Is this a flare? What can I do? I can't handle the pain anymore.

Discussion in 'Fibromyalgia Main Forum' started by dani78xo, Nov 6, 2006.

  1. dani78xo

    dani78xo New Member

    So I've been doing good in school (as good as I can right now, considering.) But I've been steadily getting worse.

    I've never had horrible FM pain, which I've always been a little bit relieved about. I used to get knee pain, but it went away once I started walking more.

    Now, however, I'm in complete agony. It just started hitting me this past month or so; I'm thinking it might be the cold weather setting in, because I barely had any symptoms during the summer, and even in september when school started I was fine.

    I'm finding it difficult to get through a day, by the time I get halfway through school I'm in so much pain that I want to just stay sitting and not move until school gets out but of course I have to.

    It's all in my arms and legs, and it always either feels like they're on fire or it feels like I was run over by a concrete smoother.

    I've tried regular advil, tylenol, and celebrex, but nothing works. And besides that, I feel like sleeping all of the time. I'm getting headaches again (though never nearly AS bad as the migraines, but getting there) and even on the weekends when I don't do anything, I feel like I'm horribly sick.

    I'm dizzy and nauseated all the time; I have no appetite anymore--I think those things could be from the headache though.

    I've never been through a winter with either of these illnesses; so I don't know what to expect, but I have a feeling that the cold is what's causing this.

    I'm having a hard time even keeping up with homework--I do NOTHING from the time I come home until the time I take my sleep meds at 8:30. I work on homework, take little breaks in between. And for some reason that is BEYOND me I find myself staying up until 10:00 to finish homework.

    I have an appt. with my rheumatologist next week, but I don't really know what to tell him. All I know is that I can't keep going like I am, and that I've never had any pain like this before; it's unbearable.

    I'm still adjusting to this. I don't know what a flare feels like; I don't even KNOW my illness. I don't know what to expect at all.

    I'm guessing this is a flare, though. So, what do you do when you're entering a flare? Or during the winter, when it's 30 degrees out on a warm night? Is there anything I can do or take to stave off the full symptoms of the flare? Walking only makes it a lot worse.

    Any advice would be really helpful.
    -Danielle
  2. bmadan

    bmadan New Member

    Danielle,

    Your not alone. I too am trying to figure out what FM is all about. Every time my pain gets worse I just assume it's a flare because I have no idea if it is really. There isn't a manual, though there should be that helps us figure out what we are going thru.

    My rheumatologist has me on Tramadhl, I take that 4 times a day for pain. To be honest, I think it helps, but I am not sure. The pain seems to be more bearable when I take the meds.

    I think the cold weather does aggrevate my condition. We have only had a few chilly days here in Texas but those days my aches and pains were worse. I did find that taking a warm/hot bath seems to help me feel better. Just don't take it too hot because that may cause you to hurt more.

    I also have my mom or sister use one of those hand held massagers on my back and arms/legs when the pain is really bad. This helps most of the time.

    I hope you feel better. If I think of anything else that may help, I will let you know.
  3. hugs4evry1

    hugs4evry1 New Member

    I'm sorry, but it does sound like a flare. I didn't have the pain either for years after my dx but about a year or so ago it started with a vengence.

    I started taking a balanced magnesium/calcium/zinc supplement (that I learned about here) twice a day and it did wonderful things for my muscle pain. (mine is a 400mg/1000mg/15mg combination store brand)

    Since we're all deficient in this mineral you can ask your doc about it. For me it was a wonder supplement that helped to relax my muscles so I no longer have that kind of pain.

    I too take Tramadol for pain when it gets bad enough. (I rarely take it anymore since the magnesium helped my muscle pain although I do still have joint pain)

    The best thing I've done for this horrible over 2 year flare was to eliminate crappy/processed foods and other things that were bad for me from my life. I then began eating better than I ever have with tons of fruits and veggies in my diet. (Stuff that was meant to be food)

    I also take a list of supplements and all of them help me greatly. I have a theory that much of this is caused by virtually poisoning our bodies with the crappy/processed foods that are so common in America. Then when we eliminate them from our diets, add real foods and begin supplementation to give back what our bodies need....then we begin to feel better.....even if only a little bit as in my case.

