Is Knowledge Power?

Discussion in 'Fibromyalgia Main Forum' started by soozbee, Aug 26, 2003.

  1. soozbee

    soozbee New Member

    With the internet, message boards and the wealth of information we now have at our fingertips also comes the 'may I please be excused - my brain is full' syndrome!

    I have ADD, fibromyalgia and an early menopause (at 40). I was already in a fog to begin with and now I am inundated with so much information, I can't get my head around it all. I am also in pain a lot of the time so that makes it even harder.

    I have medicine cupboards full of vitamins, minerals and naturopathic remedies as well as antidepressants, Hormone Replacement therapies, painkillers, antacids - you name it - but somehow I can't get my head around the right thing to take and so I try things here and there, but it's often overwhelming.

    I come to places like this where there are so many recommendations and they are great, yet if one were to take everything suggested here, they would not have time to do anything else in their day except take pills or supplements. And also, you have to have a pretty good routine going for this kinda stuff (routine for ADD??? - impossible - or at least for me - unless I want to take Ritalin or other ADD meds - which I don't particularly).

    So... I'm just a little stuck at the moment, as you can see. If there is anyone out there in the same boat as me, who can help simplify some of this for me - that would great, thx!
  2. tansy

    tansy New Member

    feel is causing you the most problems and start from there. Yes all the info can be overwhelming, our fogged brains find it hard so you need to simplify everything as much as possible.

    The general concensus seems to be that the right diet, digestive enzymes, and magnesium are really good starting points.

    Wouldn't it be great if the answer was the same for all of us and the cure took no time at all.

    Things do start to fall in place eventually and if measures are working you may find your brain becomes just a little more cooperative. That's been happening to me recently, long way to go but everyone has noticed, which makes me fel even more positive that I'm doing something right.

    Good luck

    Cheer

    Tansy
  3. soozbee

    soozbee New Member

    The problems is that I have several doctors, a chiropractor, a naturopath, an environmental specialist and a psychiatrist. The doctors think I should take things like Celebrex and other NSAIDS and also antidepressants (certain ones are supposed to work for fibromyalgia pain - apparently), HRT - which when I took I got a huge breast lump and quit immediately. The psychiatrist - antidepressants, and the naturopath and environmental specialist have put me on supplements for disfunctioning organs, etc. and the Chiropractor relieves some of the muscle pain although my back isn't usually out of whack.

    Since I don't want to take anything for my ADD to help the focus - I'm a basket case when it comes to deciding what to do and although I know the help is here somewhere - it just gets too confusing and I don't know how to mix and match. I want to go natural, yet sometimes nothing kills the pain except good old tylenol with codeine. It's like a full time job!!! Not to mention that I really hate to complain about my ailments to anyone, so it's all that much harder going it alone.

    But now I'm missing work and becoming more and more despondent, so I have to come up with some kind of plan and follow it - but like I said - I'm overwhelmed and it's not for lack of knowledge - it seems from too much of it and coming from all directions!
  4. paulalbert

    paulalbert New Member

    Soozbee,

    Chin up, Soozbee. You're right to be frustrated with all the mixed messages you're getting. Though a lot of different treatments seem to work for different people (as evidenced by the enthusiastic posts on these boards), it can be a bit frustrating for people who feel overwhelmed. 95% of what's out there will not work for you. Do what everyone suggests and you can actually do more harm than good.

    You know, fibromyalgia is one of those unique conditions where everyone claims some expertise. Your job is not to decide whether you should be taking antacids or not-- your job is to find someone who will make that decision for you. Who is the most competent, most experienced naturopath in your area? Are you one of her patients? You darn well should be.

    Your post seemed to suggest that you weren't happy with your practitioners. Well, maybe it might be a good time to look for some new ones. Opinions on this matter vary, but I think it would be a good idea to have a naturopath, a medical doctor (specialist in fibromyalgia or, at least, immune disorders), and a psychiatrist.

    Develop a longish list of candidates: from posts on this board, from asking other patients, from asking doctors who they would recommend. Make a list of questions:

    --What experience do you have treating this condition?
    --What are some typical treatments?
    --What are the outcomes?
    --How do you measure success?
    --How many patients have you treated with fibromyalgia?
    --For how long have you been treating patients with fibromyalgia?
    --Are you familiar with the last research and/or theories regarding fibromyalgia?

    Choose the way you would your daughter's husband. You got to be picky. Maybe nobody is sufficiently competent and/or experienced in which case you may have to travel.

    I don't know if this is helpful. If I were in your shoes, this is how I "would make things simple."

    peace,
    Paul
  5. IgotYou

    IgotYou New Member

    I've resolved to try one natural remedy at a time and if I notice it helps, then I'll keep it and add another. Too much at once would overwhelm me!

    As for the "knowledge is power" thing - my husband would strongly disagree. He is convinced I've gotten worse as I have learned more, that because the mind is a powerful thing I'm thinking myself sicker. Everything I want to try out in hopes it will help me feel better upsets him more, which upsets me more. So I guess I'd say, easy does it. Why upset yourself looking for a whole bunch of cures all at once? I think the frustration and stress makes you worse and undoes all the good of the cure.

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