Just applied for disability...what now????

Discussion in 'Fibromyalgia Main Forum' started by hambys97, Apr 17, 2007.

  1. hambys97

    hambys97 New Member

    Okay, I just got off the phone with social security during a phone interview for disability benefits. I know that the process takes 3 to 5 months to determine eligibility. I understand that I can expect to be denied, but do I have to get an attorney at that point for the appeals process? How long can I expect the entire process to take?
    This is just me, but those of you who have gone through this process, how do you feel about it? I just feel like I am being defeated by even applying for disability. Is that normal? I just don't know what to think or feel right now as I am having a difficult time.
    Thanks in advance for any information that you are willing to share.

  2. gardengirl12

    gardengirl12 New Member

    hi angie,
    when i applyed i was seeing 2 dr.My work was cut down because i couldn,t keep up any more.but i still kept my job
    well i was turned down the first time So i got a lawyer she only did fm and ra and op oa cases. well i waited 2yrs and kept working and finally got aproved they had to pay back all the money for the 2 years i waited.i live in ny state.But don,t give up you will get it sooner or later.You didnt say how old you are .they like it if you are at least 50.the key is you can,t do the work you use to do. and age Good luck keep your head up
  3. jole

    jole Member

    You will receive a packet with more papers to fill out in a couple days. It's unbelievable how much information they will ask for. by the time you get through with all of the paperwork, your anxiety level will be through the roof! I just did this a couple weeks ago.....

    They will ask for 2-4 people's names, addresses, etc. to contact (and they did) about info on you. It can be relatives, thank goodness, since I haven't talked about my dd much with friends, and have very few of them left anyway.

    Lots of work information and daily info...by the time I finished, I felt like I had just flunked a major test. lol:) Need all your doc's names, addys, phone numbers, when you last saw them, etc.

    Even had to turn in our income tax records, birth cirtificate, etc. So be prepared.

    Hope we win and it doesn't take forever......best of luck to you!
  4. judesmomma

    judesmomma New Member

    i am going through the same process.. i am new here and was hoping others would be going through this too! haha.. i have no idea what to do next, I have been denied twice already. but we can't give up :)
    good luck you to
  5. hambys97

    hambys97 New Member

    I live in WV, not that it matters. I was informed about the additional paper work, and we went through all my doctors with their phones and addys. I felt better before I had to list all my doctors in one place. I wonder if I am not 82 instead of 28!?!
    The phone interview last over an hour, and by the end I was wondering if I was going to make it until the end. I was so ready to fall asleep. I guess I am glad that at least this part is over.

    Good luck to everyone is going through our wonderful system!

  6. Clay2

    Clay2 New Member

    My wife applied for me using the online forms. It took her days of research and hours of typing. Then they sent us both forms about daily life - about 10 pages each. Last week I went to a pyschologist they set me up with - for a memory test. I failed. I had no idea my memory was so shot. I don't even know if it's better to fail or pass. The nice guy who did the tests said with a smile that SS would get back to me in a couple weeks or else 70 years. He had no idea.

    I was depressed before, but this has made it worse.
  7. meditationlotus

    meditationlotus New Member

    Your post gave me so much hope. I have posted here numerous times about working while applying for SS. disability and everytime, people tell me not to work that it will be held agains you.

    I am 53. This gives me courage to try. I substitute teach 0-3 days per week, when I am up to it.

    Thank you so much. I am going to post this seaparely in case you don't get to read my response.
  8. JLH

    JLH New Member

    Angie, maybe the following article will help you.

    It CAN be a long process; however, sometimes a person hits it lucky and is approved on their first try. In fact, that's me! From the time I mailed my application, it was 4 months until I received a letter from SSA stating that I had been approved for SSDI and that my check was in the mail--and it was--I received it a few days after the letter!

    Here is a magazine article that you might find interesting reading .... it's long, but worth reading it all!!


    The Disability Maze -- Article re Filing for Disability 06/17/06 09:58 PM

    Note: this article is about someone with arthritis applying for disability. The same can be applied to fibromyalgia or CFS.

    "The Disability Maze"
    by Amy Brayfield

    Disability cases are won and lost on the strength of the application. We'll help you through the process, step-by-step.

    Shawn Sluder knew it wasn't going to be easy to give up her job. She'd been an executive assistant for almost 10 years and loved the busy pace and constant multi-tasking her work required. But Sluder, 38, who has lupus and fibromyalgia, found herself struggling more and more to get her job done.

