Is it just me ?

Discussion in 'Fibromyalgia Main Forum' started by jacqui_k, Aug 17, 2003.

  1. jacqui_k

    jacqui_k New Member

    Is it just me that has this train of thought or does it happen to any of you?

    Some days I feel really lousy and then there are the days when I don't feel too bad, you know , just minor aches etc....and of course the habitual stiffness.On the days when I'm feeling "good" I start to think "hey , maybe they've (they being doctors and specialists), maybe I don't have fm after all!" I mean is this normal to feel like this or am I in denial?

    My brain tells me that they are right , I mean all my symptoms and familly history (aunts , mum? and sis? with fm), but still I have those days when I feel it could be a mistake.......well whatever ....just felt like telling somebody and non-fms would probably not understand .

    Take care all,
    Jacqui
  2. jadibeler

    jadibeler New Member

    I thought in the opposite direction for years - FM couldn't possibly be this bad, I must have something else, something that A)people would understand and B)could be helped. After years of sporatic testing for other things (latest, MS) I was forced to admit that FM really is this bad and it is what I have. Finding this board and that there are sufferers out there who are even worse than I am, has helped me accept it.

    As for the days you feel decent (by comparison), I'm sure lots of people feel that way, too. Hopefully. Unfortunately, those treasured days are part of it and if you're lucky you'll have lots of them. I used to go on approximately a 2-week cycle. Now I'm lucky to get 2 days.

    You are fighting acceptance, which is only normal, but it's not helping you fight the disease. Accepting that you have the disease does not mean giving up, it means finally starting to get a grip on it.

    JoAnn
  3. jacqui_k

    jacqui_k New Member

    JoAnn thank you for your reply, I wanted to mention that I have accepted my diagnosis (most of the time lol)and am very proactive about my condition, I do lots of reading on the net etc.....take my supplememnts, meds and exercise , and at current am trying with the aid of 2 fantastic doctors , to find a pain management regime that suits me.

    Just as I mentioned before sometimes think "maybe?" , guess it's just wishful thinking.

    Take care,
    Jacqui
  4. Annette2

    Annette2 New Member

    I've had those same thoughts! Sometimes when I'm feeling good I'll think "maybe I'm imagining this". Then I feel the pain again and know I really do have FMS. Isn't it awful to have an illness which you occasionally doubt? It's because so many people discount it, I think. By the way, where in Israel do you live?

    Annette2
  5. ranger

    ranger New Member

    I was told I had FM about 5 years ago, but I kept thinking to myself, 'maybe'. I knew they didn't test me very much and perhaps this DX is an answer they think I needed right away. I pushed and pushed for testing and questioned everything and everybody. Then I bought a book about FM and from what I read, I thought I could be their poster child. It fit me to a T. I still wonder if someday they won't 'find something' that is more believable and can cure me or give me the death sentence I feel is coming. I hope not, but FM is so confusing and none of us want it to be the only reason for our suffering. I wish they'd have explanatory shows about it, more often. Has Discovery Channel or 20/20 done anything on FMS lately. How about a hit show of a person with this DD? Maybe then the world who doesn't 'get it', might understand. It's hard to accept that this is it.
  6. GYPSYQUEEN

    GYPSYQUEEN New Member

    I understand how you feel. When I was diagnosed (18months) I had a couple of good days and was convinced that the Doctors were wrong, then bamg I had 2 weeks of pure pain.
    I'm wiser now I know when I have bad days they will go away and when I have good days I enjoy them as much as I can. And before long the bad days come back with a vengence.

    I try to comfort myself that it could be worse but when I have a Flare it's hard to be optimistic.

    Enjoy the good days, I hope this helps. I've been able to get so much good advice from fellow FMS sufferers.
  7. Iggy_RN

    Iggy_RN New Member

    and it goes thru cycles... When Im sick I feel that sometimes this is too bad to be FM, I always try to tell myself that FM is not that bad. And then when Im ok or a little better, I always think that it was really nothing and im over it... My denial mechanism is very strong, and that is how I deal w/it sometimes. I have come a long way recently, and I do know now that FM is that bad.... FUN FUN FUN>>>>>>>> blessings, Iggy
  8. BILLCAMO

    BILLCAMO New Member

    "DENIAL" OR IT COULD BE NAMED "HOPE" . JUST BECAUSE MOST OF THE TIME A PERSON ACCEPTS THE DX , DOES'NT MEAN THEY HAVE TO GIVE UP HOPE THAT THE DX IS WRONG OR THAT YOU MUST GIVE UP HOPE A CURE WILL BE FOUND........ JUST MY "BRAIN FOG" THOUGHTS....... HOPE IT HELPS SOMEONE..... BILLCAMO.
    P.S./EDIT..... GUESS THIS IS JUST MY WAY OF SAYING..... NO... YOU ARE NOT ALONE.....[This Message was Edited on 08/17/2003]
  9. jacqui_k

    jacqui_k New Member

    Just wanted to thank you all , nice to feel "normal", lol.


    Annette2 I live in a settlement called Karnei Shomron, which is situated in Sameria, I think better known to you as the west bank.

    Take care,
    Jacqui
  10. jadibeler

    jadibeler New Member

    Now we are all going to worry about you terribly!! Please be safe!

    JoAnn