    Hugs,

    Nancy B
  4. doglover5

    doglover5 New Member

    Sorry Danielle,
    In addition to all your previous replys I would just add to also remove caffine and sugar from your diet as well. Warm baths have helped me a lot but my saving grace has been music therepy. My husband bought me an IPOD and I filled it with all my favorite music. When I have a FLARE I take a warm bath, put on my favorite PJ's prop up in bed and plug myself into my IPOD. After about 20 min. my pain level drops from about a 20 to about an 8. You might also try to find a really good acupunturist in your area or if all else fails find a good pain management specialist. Mine gives me Botox injections every 6months for my migraines(I get about 40 injections all around my forhead,jaws,neck,head and shoulders. That along with the Topamax I take daily has reduced my Migraines from 2 to 3 a week to maybe 3 a month. That's a big deal to me. Hope this will help some. Definately try the music therepy.
    Vicki
  5. hugs4evry1

    hugs4evry1 New Member

    It was very good of you to add that caffeine and sugar are also bad for you.

    However, I just can't seem to stop either of them although I can't say I've tried too hard.

    I have a candy thing at night, but have stopped the chips by eating some almonds instead.

    Hats off to those of you who have managed to do what seems impossible to me!!!!!!!! But oh....have you ever had a European cappacino??? They're just wonderful and almost always come with a special cookie too. Yuuuuuuuummmmmmm!

    Hugs,

    Nancy B
  6. shell

    shell New Member

    You probably have already discovered this, but for pain it is the only thing that relieves for a period of time. I take HOT baths and hot showers... heating pads also feel wonderful. When I get into the car I put my hands and arms in front of a full blowing heater. It seems to alleviate for an hour or two which helps so much throughout the day. I generally take 2-3 showers/baths during a flare, especially in the wintertime!! I seem to flare big time every winter because I start catching everything in september.

    Not much, simple but it works!!
  7. dani78xo

    dani78xo New Member

    Thank you for all the replies.

    I actually do take hot baths every now and then, but I skip them when I'm exhausted, because they tend to increase the fatigue. When I'm not too tired, though, they really do help.

    PRICKLES, what is a TENS machine? I've never heard of it before.

    BROOKSIEMOM and DOGLOVER5,
    as much as i'd like to think that I could, I don't think I'd be able to eliminate sugar and caffeine from my diet. Sometimes drinking caffeine or something sugary is the only thing that keeps me going.

    I've always been skeptical of the BOTOX for migraines thing--I just couldn't imagine getting that done at only sixteen. It kind of terrifies me, actually. I've heard about the long term effects, and I'm just too young to cause more trouble for myself.


    PEACEBABY,
    It kind of differs. At the beginning of the school year (september) I was able to go to school, and then I could go out for a walk with the dogs afterwards (one time I even walked three miles on the dog trail.) Since the cold's kicking in, though, I find that it's all I can do to simply stay in school--I can't go walking on school days now. It hurts too much, and I'm pretty much dead by the time I come back.

    It's aggrivating because I WAS really active during the summer. It helped my pain a lot. But being active only makes my pain worse now. The walking kills my legs.



    Thank you for all the advice, and I'll definitely mention a few of those pain relievers to the rheumatologist when I go.

    -Danielle
  8. dani78xo

    dani78xo New Member

    does the TENS machine help you when you're hurting all over, too? as opposed to just having a few spots that hurt.

    I used this machine in physical therapy for a torn tendon in my arm. It did help somewhat, but only in the immediate area...and the pads were really small.

    -Danielle
  9. carebelle

    carebelle New Member

    Are you takeing any other kind of medication for any other illiness?

    What have you tried ? Maybe some warm baths and a heating pad would help.I know warm tea sometimes helps my feeling cold from the weather to warm my insides.

    Can you tell us more about your pain where it is ? What does it feel like?

    Have you talk to your Doctor yet?
  10. cbs1234

    cbs1234 New Member

    Did you take any antibiotics prior to the pain starting in earnest?