I am somewhere between anger, resentment and frustration. I am being referred to a Neuro because a lot of my pain has those characteristics, and I think I need a med change. But in the 7 mins he has to see me, is he REALLY going to listen, or am I once again going to be judged, dismissed and pushed aside? It was the same thing when I had the undiagnosed Celiac's for NINE, COUNT 'EM NINE long years. I was ignored, called a hysterical anorexic, possible bulimic, told I needed to just take suppliments. It is part of the reason I am in the condition I am today, so much damage was done to my body, and I got so deathly ill before anyone would actually believe that something was wrong, because they didn't know, and couldn't see. So, it's like that with this, isn't it???? It's something they DON'T KNOW, and, they CAN'T SEE, so in their opinion, once again, it must not really be much. Or maybe I am making some of it up just because I have nothing else to do with the next 30 years of my life. I don't know what the theory is there. I just think that if anyone would ever take the time to actually LISTEN to my medical past, help put the pieces together, LISTEN to ALL of the symptoms I have today insetad of just going "unresolved pain & fatigue", maybe we would be getting somewhere with this. A nurse told me that one reason we are not treated better is that there is no "real money" in treating us- no surgeries, etc., just pills and long-term management, so that's why Dr's don't care more about it. And that makes me sad, too.