Just diagnosed....any input on all the drugs

Discussion in 'Fibromyalgia Main Forum' started by fieldmouse, Apr 30, 2006.

  1. fieldmouse

    fieldmouse New Member

    I was just diagnosed a few weeks ago...Very frustrated and scared. My Doc has me on so many pain pills and I take other pills for other health problems. Can anyone tell me if they have had any luck with Lexapro,celebrex,or lyrica. I have been off work for about 3 weeks now and not feeling much better. Just feel dopey(still in pain) and can't remember half of what I was gonna do for the day. Even if I make a list I forget to take it or even where I put it. HELP!!!!!
  2. place

    place New Member

    I have only been on the boards for a short time. But getting to stage 4 in your sleeping appeares to be very helpful. I take nortriptyline 75mg at night to sleep, and I have made improvements!

    Good luck and welcome!
  3. roseylisa

    roseylisa New Member

    Hello and glad you joined us!
    sounds like he has you on antiflamotories which I have found dont help with fibromyalgia. You need to go back in and tell him they are not working. I take darvocet when I am in a flare. Seems to help the most.I also take neurontin900mg to help me sleep it is actually for seizures but seems to help with the stage four sleep which will help your pain signifantly. Drs try to put you on something that is non narcotic first. But even though fibromyalgia does not have inflamation but sure feels like it. The medicines he has you on are more for arthritis except of course the Lexapro which is an antidepressant I take cymbalta for that. I hope you get to feeling better try taking a hot bath with candles lit helps my stress level and when your stress level is down so will the pain.
    [This Message was Edited on 05/01/2006]
  4. smiffy79

    smiffy79 New Member

    i'm sorry to hear you have joined us in this illness but glad you have found us here :)

  5. fieldmouse

    fieldmouse New Member

    I take melatonin at night and I think it helps me sleep but I really am not sure if I ever get to stage 4. I can sleep most of the night. Only waking up once or twice but I know that I toss and turn all night. Have to sleep with a pillow between my knees cuz the pain in my knees wakes me up if I don't. I think I keep my husband awake alot of nights cuz he knows when I didn't sleep well. I just never feel rested.
  6. fieldmouse

    fieldmouse New Member

    I think the Lyrica is a sezier medication but it doesn't seem to help me sleep. Does help a little with the pain and I am not quite as stiff in the mornings. Or maybe thats just because I am not working. Hard to tell what is what. What is helping and whats not...I am really confused right now! I will definately talk to my doc about other meds.
  7. smiffy79

    smiffy79 New Member

    i too put the pillow between my knees, it really helps out :) i take amitriptyline at night and it helps to take the edge off the pain so i can get to sleep but even better than that, when i get to sleep i stay asleep til morning. if i dont take it i am up all night and frustrated which of course makes it even harder to get to sleep :)

    i take tramadol for the pain and tizanidine to stop the spasms and cramps.

    you will find tons of info here and some great ppl :)
  8. tonakay

    tonakay New Member

    My doctor gave me a sample bottle of 50 mg lyrica to take one at bedtime to help with nerve pain and sleep. I only took it four day, my hands and feet and ankles swelled like crazy so I quit using it. Hope you have better luck than I did!


    Welcome!
    Tona
  9. CanBrit

    CanBrit Member

    I take Lunesta for sleeping and a 10mg morphine for pain. Most days I take just one morphine at night which allows me to sleep without pain waking me up. I can get by most days like this.

    When I get a bad flare, I usually take an extra morphine in the morning so I can get to work. I'm lucky in that I have a sit down job, but can get up and stretch as needed. I'm usually still left with quite a bit of pain, but I need to be clear headed for my job as well as commuting back and forth.

    Now after two years with FM, I find that I've managed to mentally numb the pain as well. I guess it's just a way of coping. We have so many odd pain, aches and neuralgia's that I don't think there's anything that can completely rid us of discomfort.

    I have other meds I need to take for other conditions so I use a daily pill minder to keep me on the straight and narrow. You can get them really cheap at the dollar stores.

