Just diagnosed

Discussion in 'General Health & Wellness' started by 1jewell1, Apr 12, 2011.

  1. 1jewell1

    1jewell1 New Member

    I was just diagnosed yesterday with Fibromyalgea. Right now I feel like every muscle in my body is under attack and I vibrate from the inside. What can I expect? Does it get worse, will there be a time when I feel normal?
  2. Nanie46

    Nanie46 Moderator

    Hi and welcome!

    Many people who have been diagnosed with CFS or FM, later found out the cause of their symptoms were tick borne infections like Borrelia burgdorferi (lyme), Bartonella, Babesia, Ehrlichia, etc.

    The tests for lyme are very unreliable. Many people with lyme have only had negative test results.

    Unfortunately, 99% of Dr's use only those tests to rule out lyme, which is wrong.

    Please read this information carefully, it contains good symptom lists too:


    http://www.lymepa.org/Basics2007v1.2Rev.pdf



    http://www.ilads.org/lyme_disease/about_lyme.html



    http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf



    http://www.lymedisease.org/lyme101/coinfections/coinfection.html


    www.igenex.com

    Get a Dr to order test #188 and #189, western blot IgG and IgM from Igenex lab in CA. Prepay with credit card or check (they do accept medicare).

    Even if the result is offically CDC negative, get a copy and compare the individual band results to the info on western blot results on page 7 of this paper:

    http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf


    and also compare the band results to the info in this lyme literate Dr's info:

    http://www.drcharlescrist.com/testing.htm


    Also, go to www.lymenet.org....click on flash discussion.....sign up for free......go the the Medical Questions board and read posts and post your questions.


    lymenet.org also has a Seeking a Doctor board where you can post to find a Lyme literate MD near you.


    There are many people on lymenet.org who have the same story as you.

    Many people on the CFS/FM board here, have also found out they have lyme and the common coinfections that are often found with it.

    Pain and fatigue are the most common lyme symptoms. The vibrating feeling is a very common complaint of lyme patients.

    It is extremely common for regular Dr's to do a lyme test (just a lyme titer usually) and get a negative result and tell you that you do not have lyme...which is so very wrong.

    Read the info in the links.....look at the symptom lists......go to lymenet.org's Medical Questions board. You must do this yourself.....if you want to find out what actually CAUSED your illness and get well.

    Good luck!





    [This Message was Edited on 04/12/2011]
  3. earthdog2000

    earthdog2000 Member

    Hi!
    Did you know that there is an FM/CFS message board site here on Prohealth? Come on over and check us out. Our board moves a lot faster with many posts and replies every day! I hope to see you post there soon!

    Faith and peace, Julie (Earthdog)