Just curious as to.....

Discussion in 'Fibromyalgia Main Forum' started by HOUSEOFBLUES, Sep 27, 2002.

  1. HOUSEOFBLUES

    HOUSEOFBLUES New Member

    How many of us have stopped working because of Fibro?
    How many are home and are NOT receiving Soc. Sec. Disability?
    How many are home and have managed to GET Soc. Sec. Disability and how long did it take?
    I for one have been home now for two yrs. and am not receiving any Disability. My Rheumatologist told me he heard its very hard to get Disability without a lawyer.
    (And he didn't say he would help me get it either)
    Typical Man!
    (sorry, all you guys out there)
  2. HOUSEOFBLUES

    HOUSEOFBLUES New Member

    How many of us have stopped working because of Fibro?
    How many are home and are NOT receiving Soc. Sec. Disability?
    How many are home and have managed to GET Soc. Sec. Disability and how long did it take?
    I for one have been home now for two yrs. and am not receiving any Disability. My Rheumatologist told me he heard its very hard to get Disability without a lawyer.
    (And he didn't say he would help me get it either)
    Typical Man!
    (sorry, all you guys out there)
  3. EllenComstock

    EllenComstock New Member

    Hi:

    I'm still working full-time (half-time during the summer), but I have many days that I wonder if I will last until 4:30 with the pain and exhaustion I feel. I have looked into disability (hoping somehow I won't need it), but I understand it's not easy to get. I suppose they have to be careful because of people who try and cheat the system, but then people like us get punished, too! I am hopeful that the fibromyalgia specialist I've been seeing will help if and when I do look into disability benefits, but I'm not holding my breath on that one!

    If the meantime, I try to take good care of myself, exercise and pop pain pills to get through the day. I imagine a lot of people on this messageboard are not working and not receiving benefits! Good luck-hope it works for you!

    Ellen
  4. dojomo

    dojomo New Member

    it took two years from application for me to recieve SSD. Won it before it went to the judge...but needed a lawyer...........peace.....DJ
  5. Allen2

    Allen2 New Member

    More and more folks with Fibro are successfully winning the battle for compensation, like me truly! Hire a disability atty 1st: the law limits their take to 25% of the initial settlement(they get zip of your later payments). It is harder for some illnesses to be viewed as disabling, but things are changing. There is a post on this days site about someone who won and her tips for winning. Al
  6. JP

    JP New Member

    I am not working due to FM and back pain. I am on state disability for a year. I am not sure what I will do after my year is up. I will probably file for social security pretty soon. The bad news/good news is that my back is documented as being so bad that I have been told by docs that I should qualify for benefits for disability without a problem. I would give anything to be able to work in my career or just work again. I am 42 years young with an expensive graduate education.
  7. HOUSEOFBLUES

    HOUSEOFBLUES New Member

    I keep putting it off (trying to get SSDI).
    I've been gathering info on it for when the time comes.
    I guess I'm just scared that I won't get it....

    What happens if you apply and get it all the way up to the judge and you're still denied because they feel it's not bad enough yet? Do you ever get another opportunity to apply later on if you feel the condition has indeed gotten worse?

    Thanks to everyone who is kind enough to share their knowledge with me.

    Love,
    HOUSEOFBLUES
  8. jpswife_4boys

    jpswife_4boys New Member

    I was a stay at home mom for 13 years (I think, Sorry "fog" lol, could have been longer). After my little one started school I started working for a friend of mine, a steady 5 day a week job!!! Within the last 6 months, getting sicker, being diagnosed with FM, I'm lucky to work what I do. (Which is about 4 days a month when I'm able.) I suggested to my husband about trying to do more but he doesn't want me too. I thought about going out to get a part time job, monday through friday but with the way I've been lately I would be fired probably before I got started. LOL My hubby feels that I shouldn't push myself. That it's not worth me working compared to the consequences that I'll suffer. But I feel guilty not helping him out financially. (esp. this close to Christmas) Now all the kids are in school and I'm all alone. I've never been home alone and I don't like it. (wonder if the schools will allow me to come and sit in the boys' classes LOL)

    Lots of Hugs,
    Crissie
  9. dd

    dd New Member

    Hi HOB - I have not worked for 4 years now because of CFS/FM. I applied for SSD without a lawyer and was approved the first. It only took me 6 months to be approved. I was shocked to say the least when I received the letter. I was afraid to open it so I had my husband do it. I saw the smile on his face and thought he was playing some evil joke on me. It only took about 3 weeks from the date of the approval letter for me to receive my back pay, which was a year's worth of SSD in one check. It was a blessing because we were on the verge of losing our house and car at that time. I also receive SSD for my 3 children because they are under the age of 18.

