Its Back!!!! thought had stopped the fibro-no such luck!!! Help Please!!!

Discussion in 'Fibromyalgia Main Forum' started by allipop, Sep 21, 2009.

  1. allipop

    allipop New Member

    After keeping Fibro at bay for 3 or 4 years, I started running for exercise and developed a stress fracture. (maybe too old at 53 to run??)

    Now it seems all my previous fibro symptoms are back. The dr just says wait and take anti-infammatories. But it is getting worse and worse. After 2 months, I have pain in lower back, wrists, tingling and twitching in legs, and a dull pain behind the knees. Of course, am not sleeping so am taking ambien. Other than supplements and advil and an antibiotic for a sinus infections-nothing else.

    I think I will start back on the guai protocol which helps SO MUCH in the past. Of course, dr and hubbie think am crazy as pains come and go-mainly in late afternoon. The dr wants me to start walking but every time that I do-end up in agony that night.

    Has anyone else experienced something like this? How long does a stress fracture take to heal? And why would it trigger all these other "fun" things? Could I have actully hurt my back-thus triggering all the other stuff?

    Any words of wisdom would be great appreciated as am tired and hurting and getting no help from Dr or family.
  2. Janalynn

    Janalynn New Member

    I've *heard* that trauma to other areas to the body can bring on a flare, it hasn't happened to me personally, but can.
    The anti-inflammatories can help your fracture or areas around it I'm sure, but probably can't do much for your Fibro itself, since it isn't inflammation. Your Dr. is the one to tell you how long a stress fracture takes the time to heal

    I wish I had an answer for you or great words or wisdom. All I can say is I'm sorry that you're feeling crappy again. I'm glad you've had some really good years. I think it's great that you're starting back on what helped you before. Back to taking extra care of yourself!!!
    If exercing brings on agony - don't do it. Take a break for little while, then start up slowly again. Maybe just simple movement .

    How was your family with your FM before? Sounds like they need some understanding of FM in general. If your Dr. doesn't either, time to find a Dr. who does!

    We're here for you - you are certainly NOT alone!

  3. SnooZQ

    SnooZQ New Member

    At 53, it's possible that your hormonal status has shifted some in the past several yrs.

    If testosterone level is low (not uncommon), healing of day-to-day muscular traumas will be impeded, and soft tissue pain can increase.

    Double-ditto that for even slight thyroid malfunction.

    Estrogen deficit can put one at risk for stress fracture if bone structure has become osteoporotic.

    Rest is recommended for healing of stress fractures. Was the fracture in your foot or leg, and did you wear a cast for a while?

    I'm wondering whether any recent imaging has been done to determine whether or not the fracture is healed?

    Many of us first developed fibro after a trauma. So, recurrence after remission & following a trauma is possible. Why this happens ??? There are theories. Perhaps the brain gets somehow sensitized (or re-sensitized) to pain during trauma.

    Listen to your body. Is there any reason NOT to reboot your Guai protocol? If not, give it a shot.

    If walking rekindles your agony, look seriously at what you are expecting of yourself. Are you starting with miles, or blocks? It's possible you might have to start with even lower expectations -- perhaps 1/4 or 1/2 block. The idea is to start exercising with an amount that keeps you under the pain threshold, then slowly & gradually increase, all the while trying to keep under the pain-inducing threshold.

    Perhaps some other form of exercise would be better? Swimming?

    Best wishes.
  4. allipop

    allipop New Member

    I am actually on a hormone for menopause. The sports med dr did an initial xray and said that they tell more with an MRI but he didnt think necessary as the treatment would be the same. He recommended a gradual increase in walking after a month off. I got back up to 1.5 miles but then the pain returned and then some-in back, neck, and arms.

    I have started Guai back-hoping to have the same good luck!!! I guess I cant help wondering if it is something like a disc problem and dont wont to injury it further-but maybe being paranoid!!! (I cracked some vertebrae in high school when fell off a horse-looking back-I think that was the start of all this grief!!!)

    I had forgotten the total hopelessness of not knowing what is exactly wrong and how to fix it!!! This board is a God-send as very few others understand!!! My primary dr will pretty much give me what drugs I ask for but he doesnt believe in fibro so I do most of the research. Cannot wait for the day when there is a "test" to prove this pain isnt in our heads!!

    Thanks so much for listening and the input-hope you have a great day!!!!
  5. allipop

    allipop New Member

    Thanks you for your response!!! This board is such a help!!! My family has no concept of what this is like-except for my daughter who is a nurse and even she gets impatience with me!!!

    Oh well-will keep working on getting better-wish we all could be well again!!!!
  6. gapsych

    gapsych New Member

    My fibro started with a broken arm. Since our DD fm/cfs is cyclical you can go into remission but yours was for a long time.

    Take it one day at a time, easier said than done, and hopefully you will soon feel better. If you don't or not getting any relief I would call your doctor or find another one if this doctor doesn't "get it".

    Is this the same doctor who treated you before?

    If you answered this, I can't go back and see as I am afraid I will lose the post.<BR

    What medications are you on?

    Good luck and take care.


