Is anybody elses hair falling out by the handfuls ?

Discussion in 'Fibromyalgia Main Forum' started by HoaxedTotem, Sep 24, 2003.

  1. HoaxedTotem

    HoaxedTotem New Member

    Just wondering
  2. joannie1

    joannie1 New Member

    That is terrible. Have you had your thyroid checked lately? I do believe that is one thing that happens with low thyroid. Hope it gets better for you soon.
  3. HoaxedTotem

    HoaxedTotem New Member

    It's been checked twice .
  4. hope-floats

    hope-floats New Member

    there is a condition called Alopecia (I hope this is spelled correctly) in which your hair falls out as well. It is an autoimmune condition.

    What is your doctor saying about this? I'm sure he wants to get to the bottom of this as you do. Good luck.
  5. Missnae1

    Missnae1 New Member

    I believe this is a symptom of Lupus as well. Tell your Doctor and have him do an ANA test. It doesn't hurt to check out everything! Hoping it gets better soon and it will grow back. Wishing you luck with your Dr.
    [This Message was Edited on 09/25/2003]
  6. IgotYou

    IgotYou New Member

    Every time I've had a flare I've noticed my hair starts falling out again and my nails stop growing and start cracking and peeling. This time I started taking amino acids and after about two months I've noticed my hair is growing fast and so are my nails, which are also thick and strong. The first time my hair started falling out, I went from long hair to short hair without ever getting a hair cut. It was very distressing. I've been tested for all the autoimmune diseases and don't have them. I think my system has been really run down. It could be adrenal fatigue or something else, I really don't know. But the amino acids have really helped.
  7. momof5

    momof5 New Member

    Looks like I have short hair and I haven't touched the length in ages. That's what I get for kidding my husband about his receeding hair line.
    My doc is checking me for the malabsorption conditions; Celiac's, Crohn's, and Ulcerative colitis. I have other issues also, like weight loss (unintentional). Diagnosed with Fibro and Chronic Fatigue, but these should not happen.
    Hashimoto's Thyroiditis is something I have been treated for these last 13 years.
    First post to this message board.
  8. jennbug

    jennbug New Member

    My hair and nails also bad when Iam going to be in a flare It's always the first thing that happens hair falling out and broken jen.
  9. ssMarilyn

    ssMarilyn New Member

    Hair falling out is a HUGE symptom of an underactive thyroid. If you had yours checked by an MD and not a specialist, then don't believe it when he/she says your thyroid is normal. In order for them to find out what your thyroid is really doing, they need to do a Free T4, Free T3 and thyroid antibodies test. MD's don't know much about the thyroid and only do a TSH test, which is totally unreliable. I say your thyroid is underactive...see an endoc.

    Marilyn :)
  10. Yucca13

    Yucca13 Member

    I want to second the idea to have an ANA test done. Quite a few years ago, I was told that I had "low-grade" Lupus and my hair did think quite a lot and I read that it was a symptom of the disease. Sometimes Lupus will stay low-grade and not be much of a problem. I usually only have problems if I am in the sun for a long time. Then rashes appear and I feel weak and lousy.
  11. achy

    achy New Member

    Now all of a sudden it has started falling out again...after I wash it and comb it I have quite a bit in my hand....Had thyroid checked a year ago, guees it needs to be checked again...
    Odd thing is nails grow like weeds, and the hair on my face is getting thicker! (The face hair is most likely from my asthma is a side effect)

    Glad I'm not going bald alone!! tee hee

    Warm fuzzies
  12. bubblegum

    bubblegum New Member

    I have been a licensed cosmetologist for 20 years and there are many different things that can cause hairloss. One is if you are in a 7 yr. cycle of your life. (7, 14, 21, 28, yrs old. etc) It seems that there is a significant effect on your system during this time.

    Someone mentioned alopecia. If you are experiencing baldness in areas, it is reffered to as alopecia areata. you can do a web search.

    There are some really good products available to prevent further hair loss and help stimulate the follicles of the fallen hair. Nioxin is one that you can buy from a salon. Paul Mitchell has a system that has rogaine. Also if you are strapped for money and have access to a Salley Beauty Supply, they carry a shampoo and conditioner called Follicure that works good.

    Hope this helps
  13. ohmyaching

    ohmyaching New Member

    and ideas of things to check out. Definitely have your hormones (thyroid, estrogen, progesterone, etc.) checked and check for lupus. Are you taking synthetic hormones (HTR, Birth control, etc.)? Hair loss can be a side effect especially if your getting too much. Also check any other medications you are taking to see if hair loss can be a side effect. I run the name of the medication and "side effects" through Google whenever I want to learn the side effects of a medication.
    You are too young for the hormonal imbalance of menopause (unless it's surgical menopause), but not too young for the hormonal imbalance of perimenopause (or premenopause). Sometimes if your body is not making enough progesterone your adrenals will compensate by making androstenendione which has androgenic properties such has male patterned baldness. Taking too much of the hormone DHEA can also have this effect.
  14. kalina

    kalina New Member

    My hair comes out in handfuls in the shower every time I go through a bad flare or Herx. I'm going through one now. There's enough hair in the shower drain to make a nice toupee for my cat. Scary (both the thought of losing hair and the image of seeing my cat sporting a toupee)!

  15. Slosquaw

    Slosquaw New Member

    with vitamen B12. My hair loss seems to be down by about 50%. It may take a month or so. Good luck & God Bless Love