Is anyone hot and cold at the same time??

Discussion in 'Fibromyalgia Main Forum' started by achy, Jan 3, 2003.

  1. achy

    achy New Member

    I have NEVER felt anything like this before. I am in bed...shivering cause I am cold...but yet I am sewaty and hot at the same time!! Am I totally loosing it?

    This is really bothering the little sleep i do get. I see every hour of the clock. Awake, asleep all night.
    I can't take this anymore
    Warm Fuzzies
  2. marcus1243

    marcus1243 New Member

    Have you been dx'd with fibro? It sounds more like CFS to me. It typically causes thermo dysregulation and the body's heating and cooling systems go way out of whack. I'm sorry you're going through this, and I hope it passes for you soon!
  3. Carlacat

    Carlacat New Member

    cause I'm normally freezing when I go to bed but during the day I'm cold but my face feels flushed and hot.
  4. beh43

    beh43 New Member

    Hi Achy,

    I have the same problem. Right now I am freezing. I have put on a shirt and in a few minutes I will be too hot. When I take off the shirt I will get chills and be freezing again. My hands are like ice and I will still be too hot. I have used the A/C when it is 35 degrees outside. I have been diagnosed with Dysautonomia and have no control over my body temp.. My temp. is usually below normal. Many times my waking temp. is 94. I have been checked for thyroid problems with negative results. After 10 years I got the AD diagnosis. If your thyroid checks out okay try a tilt table test. If it is negative see someone at an autonomic dysfunction center. I was diagnosed at Vanderbilt in Nashville TN. Do you ever have rapid heart rate? If so see a see a cardiologist that studies the electrical functions of the heart he will point you in the right direction for an AD diagnosis.

    I have dx of CFS, OI, NMH, POTS, and 2 blood clotting disorders.

    Good Luck,
    [This Message was Edited on 01/03/2003]
  5. Annette2

    Annette2 New Member

    What if you can't go to a Dysautonomia center? What type of doctor should you go to to find out if you have it or not? Thanks.

  6. JaciBart

    JaciBart Member

    I wake up sweating most nights, I just drench the sheets, I have to launder them constantly. I just now opened the back door, my hubby & son are in bed thank God, hubby would never let me do that if he knew, it is winter and I am in Wash State.

    I have mentioned this to doc but he seems unconcerned, hormones check out normal.

    Back & forth all day long between sweating & freezing. It is always especially bad after I shower, I have to open the bedroom window all the way, I get drenched for about an hour non stop. Usually my clothes get soaked as I dress.

  7. dlizard

    dlizard New Member

    all this time I figured it was "just me".... hahahahaha silly me... this has started this year.... freezing like I'm dying/ you can only be THIS cold if you are dying right? .... then so hot you're sweating..... for me its all day AND all night long and has been for about three months now... my doctor says "deal with it" Good luck....
  8. rbtheidmanhabs

    rbtheidmanhabs New Member

    Hi achy!
    Yes I get like that all the time.One minute I'm to hot.I put the ceiling fan on then I get too cold and have to bundle up.I am like that all most every day.
  9. Spoonerpaws

    Spoonerpaws New Member

    So glad to hear so many others are in the same boat!

    I am hot as heck one minute so, and then freezing the next.

    I am opening windows and it is snowing outside.

    My husband thinks I am nuts!

  10. achy

    achy New Member

    I am amazed and so thankful I am not an odd-ball. But at the same time sorry you suffer too. It is soooo frustrating.
    My thyroid test TSH only came back low normal, Dr put me on cytomel but I had stopped taking it, thinking I didn't see any effect....I am back on it as of yesterday...we'll see what happends. Will also get Estrogen checked...past due for trip to Gyne..too many other Dr appts.
    How do you get diag wiht Dysen.....? Can my GP do tests??
    I have FM,CF,IBS, and a host of other goodies.....

    Warm fuzzies
    and thanks for all your help
  11. JaciBart

    JaciBart Member

    Hi Susan, can you tell me what you take for the herpes 6 virus, I am thinking maybe I already take the right thing for that, I am on valtrex.......and what dosage are you on of anti viral and how often?