    ETA Did your doctor say your fracture could be helped by a Physical Therapist? Sometimes they can pick up on subtle signs you doctor would not see in just several appointments. Two months of is too long to be feeling this way.

    Looks like you answered my question about meds.
    [This Message was Edited on 09/22/2009]
  7. AuntTammie

    AuntTammie New Member

    so sorry to hear that you are experiencing the "fun" of fibro again, and I agree with the others that the stress fracture could be the trigger

    I hope that you can start to feel better again and to get some exercise, whatever form that might be......running might be too much for your body rt now, but it also might not be a problem once you heal.....however, you are definitely NOT too old to run - there are people still doing marathons in their 80's
  8. PVLady

    PVLady New Member

    From all I have read over the years it does sound possible you were in some sort of remission and now have a relapse. It is common to have remissions and then when doing strenous exercise develop symptoms again. When I saw a infectious specialist, in Torrance, CA - he also told the same story about one of his patients. She was ok for two years then took up a strenous sport and relapsed.

    I am curious if you have ever been tested for Epstein Barr Virus? I have also read it is suspected of causing CFS/Fibro. Somehow for me, knowing I had that virus, helped me to understand I had something real to battle.

    In my case, I know I have a level of 8000 of the Epstein Virus. The norm on my test was below 90! Since I discovered that a couple of years ago, I was determined to get the rest I knew I must have, then not push myself.

    For the most part, I have been free of major flares and pain but if I do not get enough sleep or do too much, the pain does return. Never like when I was really sick but enough to get my attention.

    If I were you I would stay on something like Soma and completely rest until your body stops the flare. I also take 2 x-tr strength Tylenol per day. Two will not hurt you and and it works great. Also, in my case, another reason I am not aching anymore is because my pain doctor put me on Subutex 4 years ago. I was actually using it to get off MS Contin, then discovered it completely stopped the fibro aching.

    I am reading a book right now called "Encounters With The Invisible" Unseen Illness, Controversy, and Chronic Fatigue Syndrome by Dorothy Wall. It was published in 2005. You might find it at the library.

    Reading that book helped me immensely psychologically. This woman has battled CFS and Fibro for many years and wrote a very interesting, insightful book of her experience.

    Fibromyalgia can be a overlapping illness with chronic fatigue. For some people, there can be many different triggers and I believe that.

    My severe pain started in 1998. I was so sick, hurting so bad - feeling sick to my stomach, etc. I would be in bed for 2 weeks and sometimes did not leave the house for months!

    Finally one doctor put my on MS Contin and incredibly it stopped the pain cold. Then the problem was I could not tolerate the side effects of MS Contin because at the time, I did not realize I was loaded with gallstones.

    I became so sick while taking MS Contin for 9 months - I lost 50 lbs just because I could not eat. I had the worst doctors. Anyway, in 2006 my condition was finally diagnosed and I had surgery. It took about a year to get better because I was sick for so long.

    Since 2006 I have just gradually regained my health. Today, I just know I have to pace myself, and mainly get enough sleep. I seem like a normal person to outside people.

    I am sorry to disagree with your doctors on exercise - my vote is for you to follow what your body wants. If you need to completely rest do it. Trying to push yourself through this will gain nothing.

    If you think you hurt your back thus triggering all the other symptoms then get a massage once a week to relax the muscles and keep resting. One day you will wake up and feel good again. You might need to come to terms with the fact you cannot do the things you did before.

    I cannot imagine not having Soma when I was flaring. It stops the terrible aches and flu feeling. You can rest better etc.

    I am very sorry this happened to you and hope you are feeling better soon.

  9. CanBrit

    CanBrit Member

    Well the one thing I do know is that FM can be exacerbated by phsyical injuries, as well as emotional crisis. I had ice and snow fall on me in 2008 and my FM has been in overdrive since then. My Dr. believes that our faulty immune system fires up and attacks us whenever accidents or injuries occur. I certainly am proof of that.

    Stress fractures can take as along as any regular fracture to heal. Of course, as we age (I'm 53 too), healing is much longer.

    I'm afraid the only advice I have is to do water exercises. I was in our pool every day and it provided tremendous pain relief..until I got out that is...ha ha. You might want to look into aquafit classes. The stress on our bodies is much less when activities are done in water.

    All the best.

  10. allipop

    allipop New Member

    Thank you all for your replies!

    I have decided that I am going to go to Dr and ask for all the tests that I have been reading about on this board-I had some years ago but I do not think they were very specific!!!

    Now I have to go back and read posts to see what to ask for-for the Thyroid, Epstein Barr, and anything elso anyone can suggest!!!! At least then I will know for sure what I DONT have-and move on from there. I just hope I can convince my Dr to get very specific and detailed-not just the normal tests they are used to!
  11. PVLady

    PVLady New Member

    Hi, I just want to warn you, if the doctor orders the test, make sure they code it correctly, or your insurance will pay. My insurance company tried to charge me $3,400 for the test. I cannot imagine why it is so expensive!

    After checking and talking to the doctor, they corrected the coding and I forget what I ended up paying but not even close to $3,400.

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