    After six months of collapsing onto her couch at night, running through all her time off and more than one breakdown in the office bathroom, Sluder had to accept the fact she couldn't keep doing her job. She took her doctor's advice and filed for disability. Four months later, she was denied.

    "As frustrating and embarrassing as it is to have to file for disability, it's about 10 times worse to have your claim denied," says Sluder. Almost 24 months after her initial application, Sluder is still fighting her way through the Social Security Administration (SSA)'s appeals process.

    She isn't alone. Of the approximately 1.5 million Americans who file for disability benefits every year, 65 percent are denied on their first try. Even people who aren't rejected often feel confused and overwhelmed by the process, which seems arcane at best and tortuous at worst. For people like Sluder, the system can seem designed specifically to batter their already fragile emotions, making a difficult situation even worse.

    "There have definitely been times when I feel like the SSA thinks I'm just trying to get a free ride," says Sluder.
    There's no magic spell to make applying for disability benefits suddenly easy, but you can reduce your frustration - and maybe even increase your chances of getting a fast approval - by understanding the process before you apply, says Bob Keck, an attorney with the national disability advocacy firm Allsup Inc.

    Alphabet Soup

    Scanning your disability application may bring on a headache as you try to make sense of the myriad forms with their alphabet soup of options. Is the Disability Report the same as the Symptom Questionnaire? What remarks go in section 9? And does the SSA really think you can finish this paperwork in the half-hour estimated completion time named on the application?

    The answer to that last question, at least, is no, says R.M. Bottger, a former Social Security disability specialist. "We used to joke that anybody who could actually fill out that disability report in half an hour automatically didn't qualify for disability," says Bottger.

    The application can be intimidating, but it's important, says Keck, who encourages his clients to focus most of their energy on the Disability Report. "The SSA uses the information in your application to evaluate your case at every stage of the process. Even on appeal, they'll compare the testimony you give on appeal to that first application."

    For someone with arthritis, the application can be even more important, says Bottger, because of the variation in arthritis symptoms. "Every case is different, but you have a pretty good upfront understanding of what limitations a person in a wheelchair has. Arthritis is different -- there's no 'basic' effect of arthritis. The burden is on the applicant to show that his arthritis is disabling."
    This may be why the application for disability is such a dichotomy: on one hand, a just-the-facts, fill-in-the-blanks form; on the other, a personal and infinitely variable story of the effects of arthritis on your life. It's important to keep both aspects in mind when you're filling out your application, says Keck.

    The emotional component is often most difficult. Most people with arthritis focus on staying positive, but working on your disability application means focusing on the things you can't do. Be too stoic or Pollyanna-ish, and your case manager won't have all the information she needs to evaluate your case.

    "I think that's where I went wrong," Sluder says. "I spent so much time trying to figure out how to keep doing things that I didn't want to say I couldn't do something."

    People like Sluder who've adapted their routines because of arthritis may no longer even notice the accommodations they've had to make. Keck recommends inviting a friend to watch you do a few household chores. "Seeing how your arthritis affects one task, it's easier for you to see the accommodations you make in other tasks, too," he says.

    It can be emotionally taxing to spend a lot of time dwelling on your limitations. Try not to work on your application for more than a few hours at a time -- it's OK if it takes you a week or so to complete it - and keep in mind the reason you're going through the process at all is to get the support you need to live a better, healthier life.

    Inside the Application

    Bottger and Keck agree that the part of your application that deserves the most attention is the Disability Report, a 16-page, nine-section form in which you describe your arthritis (or other illnesses), its symptoms and effects on your work."

    When I denied an application, it was because it lacked compelling medical or vocational evidence. The disability report is where you can give that information," says Bottger.

    The secret to success is simply knowing what information your SSA representative is really looking for in each section, says Keck. We asked our experts to take us through the Disability Report, section by section, to help you make the most of your application.

    Section 1 -- Information About the Disabled Person

    Why they're asking: The SSA needs this basic information -- your address, Social Security number, etc. -- to contact you and request case information. The SSA also uses it to see if you qualify for special programs based on your age or weight.

    What you should know: This section asks you to provide a personal, or non-work, reference familiar with your condition. Think carefully about who you choose, says Keck. The best choice is someone who's seen the impact of arthritis (or your other illnesses) on your life and who is close enough to share your struggles with. It's OK to pick a family member. Give the person you choose a heads-up that the SSA may contact her about your case, says Keck.

