Is your FM / MFP progressing, getting worse?

Discussion in 'Fibromyalgia Main Forum' started by Echo2, Aug 11, 2003.

  1. Echo2

    Echo2 New Member

    I just got over the worst flare ever, lasted 3 months. But now my daily pain levels are much higher. I am much weaker, and have a lot more "after effect" pain whenever I do much of anything. What about all of you out there? Have you found FM/MFP to progress for you? I know a lady here who has FM and she says it has been progressive for her, getting worse through the years. At the same time the Ultrams do not seem to be as effective..I've been taking them for 3 years now and they had worked great. What gives? Any input would be very much appreciated.
    Thanks,
    Echo
  2. jadibeler

    jadibeler New Member

    I'm 58 now and I've had FM all my life. At every point I thought I couldn't feel any worse (and was originally told it would not get worse. For that reason, I was convinced, even up until last year, that I must have something else instead. It wasn't until I was cleared for MS last year and then found this board recently that I found out that it IS this bad and that it IS progressive.

    I can no longer do many of the things I used to do and keep developing new symptoms that until I came here I didn't even realize were part of FM. I'm not as bad off as many here and reading their stories scares me to death.

    It has become very obvious to me that severe mental and physical stress bumps you up to another level that you can never get back from. I was doing really well up until last Sept, when I brought my invalid mother to live with me. She passed away in late January and I still have not been able to get back to where I was. I don't think I ever will, although I'm doing all this new stuff I've learned here. Too soon to tell on that.

    JoAnn
  3. Iggy_RN

    Iggy_RN New Member

    My flares are much longer than before, and more painful, requiring ER visits more frequently than before. I use to shake off the fatigue and flulike symptoms alot easier also. I know for me it is progressively worse, I have had flares where I could not even walk properly. Blessings, Iggy.
    But I wont let it kick my butt, I still choose to exercise and be positive as much as possible, attitude can really make a difference w/me!!!
  4. Suzan

    Suzan New Member

    But had symptoms before the actual diagnosis...I agree that this progresses..I seem to have more and longer bouts with pain..and fatique...and flu like symptoms...I agree that attitude helps...and was just told by my SIL that she really admires the way I go about my days not letting this stop me from being a happy person. It definately changed my life...but, it also has opened some new doors. I appreciate a good day MUCH more now!
  5. Iggy_RN

    Iggy_RN New Member

    Is when someone w/FM is battling stealth infections (mycoplasmas) I found bringing them out w/ABX is making me feel so much sicker. I am 38 yrs old, and I was not depressed, and have ruled out everything else possible. This FM pain does get worse, I am actually taking better care of myself than I did years ago, so if FM could be controlled this way just by "taking care of oneself," I would be in remission!!! Blessings, Iggy
    I had so much going for me years ago, OMG, I use to model, I use to jog up to 3 miles a day, I use to cross-train, 3xs a week, I use to go to school full time and work full time and have plenty of time for other activities. THis DD has robbed me of all my life, and then some. WHat hurts most is that my daughter is missing out on who I use to be I was a different person, who could do so much more, not true anymore, for right now at least. Blessings, Iggy
    [This Message was Edited on 08/11/2003]
  6. Dara

    Dara New Member

    gotten worse. Your first two posters said it didn't for them, but as we all know everybody reacts differently. I am very active in my treatment for FM and I do everything the specialists suggest. Yet, I have been in one continual Flare for over a year now. I do not just lay around doing nothing about it, I try and excercise as much as possible, but usually throw myself into a state of muscle spasms that lasts for weeks. Yes, it does get worse.

    Dara
  7. Echo2

    Echo2 New Member

    so I am still looking for more opinions. Almost everyone I have spoken to with this DD says it does indeed get worse. We can't ALL be wrong!
    Sending sunshine your way,
    Echo
  8. arod59_2

    arod59_2 New Member

    iv'e been using ultram for about 6 years an i noticed the same thing my pain is getting worse to. the doc put me on percdan to take when the ultrams not working for me.i was wondering the same thing as you because they say it's not progressive but i think it is, i've had fm/mps/tos for 10 years & iv'e gotten worse.hope you can find something that works for your pain. dora
    [This Message was Edited on 08/12/2003]