Just cant cope

Discussion in 'Fibromyalgia Main Forum' started by Charleneyz1984, Aug 19, 2005.

  1. Charleneyz1984

    Charleneyz1984 New Member

    Hi, I have fms and cfs and i just cant cope at the moment. I am getting so down about stupid things like i wasnt invited to a friends wedding and i convinced myself it was because i cant do what i used to and they think that they dont see me enough so they are not going to invite me. Also i tried hard to do say something the other day and i got so frustrated cuz i just couldnt get it out. This happens alot with fms i know and it does with me but recently i just wanna cry all the time and its so frustrating. Lat time i went to a dr he said to me that i just have to live with it nothing is going to change. I just feel so trapped i am a 21 year old that wants to do so many things but am forced into staying at home alot and not feeling up to anything! I have to work part time as we cant afford to live otherwise but i just cant so am allways off sick or feeling sick or with a headache cuz i push myself where i shouldnt. And the pain is so bad....well you probably dont need me to explain it as you probably go through the same and worse! Sorry to be so depressing but does anyone have any advice? Dont wanna seem selfish as i know so many have alot worse!
  2. nannajo07

    nannajo07 New Member

    Hi Girl, You hang in there.....I know exactly what your saying......I'm alot older than you,but, as we all know these illnesses could care less.But, your post touched me
    and I just had to say you're young and I pray that you
    will be able to find something that will help you and give
    you back your life...Do you take any kind of meds???????
    I realize that meds work differently for each person, But I wondered what,if any, are you taking?? You hang in there sweetie and just know we're here,YOU ARE NOT ALONG......
  3. CFIDSNicole

    CFIDSNicole New Member

    Are you new to the site? If so Welcome!

    There have been several people in there early 20s joining lately. I'm 26 and have been sick for about 2 years now (at least).

    I don't know what to tell you except that maybe it is time for a new doctor. There are some medications and some supplements which can help take the edges off some of the symptoms so that you can live somewhat of a life. Do some research on here--lots of people post about their supplements and diets and things (changing your diet can do a lot, too).

    You are in my thoughts and prayers.
    Nicole
  4. Charleneyz1984

    Charleneyz1984 New Member

    Thankyou so much for all your advice guys, i really appreciate itxx
  5. JerseySue

    JerseySue New Member

    Welcome sweetie. I'm sorry you having such a hard time with things. I would also say a new dr is in order. I think if you could get your pain level and other symptoms to a tolerable level that it would help alot. Pain wears you down, mentally, physically. It's tough to take all the time.
    I think that dr who told you to live with it is absolutely wrong! You don't have to live with it. Keep searching for a dr who can help you.
    Just know you're in my prayers, and like the others told you.....you are not alone. We are always here and will understand.
    Gentle Hugs Sue
  6. crazydaisy0578

    crazydaisy0578 New Member

    Hi, I know how you feel. Just hang in there and keep researching this disease. Make sure you try different treatments and see which one work. Don't give up hope...you can have a quality of life if you see the right doctor and get the right medications that work specifically for you. I am not saying that there will be days without pain but you can reduce it. I was basically bed ridden two years ago and felt the same way you do, then i saw one rheumy after another until I found one that listened to me. Even sometimes having a friend that listens is enough as well:)
  7. kbak

    kbak Member

    My heart really goes out to you. I'm 53, and have been dealing with this for a little over five yrs. I cannot imagine being so young and having to deal with this.

    This is a wonderful site for info. As sad as it is, YOU have to become your own best advocate. When they call this the invisable disease, they weren't kidding.

    People truly don't understand how sick we are. If I told people that I had cancer, I would get way more support. When I tell people that I have CFS/fibro, they just say they really don't know anything about it.

    Because we look fine and sound fine, people think we really can't be that bad off. Or we just need a good anti depressant and to snap out of it.

    Your going to have to do a lot of reading to educate yourself on what's happening to you, and different treatment options open to you. You really need a good doc who will work with you. Yes, way easier said then done. See if you have a support group in your area.

    Sometimes larger hospital will have a list of support groups in the area. Actually some of these different support groups online have lists of support groups in different cities.

    Go back and read as many of the previous messages as you can. There's so much info. People have lots of good idea's that you can do internet searches on.

    It really is a full time job having this illness!! I hope and pray you can find some help and support. Everyone here has day's when they feel like giving up. It is so dang frustrating!! Please hang on. There are better day's.

  8. Just4Me

    Just4Me New Member

    Charlene...

    I know exactly how you feel..Im 24 yrs old and I was diagnosed with FM in Dec. 2004 Im to the point that I can barely walk...Im still trying to find some type of treatment but i have been unlucky finding anything....

    its a very lonley disease and unfortunately we have to deal with it and try to be as strong as we can...the hardest part is not being able to be the person you were...

    its frustrating... but keep faith and put God first...
    I always see it as I could be alot worse ( but that sometimes gets old quick) but just try your best to stay strong...

    If you ever need to talk Im here to listen as well as all of us here on this board....

    Lizy

    [This Message was Edited on 08/30/2005]
  9. SoxFan

    SoxFan New Member

    I really don't have a lot to add - I just wanted to voice my support as well. Hang in there, kiddo - there are a lot of us out here who care.
  10. Mikie

    Mikie Moderator

    It's a lot tougher to have these illnesses at such a young age. The good news is that your youth can help you to heal if you can find a good doc knowledgeable in these diseases. Your doc is wrong; there is a lot which can be done. He just doesn't know what to do.

    You have come to the right place. There are so many knowledgeable people here. Learn as much about your illnesses as you can. Even those of us who have specialists cannot just depend on them for help. We have to become totally knowledgeable and proactive so we can help our docs help us.

    These illnesses are a real challenge, no doubt about it. I have never fought so hard in my life as I have for the last 4 1/2 years to regain my health. I'm not well yet, but I'm a LOT better than I was. Some of the problems I have are ones which come with age and not being able to be as active as I would like. I'm working on them.

    Please do not feel it is hopeless. Don't expect others, except us here, to understand what you are going through. It is impossible for healthy people to understand what we have to deal with. It will be overwhelming at first as you find all kinds of info. The learning curve is huge in the beginning. Eventually, things will start to make sense and you can begin to form a plan for healing. Don't give up finding a good doc. If there is none where you live, find one who will work with you if you do the research. I did that for several years with good results.

    Best of luck to you.

    Love, Mikie
  11. fivesue

    fivesue New Member

    this disease has caught you so early! I can't imagine your pain and your sorrow looking at a life of pain...and yet, there are helps!

    First, we are here to help whenever you need us. We are all like you...maybe not as young, but dealing with many of the same emotions.

    Secondly, so many advances are being made to help the symptoms of this disease and to eventually cure it. You are young, and I think you should look forward to the day when you won't have to deal with this.

    Thirdly, we will pray for you, and you are in each one's thoughts and prayers. Miracles do happen.

    Take care.
    Sue