Is anyone still working a full time job with Fibromyalgia?

Discussion in 'Fibromyalgia Main Forum' started by michellokitty, Sep 7, 2006.

  1. michellokitty

    michellokitty New Member

    I was wondering if anyone else out there is holding down a full time job while dealing with Fibro and CFS? I feel as if I should keep working, but it is getting harder and harder for me all the time. This pain is so unbearable and even though I am very good at my job, and respected in the workplace, I feel as if I have to pretend all day long!! It really stinks and I was wondering if anyone else is going through this too and how they are dealing.
  2. cindysewstoo

    cindysewstoo New Member

    Hi! This is my first post to the message boards, but I've been diagnosed with FM and RA for just over a year. Of course, like many others, I searched for a DX for upwards of 7 years! And yes, I am still working a full time job, and taking 6 hours of college classes at night. Don't ask me how...I'm not sure! But I have a really great boss and coworkers. They know what I deal with and don't come down too hard on me when I'm late or when I'm having a particularly bad day. Fortunately, most days are not bad enough (yet!) to keep me home more than one or two days a month. And I'll admit, I push myself too hard. My husband is pretty understanding, too. I think that helps. But I expect I'll probably get to the point some day where I won't be able to handle full time. Not too sure what I'll do then. And I'll agree with you - putting on the "game face" every day is exhausting! But as I said, my coworkers know me pretty well and can usually tell when I'm having a particularly bad day...I try to use a 1 to 10 scale to let them know where I'm at on the bad days. That seems to help.
  3. getfitat40

    getfitat40 New Member

    Hi - Yep I am still working full time. I take sick days often but I have accepted the FMS (along with RA, IBS, Thyroid) and I trust my rheumatologist treatment and care. We have discovered the meds, treatment, and rest that I need to work productively.

    What I have given up to work full time -
    -acceptance of the drugs I must take to function
    -limiting my social life which also includes allowing recoup time
    -taking lunch every day to recharge (usually in my office reading or listening to a book
    -researching alternative care
    -hiring a cleaning lady
    -having groceries delivered every other week - I live on the third floor of my flat and the stairs are hard enough with out heavy groceries - I still buy my perishables a couple of times a week
    -I pretend that I feel better then I actually am feeling.

    It is not easy and some days are harder then others. It is hard but I feel I have no choice at this time - Nancy
  4. msurina1

    msurina1 New Member

    fIBRO FOR 20 YRS. 26 DR'S SAID I WAS THE WORST CASE THEY HAVE EVER SEEN. HOW I EVER DID IT IS WAY BEYOND ME.
  5. musikmaker

    musikmaker New Member

    I had to retire this year because of fibro. I kept giving up more of my life just to make it to work. Eventually there was nothing else to give up so I quit.

    I am slowly regaining parts of my life but it will never be the same as I am not the same.
  6. ericdinbstn

    ericdinbstn New Member

    Yep, I still work full-time. Although the last several months that I've been flaring, I've used up a lot of sick time. Thankfully I have a supervisor who's understanding. Like a poster said above, I've had to make certain allowances. Many of the same that were listed above. I accept the long list of meds I have to be on to maintain even a sense of normalcy. I accept that I may have to cut back on leisure time activity to recuperate. I accept that I can only do what I can do (that's been hard).

    I've recently also tried to take some control. I need to work. My partner doesn't make enough to support us both. Although he supports me emotionally, which is what really counts. So I take my meds, go to the doctor, try and exercise, and am starting to see a chronic pain specialist.

    It ain't easy. Sometimes it's harder than others. But there it is.

    Good luck to you. Hope you can find ways to cope and listen to your body to help you deal with this DD.

    Eric
  7. Greenbean7

    Greenbean7 New Member

    I do work full time at a very stressful (especially stressful right now) job.

    I take my pain meds to get through the day. I have no social life and do nothing after work and most weekends. I am completely useless most evenings and weekends, but that is the price I pay for working.

    So far I have been able to refuse to miss a day due to FM. The only time I miss at work is for doc appointments and if I have to get a shot for a migraine. I can work if I don't have to go to the hospital for a shot of demerol and can get by with pain med and Maxalt, if I have to get a shot I am unable to work for at least one day.

    My office is away from the other gals that work here and because of my seizures they are really good at coming down the hall to check on me periodically. Office manager keeps in my file who to contact in case I have a problem and the other two girls know that I have FM and seizures so they are very aware.

    I am truly blessed to have such understanding employees to work with and my boss is great, too.

    I am proud that I have not taken a day off no matter how bad the FM is, but I know it is only because the Lord gives me the strength to push through each day.

    Hugzz
    Greenbean

    Stop and smell the puppies!
  8. keke466

    keke466 New Member

    Welcome. I was working fulltime till June. Worked in a nursing home as a CNA. It was killing me and making me sicker all the time. So in a way I feel it was a blessing in disguise that I was terminated,falsely I have to say because I was approved for unemployment. I miss it terribly,but not the stress and pain of it. I miss the girls I worked with and some of the residents. I've been back up there twice to visit and have spoken to them on the phone and will go visit some in the future. I worked night shift so don't have to see anyone but them. It's hard to accept but in the long run it's probably best for us.

    Good luck,Keke
  9. birdkeeper

    birdkeeper New Member

    That's fantastic, what an accomplishment. I do ok at work its just the people there that I can't deal with sometimes. I can be as calm as a peaceful spring day and wouldn't know it someone will cause all kinds of kaos and here comes the fibro monster. When my body starts shaking and I start to loose my train of thought and then goes my memory I'm in for a very bad flare up. This last one lasted for 4 weeks and I am still in recovery.
  10. Mini4Me

    Mini4Me New Member

    I tried to deny my illness for the past 4 years (second grade teacher), and it became so agonizing in the end, I was reduced to a suicidal bed ridden mess!

