It wasn't sinusitis, It's migraine

Discussion in 'Fibromyalgia Main Forum' started by BabiCati, Nov 12, 2006.

  1. BabiCati

    BabiCati New Member

    Hi,

    I have been suffering with sinusitis for TWO years. TWO years of suffering, missed work, and antibiotics. Having FMS only made it worse. There were times when I felt like giving up.

    Well, last week I went to see an ear, nose and throat doctor and had a CT scan. She is supposed to be the best in this area. my sinuses were clear in the scan and there was no scarring. she doubts I EVER had a sinus infection. Instead she said the congestion, pressure and even runny nose, the dizziness and vertigo they said were my ears that were affected by the sinuses. NOT! My ears are clear too. She told me they were migraines (I have had migraines since I was a child but I was not getting the classic pain with these.)

    I looked it up and it's true! I can't believe I wasted so much time and money and suffered so much.

    She also told me as did the neurologist that women with migraines are at increased risk for stroke and put me on a children's aspiring for the rest of my life. Now I need to have an MRI done to rule out other things and then get on a preventive. Don't know what it'll be yet. Just thought I'd share in case others were suffering too.

    Lourdes
  2. butterfly83

    butterfly83 New Member

    She said all those symptoms were from migraines? That's confusing. Did she say what type of migraines, and what you could do to help them stop?
  3. BabiCati

    BabiCati New Member

    She said the nerve that causes migraines can lead to inflammation of the sinuses, ie, congestion, pressure, runny nose. It is up to the Neurologist to diagnose them more specifically. I will see her after the MRI.

    She told me there was an ENT conference a couple of months ago and one of the things on their agenda was how to work with neurologists to ensure people are better diagnosed. she told me she sees hundreds of people diagnosed as having sinusitis and it is not. this would explain why nothing made me feel better and why nothing would relieve the congestion. last week, i woke up with a sinus headache and took migraine medicine for it, and and hour later the "sinus headache" was gone.

    she told me a true sinus headache is so dull some people don't even know they have a sinus infection. also, most general practitioners are not trained to properly diagnose sinusitis and ear problems. one of the problems my general doctor told me I had was fluid in my ear, and that was causing the dissiness and vertigo. the ENT looked in my ear and told me it was scar tissue not fluid. i had ear surgery when i was very young. the dizziness and vertigo is from the migraines.
  4. b~kay~b

    b~kay~b New Member

    you know i was 29 when a doc told me that i had allergies and asthma thats why i was sick. Its just your allergies. okay well i never had allergies nor asthma so i said i dont have that. we did the yes you do, no i dont thing and we stopped cause he walked out and just said you need a breathing treatment. never had allergies and they can just start up. wow. okay the next year i was diagnosed with cfs. okay, now i have had migraines since early teens. so these, now that i can look back are all symptoms of fm non allergy rhinitis dizziness(vertigo)ive had that since late teen yeaers trouble breathing, trying to catch your breath. even my mri showed how clear my ears,sinus area was. one doc was looking for ms so he did that right off the bat. so learning about the symptoms and seeing that rhinitis up there i was like ha i was right and he was wrong, and i didnt go to med school. but at the same time doesnt make me feel too good knowing there are noneducated docs, you know?!
  5. BabiCati

    BabiCati New Member

    One doc told me that i did not have fms, that my problem was a drank too much fruit juice and ate too much bread, potatoes, and pasta. well, i hate bread and fruit juice and rarely eat potatoes and pasta.

    I can't believe my doctor just kept giving me antibiotics and did not think to send me to the specialist sooner. the antibiotics have made my ibs worse and weakened my immune system and i didn't even need them. then they wonder why people suit doctors.

    always get more than one opinion and do research to find the best doctor. that's the lesson i've learned.
  6. kjfms

    kjfms Member

    So sorry this happened to you and unfortunately it happens too often. Many physicians and patients mistake migraines for sinus headaches.

    Migraine is one the most misunderstood diseases today. I have had migraine since I was 14-years-old.

    Hope you feel better soon,

    Karen :)
  7. tandy

    tandy New Member


    I did the same thing yrs ago,..
    I mistook sinus troubles for Migraines.
    They do feel alot alike and when you read up on the different types of headaches,...sinus and migraines are very similar.
    For over 2 yrs I thought ALL my headaches were sinus's.
    They wer'nt.
    I never get the aura they speak of with a migraine.
    just everything else!
    need dark,no food,leave me alone!

    lol
  8. BabiCati

    BabiCati New Member

    It is a relief. At least I don't need sinus surgery! I am trying to figure out what to stop eating now to minimize the pain. giving up chocolate and cheese will be next to impossible!

    Thanks again for your good wishes,

    Lourdes
  9. victoria

    victoria New Member

    as you can learn to abort headaches if you feel them coming on, if they're truly migraines or even tension...

    I have had increasingly bad, now usually daily sinus headaches... CT scans are clear, nothing odd on MRI...

    Altho I did try imitrex once, it only made my headache worse :(

    Did you feel the pressure from fluid draining from side to side, depending on which side you slept on? That's the one reason I keep thinking it has to be fluid in my sinsuses, I know there's no infection tho... also makes my upper teeth sensitive on whichever side it's worse on.

    Just wondering, would love to know if you do.

    all the best,
    Victoria

  10. BabiCati

    BabiCati New Member

    I do feel the fluid drain from one side to the other, but i had the scan done that same day and the sinuses were clear. I do have allergies which can make the migraines worse. But I have noticed that with the Allegra-D and the migraine medicines I feel relief.

    i am going for biofeedback because of anxiety, maybe this will help the migraines as well.

