is this FMS or CFS? please reply to me :(

Discussion in 'Fibromyalgia Main Forum' started by claireandgiles, Jun 21, 2006.

  1. claireandgiles

    claireandgiles New Member

    2 months ago i started off feeling off balance so i put it down to an ear problem but then my legs started to feel weak and ache alot! sometimes i get really fatigued but not everyday! my arms ache i have had a neck ache for 3 days and its really annoying! seems i wake up with a new ache everyday! i am not in pain but have dull aching everywhere most days. I sleep ok, but when i wake i feel drugged and it can take a while for me to come round properly, the balance prob is pretty consistant and is there 80% of the time :(
    I have had a brain scan and all is fine and blood work done which is normal, although i dont even know what they look for there! i am no anemic or anything either!
    any ideas please
  2. alaska3355

    alaska3355 New Member

    who has been having dizziness the last month or two...she's been tested for everything and they can't find the reason. I have another friend who was dizzy and tired and they found out she had MS. So I would keep searching for an answer...I hope it's just something temporary and that you get better.
  3. KMD90603

    KMD90603 New Member

    It sounds like it could be a mixture of both, however, it's important for your doctor to rule out any other possible cause of all your symptoms. A good place to start is by seeing a rheumatologist. The rheumy can rule out any autoimmune diseases such as rheumatoid arthritis or lupus, which could cause similar symptoms. Also, a neurologist can rule out multiple sclerosis and other possibilities, just to name a few.

    In the event that all tests come back normal, that's when they will diagnose fibro or CFIDS. For fibro, they can do a tenderpoint exam in which they say you must have 11 out of 18 tenderpoints to be diagnosed. However, it's not uncommon to have less than 11 and still be diagnosed based on your symptoms. For CFIDS, there's really no definitive tests either, but there are also a host of symptoms that you must have had for more than 6 months.

    I hope this helps you, and welcome aboard.

    Gentle hugs,
  4. 1sweetie

    1sweetie New Member

    I had problems for YEARS and I had no idea what was wrong.

    My blood pressure was plunging when I stood. It checks OK when you are sitting but when you stand it drops.

    When it drops you become dizzy. I would walk into walls and did not walk straight and stumble. Everyone laughed about it for a long time although I never thought it was funny.

    It is a symptom of CFS but it can happen to you without having CFS also.
  5. CockatooMom

    CockatooMom New Member

    It's called orthostatic hypotension, when you stand and feel light-headed or dizzy.

    It can be caused by MANY things.

    Just my 2 cents worth.
  6. Jeanne-in-Canada

    Jeanne-in-Canada New Member

    Vertigo and orthostatic hypotension are common symptoms on the CFS list.

    But if you look at a long list of ME symptoms, it encompasses all the FM AND CFS symptoms. It's only the States that divided it into 2 different syndomes. I'm sure its a divide and conquer tactic too, and its working.

  7. hopeful4

    hopeful4 New Member

    Have you considered Lyme Disease? Many of us with CFIDS/FM are now finding out that we actually have Lyme. Many of the symptoms are overlapping.

    Myth 1: You have to be bit by a tick.
    Myth 2: You have to have a bullseye rash.

    Neither of those are true. Other vectors may carry Lyme, such as mosquitos and fleas. Less than half of people w/Lyme recall either a bite or a rash. I am one of them.

    Diagnosis is difficult. It is a clinical diagnosis based on history, symptoms and labs. Labs are often unreliable. The best bet is the Igenex Lab Western Blot, it's the most reliable. But a knowledgeable doctor about lyme (LLMD--lyme literate medical dr.) should be seen.

    Hope you find out what's ailing you very soon...
  8. hopeful4

    hopeful4 New Member

    Lyme Info and Symptoms reposted

    Below is an article from the Canadian Lyme Disease Foundation:

    Lyme (commonly misspelled as Lime or Lymes) Disease symptoms may show up fast, with a bang, or very slowly and innocuously. There may be initial flu-like symptoms with fever, headache, nausea, jaw pain, light sensitivity, red eyes, muscle ache and stiff neck. Many write this off as a flu and because the nymph stage of the tick is so tiny many do not recall a tick bite.

    The classic rash may only occur or have been seen in as few as 30% of cases (many rashes in body hair and indiscrete areas go undetected). Treatment in this early stage is critical.

    If left untreated or treated insufficiently symptoms may creep into ones life over weeks, months or even years. They wax and wane and may even go into remission only to come out at a later date...even years later.

    With symptoms present, a negative lab result means very little as they are very unreliable. The diagnosis, with today's limitations in the lab, must be clinical.

    Many Lyme patients were firstly diagnosed with other illnesses such as Juvenile Arthritis, Rheumatoid Arthritis, Reactive Arthritis, Infectious Arthritis, Osteoarthritis, Fibromyalgia, Raynaud's Syndrome, Chronic Fatigue Syndrome, Interstitial Cystis, Gastroesophageal Reflux Disease, Fifth Disease, Multiple Sclerosis, scleroderma, lupus, early ALS, early Alzheimers Disease, crohn's disease, ménières syndrome, reynaud's syndrome, sjogren's syndrome, irritable bowel syndrome, colitis, prostatitis, psychiatric disorders (bipolar, depression, etc.), encephalitis, sleep disorders, thyroid disease and various other illnesses. see -- Other Presentations and Misdiagnoses

    If you have received one of these diagnoses please scroll down and see if you recognize a broader range of symptoms.