    Section 2 -- Your Illness, Injuries or Conditions and How They Affect You

    Why they're asking: The SSA needs to understand two things to evaluate your case: what your condition is, and how it affects your ability to work. This section connects the two.
    What you should know: Both Keck and Bottger recommend answering this important section last.

    The key here, says Keck, is to break down your job, task by task, to explaining how your condition limits your ability to do it. Say you're a customer service representative, and part of your job is filing order records. To do this, you must label folders; kneel, reach, bend and stoop to file; occasionally carry 10- to 15-pound boxes of file folders to restock your supply; etc. Break down each task into its specific components, then explain how arthritis (or your other illnesses) makes each one a challenge: kneeling, reaching, bending and stooping are painful because, for example, osteoarthritis (OA) in your hips and knees makes bending at the knees and waist difficult. Do this for every task.

    Section 3 -- Information About Your Work

    Why they're asking: Knowing what tasks your job regularly requires helps the SSA decide how your arthritis (or other illnesses) affects your ability to do that job.
    What you should know: Remember your job title doesn't necessarily reflect your actual responsibilities, says Keck. One insurance customer service representative may do little more than field incoming calls; another might stock office supplies, visit claim sites and do the office filing. Explain the specific responsibilities of your position. Keep in mind, too, that the more specialized your position, the more likely it is your representative might believe you can continue working -- in another position, says Bottger. If your job is highly specialized, highlight its more universal facets, such as sitting, standing, walking, carrying, bending, and so on.

    Section 4 -- Information About Your Medical Records

    Why they're asking: You can provide copies of your medical records, but the SSA requests its own copies from your doctors, using the information in this section.
    What you should know: Make sure all the information is correct so your application doesn't get delayed, says Bottger. He also recommends writing in each doctor's specialty on the space beside his name, even though the application doesn't ask for it.

    Section 5 -- Medications

    Why they're asking: Before granting disability, the SSA confirms you've tried medical intervention.
    What you should know: List your current meds, plus all medications you've tried, whether they worked or not, says Keck.

    Section 6 -- Tests

    Why they're asking: The SSA looks for a test to confirm your diagnosis - for rheumatoid arthritis (RA), it's usually a blood test; for OA, an X-ray.
    What you should know: If you have a form of arthritis, such a fibromyalgia, that doesn't have an accepted diagnostic test, make sure your medical records include tests to support your condition's symptoms, says Bottger. The presence of several symptoms that aren't debilitating on their own can be considered debilitating when they co-exist.

    Section 7 -- Educational/Training Information

    Why they're asking: Understanding your education and professional experience helps the SSA determine other jobs you might be able to do.
    What you should know: This section is important for borderline applications, says Bottger. The more specialized your experience, the less likely it is that the SSA will recommend you try another form of employment before reapplying.

    Section 8 -- Vocational Rehabilitation, Employment or Other
    Support Services Information

    Why they're asking: The SSA considers what steps you've tried to continue working.
    What you should know: The younger you are, the harder it is to prove you can't work at any job, says Bottger. People younger than 55 must show that they can't work even at a mostly sedentary job. Participating in a vocational rehab program can show the SSA how your limitations really do impair your ability to work at any job. And -- of course -- there's always the chance that a rehab program might be able to help you find a job you can actually do.

    Section 9 -- Remarks

    Why they're asking: As big as the application is, you might run out of room on some sections. Section 9 lets you continue information from other sections.
    What you should know: Many people find they need more space to list their medications and on-the-job challenges than the form provides, and it's better to continue in section nine than to leave out important information.

    The Aftermath

    Most disability applications are determined within five months. If your claim is denied, you may start the process over by appealing for reconsideration. If it's accepted, you may wonder, "What's next?"

    Filing for disability can be so time-consuming and emotionally draining that you don't have time to deal with the implications of not working. In a society where people define themselves by their careers and many view "disability" and "laziness" as synonyms, it's hard to cope with the personal and social pressures of being unemployed. No wonder 40 percent of people report feeling depressed after being awarded disability benefits.
    Sheryl Cohen-Alexander, 48, who applied for disability in 1990, wasn't prepared for the sadness she felt when her application was accepted. "It finally hit me what being on disability really meant."

    Cohen-Alexander didn't want to sit around feeling sorry for herself. Cohen-Alexander has the right idea, says Keck, who asks his clients to plan for their lives post-disability and to stay active during the application process. "It can consume you if you let it," says Keck. "So don't let it."

    Are You Ready for Disability?

