to my knowledge!)

    He also wants me to see the Neurologist again because of my increasing and erratic peripheral neuropathy ( which seemed much worse when I was on the Amox. by the way.)

    He also (along with the Neurologist) wants me to go to UCSF Med. Hospital for evaluation, because I'm such a curious specimen. He said he could get the American Cancer ?Association to help me with transport and lodging in San Francisco. I guess I would be a guinea pig.

    Anyway, it's all a bit much for me to take in at once, and I haven't made any decisions yet....

    I am lucky to live near two naturopaths, and have thought about seeing them. One is schooled in Chinese medicine (he studied in China) and was one of the first group of licenced U.S. doctors of Naturopathy. The other is a graduate of the College of Phytotherapy in England, and is English with american wife. They all live and practice within ten miles of me! I don't know what their views/treatment of lyme are though. Do you think I should look into naturopathy too?

    Sorry to ramble on.... I'm going to rest now.

    Thanks for the kindness of strangers,
    Barry
  10. bct

    bct Active Member

    b

    Any thoughts on my last post, particularly re naturopathy?
  11. victoria

    victoria New Member

    Any chance you could get a RX for another round of abx for suspected chronic lyme? Sounds like you have a sympathetic doctor at the very least since he is open to the possibility. You do need to print off some literature at ilads.org to take to him to educate him as to why you need more than 30 days, esp since you seemed to get a herxheimer reaction.

    If not, you could try the Salt and vitamin C approach - very cheap - read JarJar's post about it, I just bumped it with an update, in the meantime.

    Another possibility is the Marshall Protocol, I am doing it with good response; you can go to its website and read about it and get referrals to the closest doctor who will work with you - a good number of people with chronic lyme are getting better with it.

    There is also an herbal approach, and a book about it available at Amazon, as well as a book about the Rife machine treatment of Lyme. Mikie on the CF/FM board feels she has gotten good success with this in conjunction with abx for mycoplasma.

    I'm sorry I don't know anything about the naturopathic route to this disease, but certainly building up your immune system with things like transfer factor etc would be a good idea. I'm sure a naturopath would have other good advice (hopefully).

    Also, look into buying the DVDs about the Lyme patient conference held in Reston VA last April - it's 5 DVDs with some of the leading doctors (LLMDs) speaking, they're loaded with information, and relatively cheap. I'll bump my post about that as well.

    Hope this helps, the more you can educate yourself the better!

    all the best,
    Victoria

  12. bct

    bct Active Member

    for all your advice and suggestions.

    I'll get the DVD's you mention; that will give me a reason to get a DVD player!

    I've got Dr. B's info on file now and am slowly plodding through it. Do you know if Stricker's protocols are the same or similar to Dr. B's?

    The LLMD I've tentatively found follows Stricker's protocols (I believe.) I must find out for sure.

    Best Wishes & Much Thanks.
    Barry
  13. victoria

    victoria New Member

    Sorry I don't know whether they're the same or not... did you google his name? Seems like every LLMD does have his/her own 'twist' to treatment.

    best,
    Victoria

  14. tansy

    tansy New Member

    In the early stages on my illness my lymphocyte count was so low they thought I had AIDS. I also had abnormal macrophages. It took an LLMD seconds to work out the significance of those early test results.

    Since then my WBC continue to show my body responding to an infection.

    I have neuroborreliosis; and tests implicate CPn which is being treated in some cases of MS. Die off in my case often causes an increase in, or even new, neurological problems.

    The first response I had when I started my Tx was nausea, vomitting, my temp went up too. The first early visable sign that Tx were working was a marked reduction in puffyness and swelling especially on my face.

    As Victoria pointed out there are lots of options which you can use to self treat until you get to see someone experienced in treating lyme.

    Take care, Tansy
  15. egiebel

    egiebel New Member

    I am three weeks into amoxicillin, but at 3x1000 mg three times a day.