JUst diagnosised with Lyme!! An end finally?

Discussion in 'Fibromyalgia Main Forum' started by aldejavu79, Feb 16, 2006.

  1. aldejavu79

    aldejavu79 New Member

    Well my bloodwork has finally come back, and low and behold the preliminary test for lyme came back positive, so they are still awaiting the rest of the results from the entire lyme test. I am happy to finally have a begining to an end. My doctor prescribed me doxycycline, then off to the rheumy on tues to see if i need a stronger dosage of meds, and if i do have fm as well. I just wanted to thank all of you for your words of wisdom, and encouragement!! I am here for all of you just as well.

    Allison
  2. Littlesprout

    Littlesprout New Member

    I hate to bust your bubble, I just joined, I was dx with Lyme/co infections 6yr ago and still struggling, walking with cane. Alot of FM pain, low back pain.

    That is what I thought when I got dx 6yrs ago, yeah the end is here. Well here I sit, still struggling. I found out last yr that I have chronic autoimmune lyme, worse than just lyme. My gene are not good, I have the DR4 gene, the worse to have with lyme. I will always been struggling with this. My husband has lyme also, if you have a spouse/partner they should be testing also, it is sexually trasmitted but you won't hear that on the news.
    Good Luck, check out the www.lymenet.org group
  3. kellyann

    kellyann New Member

    Hi! Now the fun begins, haha! Just kidding! If you are anything like me, you can expect to get really sick from the doxycycline. My doctor says it is from die-off from the infections. I agree with the others in that you need a doctor who is knowledgeable about lyme disease. Well let us know what the rhuemy says,
    I wish you all the luck in the world!
    Kelly
  4. kellyann

    kellyann New Member

    It sounds as if you need to find a new doctor to me.
    Take Care!
    Kelly
  5. karebear70

    karebear70 New Member

    I am on this board because i HAD Lyme. i got ill with it october 2004. I took the antibiotics and i was fine after about 3 weeks-for a whole months it was like nothing happened. I went back to work and everything. then i started getting similar "sick and somethings not right" feelings again, back to weakness and fatigue. I told the doc that i think the lyme is back. we did more ELISA and western blot tests to be sure. the tests show if you are exposed to the infection, these tests don't show if it is 'active' so i took more doxy just to be sure but never recovered. I went to a Rhuemetologist and he ran literally dozens of lab tests including more Lyme tests. He said its not the Lyme anymore but what happened is the infection (it could be ANY infection) screwed up my immune system. It didnt' "shut off" like it should have and remains overactive-thus the symtoms of 'illness' though i don't really have a 'bug'...I am not convienced of the Chronic Lyme theroy. I took other regimines of antibiotics and it didn't make a difference, i belive the lyme bacteria are gone, its my immune system that keeps revving. I now go to an infectious diease specialist and he confirmed all that. Now i have CFIDS because of it, but even a regular flu could have started this! He has other patients with cfs too. He did more blood work on me to rule out anything else including other tick borne illness again the lyme test shows yes, i was exposed/infected with it, but doesn't show it 'active' or not, those tests dont' determine an active or old infection, just that you did have it floating around your body at some time. So if you get treated and get a lyme test showing it-it doesn't mean you are still infected--so i don't see the logic in continuing long spans of antibioitcs.
    Have you seen an infectious disease doc? They would be way more knowlegeable since thats there specialty
    Karen
  6. Dee50

    Dee50 New Member

    Dx with lyme. Yes I hear you it is nice to know what you are fighting. I'm reading Healing Lyme Natural Healing and Prevention of Lyme Borreliosis and Its Coinfections by Stephen Harrod Buhner. It is a hard book for me to understand and I'm going to have to read it several times. Some folks say that this book is one of the easier ones to understand.lol All the brain fog doesn't help either.lol

    Take care and chin up. You can beat this :)
    Dee50