    If you are a doctor please re-examine these diagnoses, incorporating Lyme in the differential diagnoses.

    The one common thread with Lyme Disease is the number of systems affected (brain, central nervous system, autonomic nervous system, cardiovascular, digestive, respiratory, musco-skeletal, etc.) and sometimes the hourly/daily/weekly/monthly changing of symptoms.

    No one will have all symptoms but if many are present serious consideration must be given by any physician to Lyme as the possible culprit. Lyme is endemic in Canada period. The infection rate with Lyme in the tick population is exploding in North America and as the earth's temperature warms this trend is expected to continue.

    Symptoms may come and go in varying degrees with fluctuation from one symptom to another. There may be a period of what feels like remission only to be followed by another onset of symptoms.

    PRINT AND CIRCLE ALL YES ANSWERS ( 20 yes represents a serious potential and Lyme should be included in diagnostic workup)

    Symptoms of Lyme Disease

    The Tick Bite (fewer than 50% recall a tick bite or get/see the rash)
    Rash at site of bite
    Rashes on other parts of your body
    Rash basically circular and spreading out (or generalized)
    Raised rash, disappearing and recurring

    Head, Face, Neck

    Unexplained hair loss
    Headache, mild or severe, Seizures
    Pressure in Head, White Matter Lesions in Head (MRI)
    Twitching of facial or other muscles
    Facial paralysis (Bell's Palsy)
    Tingling of nose, (tip of) tongue, cheek or facial flushing
    Stiff or painful neck
    Jaw pain or stiffness
    Dental problems (unexplained)
    Sore throat, clearing throat a lot, phlegm ( flem ), hoarseness, runny nose


    Double or blurry vision
    Increased floating spots
    Pain in eyes, or swelling around eyes
    Oversensitivity to light
    Flashing lights/Peripheral waves/phantom images in corner of eyes


    Decreased hearing in one or both ears, plugged ears
    Buzzing in ears
    Pain in ears, oversensitivity to sounds
    Ringing in one or both ears

    Digestive and Excretory Systems

    Irritable bladder (trouble starting, stopping) or Interstitial cystitis
    Upset stomach (nausea or pain) or GERD (gastroesophageal reflux disease)

    Musculoskeletal System

    Bone pain, joint pain or swelling, carpal tunnel syndrome
    Stiffness of joints, back, neck, tennis elbow
    Muscle pain or cramps, (Fibromyalgia)

    Respiratory and Circulatory Systems

    Shortness of breath, can't get full/satisfying breath, cough
    Chest pain or rib soreness
    Night sweats or unexplained chills
    Heart palpitations or extra beats
    Endocarditis, Heart blockage

    Neurologic System

    Tremors or unexplained shaking
    Burning or stabbing sensations in the body
    Fatigue, Chronic Fatigue Syndrome, Weakness, peripheral neuropathy or partial paralysis
    Pressure in the head
    Numbness in body, tingling, pinpricks
    Poor balance, dizziness, difficulty walking
    Increased motion sickness
    Lightheadedness, wooziness

    Psychological well-being

    Mood swings, irritability, bi-polar disorder
    Unusual depression
    Disorientation (getting or feeling lost)
    Feeling as if you are losing your mind
    Over-emotional reactions, crying easily
    Too much sleep, or insomnia
    Difficulty falling or staying asleep
    Narcolepsy, sleep apnea
    Panic attacks, anxiety

    Mental Capability

    Memory loss (short or long term)
    Confusion, difficulty in thinking
    Difficulty with concentration or reading
    Going to the wrong place
    Speech difficulty (slurred or slow)
    Stammering speech
    Forgetting how to perform simple tasks

    Reproduction and Sexuality

    Loss of sex drive
    Sexual dysfunction
    Unexplained menstral pain, irregularity
    Unexplained breast pain, discharge
    Testicular or pelvic pain

    General Well-being

    Unexplained weight gain, loss
    Extreme fatigue
    Swollen glands/lymph nodes
    Unexplained fevers (high or low grade)
    Continual infections (sinus, kidney, eye, etc.)
    Symptoms seem to change, come and go
    Pain migrates (moves) to different body parts
    Early on, experienced a "flu-like" illness, after which you
    have not since felt well.
    Low body temperature

    Allergies/Chemical sensitivities

    Increased affect from alcohol and possible worse hangover

  9. Tantallon

    Tantallon New Member

    Regarding the balance side of things, I am the same so my doctor is sending me for a tilt table test, if you do a search on here or google it you can get a lot of info about it. It measures orthostatic intolerance, which makes you feel ill, dizzy or weak when you stand.

    I would ask your doc for this test to see if orthostatic intolernce is one of your problems.

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