    There are miracles everyday!

    Debbie
  10. inpain3

    inpain3 New Member

    1. i havent worked for 4 yrs because of back to back 3 pregnancies...and returned for 2 weeks and had to quit.
    2.i am on social security disability and it took me only 4 months...from the date i applied to approval...NO LAWYERS were needed...
    3. tell you rheumy you cannot do regular chores and take care of yourself and family if you spend your hours at a job. by the time you get home, you;ll have no energy for anything else...
    THEN GO FILE!! all they can do is turn it down, and then you can get atty and appeal...good luck!

    God bless!
    inpain3
  11. tandy

    tandy New Member

    I guess the government program.....b/c I did'nt have enough work credit hours for Disability.It surely is'nt alot but it helps when one can't find the energy or painfree days to hold down a job!I've been on this for about 5 yrs,for FMS,herniated disks,IBS and mild scoliosis.
    I had to go to court and answer a few questions about what medications I was on and how they make me feel,etc.....It took me around a yr and a half from filing to being approved.Also I was told that if at any time I wanted to try to work,I could and if It did'nt work out I would still get benefits.
    Hope this helps.
    Best regards,
    Tracey
  12. kadywill

    kadywill New Member

    fulltime and having fulltime pain and fatigue. Don't know how many more years I can do this. I KNOW I'd have some remissions if I stayed home. Can't see how we'd make it without my salary and my husband would have a stroke if I brought the subject up, I can assure you.....he may just have to stroke out one day soon. I have almost had it!
    Love,
    Kady
  13. Sunshyne1027

    Sunshyne1027 New Member

    I may go on disability one day too. But right now my husband is home, and has MS he injured his back, and wont return to work until Jan. So I got to work. I feel lucky though that I can. And will work as long as I can possibly handle it.


    Its like at a time in my life, when my kids got older, and I wanted to go start a career of my own. I went back to school, then the Fibro got so bad. I got student loans to pay back now too. I dont want to give up that part of my life to fibro yet, my dreams. I am so independent.

    But I too am collecting info, trying to come to a decision too, and I think thats allright to collect the info on disability, in case one needs to go on disability one day.

    I used to be scared too. But I guess I am over that now. Fibro has made me stronger, and I just face things, with the best possible attitude I can. Even though I am afraid of some of the same things you are too.

    Good luck!
  14. HOUSEOFBLUES

    HOUSEOFBLUES New Member

    LOVE,
    HOUSEOFBLUES
  15. poodlegirl

    poodlegirl New Member

    I am still working. I have only recently been DX with FM (I am pretty certain I have CFS). I have been "somewhat" DX with fam. med. fever although my rheumy puts down on my chart "Myalgias" among a few other inferior little titles. I think they do that to keep from having to really help you fight the fibro fight. I also have been DX with a pseudo tumor cerebri, tendonitis, chronic sinusitis, clinical depression among others. I am 30 years old, married, but it takes both incomes to make it. My symptoms continue to worsen on a daily basis. I feel I have really gone downhill just this year. I do not have an easy job, I love it, but it is very physical and can be quite stressful. I am a dog groomer. I have mentioned half heartedly about trying to get some type of disability, just to get my hubby's reaction and input. He doesn't truly think I am bad off, despite all the pain and exhaustion he sees in me daily. I really don't know how much longer I can hold out working, but it is not feasable to quit without some other type of income. I would probably get turned down for disability (unless I got it on depression). And at 30 years old!!!!!!!! GEEZ, I thought for sure I would be able to work until I was 60-65 :(