just a few ?'s

Discussion in 'Fibromyalgia Main Forum' started by Pinky, Oct 10, 2002.

  1. Pinky

    Pinky New Member

    Does anyone have regular chest pain? And what about massage therapy? Does it work? I have cut down on my use of some supplements and have just started taking ZMA. I am only taking 1 capsule but I am also taking Malic Acid/Magnisium and MSM. My dr. did take a blood test for DHEA and put me on 50mg of that also. I need some advice on treatments to try, both medication and supplements as well as lifestyle changes. I am so confused, so frustrated. I am exhausted all the time but just can't stay asleep or get a good nights sleep. The pain is constant, especially in my lower back, legs/knees,neck and shoulders, as well as chest pain and pain in my upper abdomen. Luckily I am still able to work part time but I am not sure how much longer I will be able to continue to do so if I don't get some relief. What is the recommended dosage for Magnesium, MSM,Calcium, and Vitamin C? What about Flaxseed, Glucosamine/Chondrotin? And what about Ultram, Bextra, Ambien? Should I be taking Vitamin E? B-Complex? What about Zanaflex? I am so confused!!!!!! Help!!!!! I also have GERD and a siezure disorder. I know I keep repeating myself but I literally have trouble concentrating and absolutely no memory.
    Debbie
  2. Pinky

    Pinky New Member

    Does anyone have regular chest pain? And what about massage therapy? Does it work? I have cut down on my use of some supplements and have just started taking ZMA. I am only taking 1 capsule but I am also taking Malic Acid/Magnisium and MSM. My dr. did take a blood test for DHEA and put me on 50mg of that also. I need some advice on treatments to try, both medication and supplements as well as lifestyle changes. I am so confused, so frustrated. I am exhausted all the time but just can't stay asleep or get a good nights sleep. The pain is constant, especially in my lower back, legs/knees,neck and shoulders, as well as chest pain and pain in my upper abdomen. Luckily I am still able to work part time but I am not sure how much longer I will be able to continue to do so if I don't get some relief. What is the recommended dosage for Magnesium, MSM,Calcium, and Vitamin C? What about Flaxseed, Glucosamine/Chondrotin? And what about Ultram, Bextra, Ambien? Should I be taking Vitamin E? B-Complex? What about Zanaflex? I am so confused!!!!!! Help!!!!! I also have GERD and a siezure disorder. I know I keep repeating myself but I literally have trouble concentrating and absolutely no memory.
    Debbie
  3. karenanne

    karenanne New Member

    I did, Debbie. I also found it interfered with breathing because the muscles were so tight. I found going to my osteopath did help a bit but the thing that rreally helped was Neurontin.

    Unfortunately, it has had side effects that I cant handle and the chest pain is back, exactly as before, after a blissful time of absence.
    Hope you find something that helps, more permanently,
    Karenanne
  4. klutzo

    klutzo New Member

    One of my two best friends as a child was named Pinky...you aren't from Philadelphia by any chance, are you?
    The corrrect dose of Magnesium for FMS patients is usually listed as 350 mgs. daily. It is best taken at bedtime. If you are prone to diarreha, work up to it slowly. Make sure you get glycinate or citrate or aspartate, anything but oxide. Magnesium oxide is cheaper, but it causes a lot more diarreha and is hard to absorb. The calcium dose depends on how old you are, and should be calcium citrate, not the cheaper unabsorbable carbonate, and never oyster shell, which can be contaminated. Before menopause, 500 mgs. calcium twice a day with meals, after menopause 500 mgs. three times day with meals and make sure you get at least 400 units Vitamin D with it, esp. if you live in the northern part of the country. Also, eat lots of dark green veggies as vitamin K is just as important for bones as calcium. Yes, take B Complex for sure! B vitamins get used up rapidly when the body is under stress. Find one with at least 50 mgs. of the basic B's. Vitamin E is also important at 400IU's daily, and if you have a Mitral Valve Prolapse like 75% of us do, be sure to take at least 60 mgs. of COQ10 daily. Most "experts" will tell you to take 2,000 mgs. of vitamin C, but you really can't absorb that much, so you just make expensive urine. Take 150-500 mgs. daily. If you want more, get it from foods. You can find really good multi-vitamins that will have all of these things in one pill except the calcium. Calcium takes up too much room and requires large pills (I take 6 pills per day of calcium).
    I can't help much with the drugs you mention. Ultram didn't work for me at all, and neither did Ambien. I have not tried the others you mention. Since you have seizure problems, what about Klonopin? That seems to be the favorite of a lot of the folks on this Board, and I believe it is sometimes used for seizure problems. It made me stop breathing, but that is so rare that I have never heard of it happening with anyone else. Personally,I take Xanax. I wish I had never started because it is so addictive and so hard to get off of, but I could not even walk without it,a nd I did not sleep at all for days. Now I am dealing with the FMS better, but I need it just to keep from dying from withdrawl symptoms, which is why I advise trying all the natural things first before giving in to drugs. Flaxseed is good for everyone, provided your bowel can tolerate it, but make sure it is ground up or it won't be absorbed at all. Or you could try the oil, at a dose of one tablesoon daily. MSM helps some people, and has helped my allergies. Glucosamine and Chondroitin are for arthritis, not FMS. Chondroitin is also a blood thinner, and I take it because I have a high heart attack risk. It has been shown to reduce the incidence of fatal heart attack by 400%.
    Ask your doctor if you may have costo chondritis, a common cause of chest pain in FMS patients. It can be treated with heat, anti-inflammatories, and sometimes muscle relaxers. If you do have it, it can be recurrent, so it's important to make sure your breasts are supported, as bouncing can aggravate or even cause a flare up of it. I like sports bras since they keep everything from bouncing but without painful wires.
    Deep tissue massage often makes FMS patients ill. Even lighter massage made me hurt so bad I threw up and had to call my doctor for narcotics. However, folks with milder Fibro,esp. those without all the allergies, seem to have much better luck with massage. I even know one person who claims it cured her after 3 yrs. of thrice weekly sessions. She went back to work, and has a maintenance massage once every two weeks.
    Hope this helps some Good luck,
    Klutzo
  5. garyandkim

    garyandkim New Member

    pain, and steroid shots every 3-4 months about 6-7 of them in the places that hurt the most. I also go to Warm water hydrotheropy and the Chrio. I hate massage but, Gary likes it. Too painful for me. It is different for everone and a trial and error thing to figure out what works best for each of us. Try to stay away from MSG in foods and diet stuff. See if that helps. Surgers also bother some. Keep a log and see what makes you feel best and what doesn't. What hurys etc and a list of every symtom you have no matter how small. Keep copies of all you tests and films, etc. Research all you can and talk to your doc about everything you take even over the counter. Heating pads may give some relief. Try to do gental stretching. If you don't have a doc that specialises in this there is a great doctors referal on the home page here on the right side in the beige section click on it then look for The co-cure good docs list and find your state. Many also have web site with info and research look at other states to to find this info. You need to become your own advocate and expert in what you have. We both have FMS and CFS.

    Good luck and hope this has helped you some, Kim and Gary