    Ask yourself these questions before you decide to file:

    • Are you working? You must have been unable to work for at least a year or show that you won't be able to work for at least a year before applying for disability. If you earn more than $810 each month, even if you can't work full-time, you're not eligible for benefits.

    • Does your arthritis (or other illnesses) make it impossible for you to do basic job tasks? Your arthritis (or other illnesses) must be severe enough to limit your ability to perform the basic tasks that most jobs require, such as standing, reaching, sitting, carrying and walking.

    • Do your limitations keep you from doing your specific job? If you can continue to do your job, even if you're in pain while you're doing it, you're not eligible for disability benefits.

    • Are there any other jobs you can do? Just because your arthritis (or other illnesses) keeps you from continuing work as, say, a construction foreman, does not automatically mean you can't do a more sedentary job. The SSA will consider your work history, age, education and physical limitations to determine what other work you can perform.

    • Does your diagnosis match the Social Security Administration (SSA)'s medical listing? The SSA's Blue Book lists the criteria for disability for all medical conditions. For rheumatoid arthritis (RA), for example, the Blue Book says applicants must show persistent pain, swelling and limited joint mobility to qualify.

    The Appeals Cycle

    Insider Tip: Apply in Person

    Are You Ready for Disability?

    Only about 35 percent of applicants are APPROVED for disability benefits on their first try. If you're denied, you enter another maze: the appeals process. If your initial application is DENIED, you can file for reconsideration.


    Reconsideration is basically just resubmitting your application, but you should take the opportunity to make sure you're being as specific as possible on the sections describing your condition and limitations. Your claim can be APPROVED or DENIED. If it's denied, you can appeal.

    Administrative Judge Law Hearing

    At this local hearing, you can give testimony in person. The judge can APPROVE, Deny or REMAND your case back to reconsideration. If it's denied, you can appeal.

    Appeals Council

    You must appear before the Appeals Council in Falls Church, Va. in person. They can APPROVE, Deny or REMAND your case back to the Administrative JUDGE. If the council denies your claim, you can appeal.

    Federal District Court

    As a last resort, you can appeal outside the SSA's jurisdiction in Federal District Court. This is your final appeal -- if your claim is denied here, you have no more appeal options.



    [ edit | delete ] SSDI Eligibility 09/06/06 09:48 PM

    A good site to checkout ... to determine if you are eligible for disability.


  9. lisais47

    lisais47 New Member

    sorry I'm not punctuating my friend

    well I tried to apply in past and didn't get
    approved (or in favor of)

    now I'm trying again and have a better lawyer -
    a lawyer who specialized is SSI/SSD cases
    he will take a certain % of my backpay if he
    can win my case

    you sure it only takes 3-5 months?
    maybe that's when u first apply

    I'm waiting 18 months for appeal period
    to end and then will have a hearing.

    I also have mental health agency helping.

    and my doc agreed to fill out the form
    to help me

    I think she's going to help.

    if a doc will say you are totally disabled
    and can't hold down gainful employment
    then u got good chance

    plus if u involve yourself in mental health

    plus physical problems might help also
    I think. I hope

    I have both.

    wish u well

    God Bless


    PS I can't figure out how I can get email
    notifications when I don't see where I
    put my email at - do you know by chance?
  10. PVLady

    PVLady New Member

    Don't be discouraged. Can your doctor put you on temporary disability while you are waiting to hear on the permanent? My brother's doctor did that.

    I know many people here wait up to 2 years and wind up getting legal help but I will say, for some reason, last September my brother applied and was approved in October for the permenent SSDI. I was shocked.

    I really believe it make a big difference if your doctor supports you getting the SSDI. His doctor made very good notes. You can check a website called "disability secrets" and it has a ton of good information. Read the "tips" section.

    My brother's condition is cervical spine degeneration. He is 59 and was a truck driver. I guess they also must determine if you are able to do the regular work you do. Were you working before?
  11. lisais47

    lisais47 New Member

    hi again,

    oh you mentioned how a person feels

    well me for one I feel depressed every day,
    2 more or less of a degree

    I don't feel so good about myself - my life.

    I wish I could have succeeded allot more.

    My best 2 successes are my 2 adult sons.

    I was married twice and didn't really have
    any boyfriends until my 40's.

    I finally have a bf who seems to really love me.
    he's much younger

    I'm unsure if it will work out.
    things I'm not all2gether happy about

    I basically have no income so I sure hope
    I will get approved.

    good luck 2 all of u!

    may the Lord God Jesus bless u!


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