    I wouldn't recommend working when you are so ill. It really took a toll on me. I feel that if I'd have quit 4 years ago, I'd be in better shape today.

    Best of luck...
    Mini
  11. IntuneJune

    IntuneJune New Member

    Almost.

    I work in a hospital 24 plus hours a week.

    Then I also teach aquatics classes, five per week.

    Some weeks I work over 40 hours....

    Most weeks not.

    But the water classes heal my body after my daytime with benefits job.

    June
  12. ll1816

    ll1816 Member

    I'm currently on short-term disability for a shoulder surgery I had last month, but yes I work full-time at a very stressful job.

    It takes so much energy to get thru each day and each week, that every night and every weekend is spent in bed. I was raised that "family comes first" and it always has, until I go sick.

    Now, my life is work and a paycheck and I have no life outside of work and nothing left for my family. I have no choice but to work and I have to pretend all day like you and it's so exhausting.

    Sorry so gloomy, but having a gloomy day.

    Hugs,
    Liz

  13. SweetT

    SweetT New Member

    a little over a month ago.

    Yes, I work full-time. I have fibro; CFS; arthritis. It's very hard. I'm currently a teamleader, and trying to be a supervisor, to get rid of the caseload and other gruntwork of assembling packets (plus get a much-needed raise), getting up and down all day to fax/grab copies off of the machine/grab things off of the printers, seeing and talking to soooo many clients.

    Everytime I think my work area is ergonomic, I still wind up with neck and shoulder pain (yes, I have a headset/footrest/glare screen cover).

    My concentration and quantity is shot. I can no longer produce as quickly or as much. It's really really hard.

  14. lorreannhopkins

    lorreannhopkins New Member

    I can't work at all and haven't since I was diagnosed 10 years ago. I've often thought that if I had been functioning at a higher level (working outside the home) maybe I could have maintained at that level but I'll never know. I'm a housewife and maintain a schedule that works around my illness-I function better in the afternoon and evenings so I get everything done then. It is nice being able to be home because I can work around my flares and pace myself. It might be harder to get back to working full time if you stop but there are alot of people on disability because of Fibromyalgia and Chronic Fatigue Syndrome. The reason that these illnesses are recognized as a Disability is because they truly are disabling. Good Luck.
  15. Abbycat

    Abbycat New Member

    My boss has FMS so I'm really lucky there and I manage to outpace her most of the time so I'm doubly lucky. I use virtually all of my vacation and sick time for days off or coming into work late, (at least once every two weeks).

    I plan my day according to priority. Things that must be done, I do during my best time of the day, which changes depending on what day it is. Everything else is optional. If I'm dopey, I do the not so difficult things and when I'm down for the count, I admit it and ask for help.

    There are still a lot of things I just have to do no matter what and drugs help a great deal, but I know I will pay later. Some days I'm the dead blob on the couch who points to the kitchen when asked what's for dinner and I'm ok with that.

    I think only you can decide if working is too much. Maybe you could cut your hours or communicate with your boss and coworkers about what you are going through. It sounds like they feel you do your job well and maybe you could work something out, like working less hours, working from home, or delegating things that are too physical.

    Being in unbearable pain is not worth any job. If you can't get some relief from your doctor, then you need to find a new doctor. I haven't found one yet either. I'd like to hear more about what you are going through.

    Abbycat
  16. lptopcat

    lptopcat New Member

    yes, i have no choice, my hubby passed away 5 yrs ago this month,miss him sooo much, so mine is the only income, mortgage, credit card bills, utilities, and I stil lke to eat, lol.

    I have a very stressful job,also, like some of the other posts. And my DRs WILL NOT give me any decent pain meds, say use ibuprofen, etc...no longer works..so back to rumy nxt week to insist on pain meds..he believes that getting sleep and getting rid of stress are the key. He hasnt given me anything yet to get rid of stress,lol,says to cut my hours. No way financially...i'm rambling, sorry.

    as the others said, some days are more bearable than others. I try not to show how much pain i am in. I also use intermittant FMLA when needed. I try not to miss more than 1 day a month, but it's hard.

    will pray for you an all others going thru this dd.

  17. springlakeorphan

    springlakeorphan New Member

    Gteetings! I work a very physical job and have been on intermitant family Medical Leave for a few months.This allows me the fredom to miss 2 days in a row or leave early or come in late if I must. getting harder to work with so many flairs. good luck to you and bless us all.
  18. iggyangel

    iggyangel New Member

    IM in my first semester of RN school, and Im beat by the weekend, but it is hard!
    Blessins
    Iggy
  19. Edna

    Edna New Member

    I worked full time for a long time but finally had to quit because I became so ill.

    It took me approximately 10 years to recover. I started feeling better 2 years ago and especially better this year.

    I think it would have taken me longer to recover had I kept working but I didn't have an option - I just couldn't do it anymore because I was so ill.

    As long as I don't overdo it and don't fatigue myself or stress myself too much I can live a pretty normal life finally.

    I cook, clean, do laundry, do grocery shopping, clean, vacuum etc. I couldn't do any of those things for many years.

    I guess what I'm trying to say is don't give up - you can recover from this stuff. I had CFS, Fibro and Diabetes.
  20. rachel432

    rachel432 New Member

    i work as a nurse and i went to working 4 8hr shifts a week. having that one extra day off a week made a huge diference in how i feel. also the agency i work through considers 32hrs a week full-time when it comes to benefits so i was able to keep my health insurance.
    rachel