    Lourdes
  11. BabiCati

    BabiCati New Member

    I forgot to add that I do have pain in my upper teeth but I grind my teeth at night despite a splint so that could also be part of the problem.

    Fioricet works for my migraines pretty well and it doesn't make my heart race like Relpax or Maxalt.
  12. victoria

    victoria New Member

    I'm sure biofeedback could have a lot of beneficial effects... if you tell them you have migraines, they might be able to help you with that... temperature training in particular is good for migraines (learning to make the hands warm - ever notice that when you have a migraine, hands get cold and your forehead warmer?)

    Thanks for the other info... I've tried allergy meds and allergy desensitization to no avail :( Nasal sprays rx'd for me always worked for about a month then quit, each and every one... seems like whatever I have manages to figure things out lol!

    I was just talking to someone today in my local support group who had good luck taking guaifenesin (not the guai protocol overall tho) after it was dx'd as fungal... made it all go away somehow. Not sure of all the particulars (if there are any more), I'm going to email her to see if there was anything else in particular she did.

    all the best,
    Victoria

  13. lavender14

    lavender14 New Member

    Hi! Newbie here on the board. about sinus infections, I have read all the posts, my question is has anyone been told they have a sinus inf. with all the symptoms listed, but also with discolored drainage? because all my ct come back normal, but I do get this about every 2-3 mo. Tired of taking antibiotics!!!!!!!!!!!
    tks
    Jennie
  14. victoria

    victoria New Member

    It maybe possible that your sinuses are not draining and eventually get infected... then once the abx take care of the infection and your sinuses are 'clear', they start the same cycle all over again?

    Mine are always clear on CT scans too. I've only had to take abx once, when my tooth throbbed from sinus or tooth infection (it was impossible to know which was doing it) and that time the xray showed the infection; and the abx cleared it up.

    Your story reminds me of when my son was a baby... he'd get fluid in inner ears, never sleep but would never have an infection (pediatrician always cultured before rx'ing) until about 4-6 weeks later, then finally show an infection on culture... take the abx and get better for a day or 2, then it would start all over again. Tubes finally fixed it.

    Wish there was a way to put tubes in sinuses as easily lol!

    all the best,
    Victoria

  15. BabiCati

    BabiCati New Member

    The ENT saw my CT scans and they came up clear and there was no scarring. If I had chronic sinus infections, it would show up on the CT scan. This is true for everyone. The day I had the scan my pcp had told me I had a sinus infection and I was completely congested but the scan came back clear. That's why she told me it was the migraines... I looked it up and everything she told me was true.

    I wish everything was this easy.
  16. victoria

    victoria New Member

    the important word here is 'infection'... I think? Lots of questions come to mind...

    Cuz/but what about if you have fluid in your sinuses causing pressure, but no infection is present. I think that is possible but hard to find an answer... hence my parallelling it to what my son experienced with his ears.

    Seems to me it would show up clear if non-infected fluid was present but not draining for whatever reason?

    The only time there was density, ie an infection, on an xray - as I went to dentist because that time my tooth was throbbing...

    the basically steady pressure on (the same) tooth never shows an infection on an xray... and I've had a few taken at dentist cuz it is hurting really badly at the time.

    Per my friend who found she had a fungal infection because of the MRI (again only cuz heavy metals will show up concentrated in the fungus), she said her ct scans had been clear as well...

    and while she'd had some reason for having surgery to try to remedy her situation, 2 operations plus abx had not helped at all. Using the guai did, and the ENT finally said, well I guess you did have a fungal infection.

    I have just started using the guai, and slowly upping it... will let you know what happens... so far, so good. I am keeping my fingers crossed......... and my eyes! lolol!

    all the best,
    Victoria
    [This Message was Edited on 11/16/2006]
  17. LaQuiet

    LaQuiet New Member

    I had the same problem for a long time until I was diagnosed with migraine... I took fioricet for a long time for it and ended up with rebound migraines. Try not to take too much of the the fioricet, or take it for an extended period. You'll end up worse off then when you first got the migraines. Speaking from experience and I don't want you to go thru what I did.

    LaQ
  18. AllWXRider

    AllWXRider New Member

    My migraines are triggered by Monosodium Glutamate (alias Autolyzed Yeast Extract,Hydrolyzed Vegetable Protien), sulfites (a preservative for fruits and wine) and sharp cheeses (here its a food allergen for me).

    Migraine can be caused by the blood vessels dialating too much and then going into a spasm. The pain is mostly felt in the forehead and is mistaken to be sinuses.

    Coffee or Ginseng are vaso-constrictors and they can help.

    Sufficient molydenum in the diet will help the liver change sulfites into sulfates. Sulfates are easy for the kidneys to filter out.
  19. BabiCati

    BabiCati New Member

    both for the advice.

    LaQ that's what I'm worried about with the fioricet. I took it again tonight but I am going to see the neurologist tomorrow morning because I can't go on like this. It's been going on for too long.

    Hopefully, she will be able to give me something for it. With the MSG I through away all of the chinese food in my refrigerator just in case. I am also getting better at reading labels.

    Thanks all for your help.
    Lourdes
  20. rachel432

    rachel432 New Member

    i never thought to link the two problems together. i have been getting migraines and muscle contraction headaches almost daily for about 12 yrs. also over the last 3-4yrs i have had a lot of sinus problems, runny nose, sinus pressure, feeling stuffed up. i just thought i had developed allergies as i got older. from what you posted hear there could be a link between the two and it may not be allergies at all. i have a dr appointment in 2 weeks and i'll ask him about it then.

    thanks for the info.

    rachel