  12. WizzerMama323

    WizzerMama323 Member

    Ohh, thank GOD for this site!! I can't understand why so many people haven't commented in here for YEARS, though..ohh, well..i finally found out thru this site that i am NOT ALONE!!! I am hot & cold all at the very same time and no one but you guys will understand this feeling. I have CAD (Coronary Artery Disease) and i've had a mild heart attack, so using hormones to counteract all these horrific feelings isn't even possible. :'(
    My thyroid was checked last year and results came back there something else i need to be looking for? Any other possibilities as to what could be causing this, as well as a possible effective treatment? Any suggestions would be greatly appreciated, thanks!!!
  13. WizzerMama323

    WizzerMama323 Member

    Does anyone still respond to this thread? Please say yes! :(
  14. WizzerMama323

    WizzerMama323 Member

    I'm hearing nothing but an echo...please, Lord, let SOMEONE who knows more than i do about this, have some kind of answer for me...:(
  15. dmcduck

    dmcduck Well-Known Member

    I suffer similar issues. I wake up in the night sweating like crazy. I throw the covers off and 2 minutes later, I'm freezing. Pull a cover back on and start sweating. Once it starts, it's covers on, covers off, covers on, covers off for hours.
  16. Auntie Em

    Auntie Em Member

    Yeah, me too. I really wish I had a clue why. I actually have had my feet and legs get too hot while my shoulders and arms are cold while I'm trying to fall asleep. Seriously, how do you deal with that?
  17. WizzerMama323

    WizzerMama323 Member

    Dmcduck, have you been given a diagnosis? I thought i was having menopausal symptoms from hell, but according to my last Dr., i'm totally out of menopause. Now i have NO IDEA of where to turn. I've gone through this for three years and i am about ready to just give in & kill myself. Seriously. This started over three years ago when my husband died of cancers of the liver & lungs. I thought i was just having mental & emotional trauma from his death & that certainly within a month or so, it would correct itself. Well, that was in Sept 2014. It's just gotten worse. My last Dr. told me to take flaxseed oil, blach cohosh & vitamin D3 (i'm deficient). Nothing is helping. My sleep schedule is nil, bc it all depends on if i'm sweating and drenched or freezing and unable to sleep--and both of those are within minutes of each other! Most of the time i'm sweating AND freezing. I don't know how people live with this for years without treatment. I'm about DONE. Also, should i be looking for a particular type of doctor? I have no clue where to look for help. I feel like i'm going totally nuts.
    Idk what the abbreviations for your illnesses mean, but i have Fibromyalgia, Coronary artery disease , diabetes & diabetic neuropathy, OCD, severe clinical depression compounded by situational depression, high blood pressure, anxiety, TMJ, other junky conditions, ad nauseum.
  18. dmcduck

    dmcduck Well-Known Member

    I have Fibromyalgia (FMS), neuropathy (not diabetic), chronic insomnia, hypothyroidism, TMJ, arthritis and asthma for major issues.

    I have the same thing at night...freezing one moment, sweating the next. Covers on, covers off ALL NIGHT long. One hour of uninterrupted sleep would be an absolute luxury. I think my body's thermostat is on the fritz. It may be related to the FMS (not uncommon) or may be the hypothyroidism or both, combined with the fact that I am still menopausal.

    I would suggest finding a doctor who specializes in Fibromyalgia. They can be hard to find and expensive to go to, but it might be worth it. Getting your sleep schedule under control is going to be critical to having any kind of a productive life. I wish you the best.
    WizzerMama323 likes this.
  19. WizzerMama323

    WizzerMama323 Member

    I'm on Medicare as well as Medicaid (total Disability) i hope whatever the cost might be would at least be paid for in part...
    And yes, i called one of my best friends this morning just about in tears and she also said that i need to get my sleep on a strict schedule, as well as my meds. (!!--i would be the worst junkie EVER. I am ALWAYS forgetting to take my meds on time--and that's when i even remember to take them. The only ones i never forget to take are my "nighty night meds", because without them ANY kind of sleep is pretty much null and void. I just forget to take them on a true schedule. One night i might take them around 11 p.m., and the next night i might not remember to take them til 2 or 3 a.m!) :oops:
    So it's now my goal to get on a true schedule and REMEMBER to take them on time as well as deciding what time i would like to get up and what time i'd like to go to bed, realistically. I've not been on any sleeping schedule since i was last able to work and that was in 2003. WOW!:eek:
  20. dmcduck

    dmcduck Well-Known Member

    Yes, you need to get compliant with your meds, as well as attempting to get on a consistent bedtime schedule. As a chronic insomniac, I can tell you that the consistent sleep schedule is one of the most important things. Try looking for a medication dispenser with alarms. They are available. They can help you remember to take your medications on time and consistently. I actually use my smart phone for that (it just went off!!). These will be crucial for you. Please keep at it and let us know how you do.

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