It's a GO! for Cymbalta study.

Discussion in 'Fibromyalgia Main Forum' started by hurts2003, Sep 21, 2005.

  1. hurts2003

    hurts2003 New Member

    I went to my Dr. yesterday. I had to get the OK from him to do the Cymbalta clinical trial. He said that he had been using it with some of his other patients for the last few months and had GREAT results. He told me that if I could go thru the study and get it for free for over a year that I should go for it. It is going to take me 6 weeks to get off the Effexor XR and the Trazodone. Maybe I can get out of this FOG that i've been in since I started with the Effexor.

    Someone ask me in another post 'why didn't I just ask for a perscription for Cymbalta rather than do the trial?'. I think it would be good just to get a different Dr. point of view besides my PCP. Don't get me wrong, Dr Flowers is a good doc that I really like but he's only a regular MD not a specialist. I've been to 2 Rheumies and didn't care for either one of them. My reg. doc did more for me than they did. He is the one that first diagnosed me after I had been to a Rheumie, an algery speciallist, and another reg MD which did not have a clue.

    This also sounds like a lame reason but my hubby has always wanted to go on a cruise. We could not afford it, but when I get the $600+- from the study I'm going to use it to give him a belated '20 Anniversay' cruise. He has always been there for me and helps me so much.
  2. Bailey-smom

    Bailey-smom New Member

    Congrats on the study & I wish you luck! I hope it helps you as much as it has helped me & you will be getting it free - GREAT!!

    Keep us informed - good & bad!

    Kelly
  3. razorqueen

    razorqueen Member

    congrats! Hey, How did you find out about this study? I am intrested in trying Cymbalta, but I live in Canada and it isn't approved here yet :( Being involved in a study would be great!
  4. hurts2003

    hurts2003 New Member

    I was a church the other week and a friend of mine knew I hadn't been doing to good lately, she saw an ad in the local paper about a fibro trial study and told me about it. Her son did an astma study one time and got great results. I called and got more info on it and found out it was for Cymbalta. It is a 58 week study with 15 to 18 visits paying $35 a visit at the end of the study. It is being held at Coastal Carolina Research in Mt. Pleasant, SC. I believe they are doing more in other places, I don't know how close you live to the border but it may be possible to find one near you. I will see if I can find out more info for you.
  5. amberini

    amberini New Member

    I recently started taking Cymbalta after taking Effexor for many years. Effexor no longer helped sleep, pain, or depression. And getting off it is most unpleasant, really. But, taper the dosage and just plan for some rocky road for the time it takes to taper the dose to zero.

    Now on Cymbalta, I will say it is very effective for MY pain management.
    Yes, there were issues in the trial. There are with any medications. We all remember Vioxx, worked great for me. We are all unique and will react to chemicals differently.
    Did you know that Cymbalta is used in Europe as a incontinence medication...funny, huh?

    For those of us who cannot tolerate any pain medication, we need another option and often the use of SSRI's are effective in pain management.

    Only you and your doctor can figure out the correct options for you.
    I struggled with the decision but now I am happy with the outcome.
    Wishing you well in your decision.

  6. ibisgirldc

    ibisgirldc New Member

    I don't know anything about the study, but I'm happy with the cymbalta. Much of my achiness, especially in the AM, is gone. And my PT for my shoulder (which was hurt by the FM flare-ups) is back on track. I'm way too sleepy in the afternoons, but being able to get out of bed in the morning without pain - and without my very first thought of the day being how much I hurt - is worth it. For now. I'll stand by the cymbalta... but again, I don't know about the study itself.
  7. hurts2003

    hurts2003 New Member

    It's been 7 days since I cut down from 225mg to 150mg Effexor XR. Haven't seen much of a difference. I don't seem to be in anymore pain since I don't think the Effexor was doing anything for me anytways. I still have no energy and the pounding head. I feel more hungry than I did but I'm trying not to eat anymore than usual. On Thurs I start on 75mg, don't know how that will do me?
  8. rrsbaby

    rrsbaby New Member

    I have been taking Cymbalta 60 mg for a month now and do not notice any difference in my pain or sleep, at first I think it was making me wake up at night several times, which is more than usual. I called my rhumy and she wants me to keep taking it for a while... so I will

    Good luck to you in the study.

    rrsbaby
  9. hurts2003

    hurts2003 New Member

    I'm just ready to try the Cymbalta to see how it does for me. The bad thing is I have to be totally drug free from what I've been taking before I can start the study, which means it will be the end of Oct. I'm excited about trying something new and hope it works for me. I'm kind of dreading getting off the trazodone though because it does help me to rest pretty good. I start cutting down on that after I get off the Effexor. My husband is really concerned about how I'm going to do between the time I get off these meds until the new drug kicks in.