    All the best

    Eileen

  10. advancewithcourage

    advancewithcourage New Member

    Take the meds to get you by, but you are NOT stuck with this illness. Despite what the doctor may tell you, this illness is NOT incurable. I am one among many who has recovered. The key to recovery is to reduces stress on and hypothalamus so it can reset and maintain homeostasis in the body.

    Read through my posts and you will understand what I am talking about.

    Don't give up! It took me 2 years to beat it, but I am healthy and well today and so are many others.

    Advancewithcourage
  11. texasmaia

    texasmaia New Member

    I am sorry that you had a reason to find us, but glad you did.

    Not going to give you particular medicine advice but I want to give you some in another area, if you will allow me to.

    First of all, we are all extremely different and there are hundreds of protocols that are being used by the people on this board. I bet you wont find two of us that are doing exactly the same thing. So...use this as a place of information but be careful.

    When I first came on here and other places on the internet, I would read about one supplement or herb or medicine and I would be gung-ho about that and think "that's my answer". Don't get me wrong, I am NOT saying not to experiment. But I am saying that you are the only adovocate you have!

    ~Experiment but do it wisely.
    ~Give something a chance to work, don't just discount it in a week if you don't see results.
    ~Try one new thing at a time.
    ~Don't be afraid to cut pills in half or quarters to see if it works better for you. (Heck, I had one that I cut into 8 little pieces at first)

    Don't be afraid to go to your doctor and say this isn't working for me. If he is not willing to work on a combination of drugs that will work for you, then go to someone who will.

    Remember YOU ARE YOUR ONLY ADVOCATE!!!! There are some great herbal supplements that people find to help with lots of different aspects of FM.

    In the beginning most people will be put on a muscle relaxer/anti-depressant combination. That is the normal protocol that docs begin with to treat fibro, from most of the study I have done. Now, I mean the Dr. Joe Blow not Dr. Fibromyalgia Specialist. The combination of those two drugs will 'generally' get your seratonin levels somewhat normal and restore some of your sleep, while decreasing a small amount of pain.

    You have to have a starting point. Be honest with your doc. Don't be afraid to go back and say this is bad.

    Ok, enough of all that....welcome and hope you will find some support and encouragement here.

    Maia
  12. texasmaia

    texasmaia New Member

  13. mysticfire

    mysticfire New Member

    Hi Fieldmouse,
    Like you I was diagnosed a few months ago. They had me on lyrica and others, but they did not help. The doc prescribed tramadol and walla! It helps. All medications are not created equal. What may work for me, may not work for others. The best part about the tramadol for me, is that I have no side affects. Been taking it for 2 months now. Hope this helps you and good luck!
    P.S. For sleep, I have ambien..no side affects either.[This Message was Edited on 05/02/2006]
  14. dragon06

    dragon06 New Member

    Different medications seem to work differently for each of us. Some that are a godsend to some don't work at all for others.

    I am pretty sure I have had this dd my whole life but just received a diagnosis a couple years ago. My mom has had this dd for 22 years.

    It took awhile but I am now on a group of meds that seem to be very good for me and are making my life bearable. At the top of that list is Lyrica. I have had very good results with it. I will list what I am taking just for your info...

    Lyrica - 75mg x3/day (nerve pain and more)
    Naproxen - 500mg x2/day (anagesic/anti-inflammatory)
    Prozac - 40mg x1/day (anti-depressant)
    Protonix - 40mg x1/day (GERD Treatment)
    Metoclopramide - 10mg as needed up to x3/day (for digestive)
    Lisinopril - 10mg x1/day (High Blood Pressure)
    Dimenhydrinate - as needed (anti-nauseant)
    Vicodin - 5mg/500mg as needed up to 4 a day (narcotic)

    Since I have started the Lyrica about 5 weeks ago I have not taken even 1 Vicodin!!

    This is a good regiment for me. It doesn't mean I am cured and I still have bad days but it does mean that I can hav e mostly bearable days. I am able to go out a do something enjoyable with my husband.