Just found out I have Fibromyalgia.

Discussion in 'Fibromyalgia Main Forum' started by BabyArtina, Jun 5, 2006.

  1. BabyArtina

    BabyArtina New Member

    Hi Everyone,

    I am 22 Years Old and just found out I have FM. This actually explains a lot for me, because for as long as I can remember I have had these symptoms that never seem to go away.

    When I was younger, everyone thought I was a hypochondriac, or these were just excuses to miss school. Even repeated trips to doctors, specialists, shrinks, ect... They all told me I was just fine, and were probably thinking it was all in my head.

    Well last week I hit rock bottom, everything was falling apart and I didn't even have the energy to take care of my 15 month old daughter. My husband could never understand how I was always feeling tired and in pain and basically started blowing off the complaints just like everyone else.

    Luckily for me, my doctor listened. I straight up told him every single symptom I was having, and told him that I didn't care what needed to be done...just to take it all away. I felt weird telling him so many symptoms at once, as my usual doctor appointments I only focused on the worst of them. He then proceeded checking me for pressure points, and then told me I have Fibromyalgia.

    I had been going to this doctor for the past 3 years, so he knows my history well... and could never explain my symptoms before. Over the years, I have been through so many tests all that amounted to nothing.

    He then told me the bad news.... there is no cure. He did prescribe me Effexor XR which should help with the depression.

    He didn't really tell me what FM was, thank god for the internet. I found a few sites that give an in-depth breakdown of what FM is and what symptoms it causes. Well I guess I am the classic case, because there is not one symptom that I do not have. I would say the worst of my symptoms would be exhaustion, pain, headaches, dizziness, nausea, depression and a general cloudiness in my mind.

    These symptoms are nothing new to me, I am just glad I can finally put a finger on what is causing it all and I am glad that I am not imagining it all.

    Luckily I have a great husband who now has become extremely supportive (and doesn't doubt me anymore when I say I am not feeling well).

    A few other symptoms I have, I would like to know if they are associated with FM. In the morning when I wake up, my hands, face and feet are swollen, I can not grip anything, can't walk straight, have double-vision, and my headaches are at the worst point of the day. This usually lasts for about the first hour everyday.

    If anyone has any tips on how to wake up feeling a little better, I would love to hear them. Right now mornings are the worst for me because I am in so much pain....I don't even want to get out of bed somedays.
    [This Message was Edited on 06/05/2006]
  2. ohmygoodness

    ohmygoodness New Member

    First off bless your heart and your husband's for coming around. Sometimes I just hit a wall and fall asleep for an entire weekend - thankfully I manage to hit the wall on Friday nights after a week of work..
    Second could the med you are taking be the cause of the morning issues, these sound scary, please go back to your doctor, read the contradictions on your med.
    Third, did you get blood tests etc. done to rule out other things?
    Fourth, this is a long strange trip you're on, get help when your can, accept help, demand help. For 8 years I've had this thing diagnosed and 10 undiagnosed and I'm still in pain, but you are in worse pain. I had a doctor tell me I should just keep exercising (which I dearly wanted to do), lose weight (although I was far from overweight as a size 4), it's in my mind etc. You and your husband and possibly a support group are your only advocates. Don't accept you'll get used to it, you are too young.
  3. BabyArtina

    BabyArtina New Member

    I go in tomorrow for my blood work, to make sure thers not anything else wrong with me. I will update you on the resalts
  4. usanagirl

    usanagirl New Member

    beautiful daughter and your winning attitude!!!

    I agree about researching the side effects of your meds and the websites and treatments for this disease. One of my favorite sites, and the amazing physician that has helped me, is at bionutrition.org. The story behind his one book, What Your Doctor Doesn't Know About Nutritional Medicine May Be Killing You, began with his wife having FMS/CFS and how nutritional supplements significantly improved her symptoms...she was off of all 9 medications within one month of taking them...his name is Dr. Ray Strand. He also has another book called Death By Prescription and that talks about how you--the patient--become the clinical trial for prescription drugs. Funny, someone said to me "If our physicians would just read these books, maybe they would be able to help us."

    Love your daughter, love your husband, but most of all...love yourself!!!

    usanagirl
  5. BabyArtina

    BabyArtina New Member

    The only thing I am currently taking is the effexor which was prescribed when I was diagnosed with FM less than a week ago. Other than that, just OTC pain meds (advil, excedrin, tylenol ect..) which only dull the pain a little.

    I am hoping the effexor does the trick with depression, because at times I feel I would be better off dead. The depression itself is emotionally and physically draining on top of all my other problems.

    The extremely bad mornings has been something I have been dealing with for a long time before any meds. When I was pregnant it was the worse, got tunnel vision and temporary blindness a few times from the headaches and facial pain.

    Since the pregnancy, things have only got worse. It could be because I have to be more active now whether I like it or not.
  6. DorothyVivian

    DorothyVivian New Member

    I'm new here myself. That is, I'm new to this site. But I am very experienced re: CFIDS (Chronic Fatigue Immune Dysfunction Syndrome) and Fibromyalgia as I was dx'd over 20 years ago. This is a very complex condition and each person is unique in the way we react to treatment. The internet is a godsend since we are now able to research aspects for ourselves. I've learned the following:
    1. Stay open-minded and do not believe everything told you even when by a so-called expert.
    2. Take it gradually with new medications remembering that we each react differently.
    3. Provide yourself recreation and as much rest, relaxation, sleep as you can--despite feeling guilty--some people will 'play' upon your guilt feelings if they have their own agenda of wanting you to do for them what they can do for themselves--if they've been accustomed to you doing so. (I've observed that many of us are people in the 'helping professions' or were the mainstays at work and in the family.)
    4. Find some means of keeping your morale up. For me, this is reading, writing, painting and drawing as well as watching DVD's...remember, do not feel guilty about doing a lot of self-morale boosting..you need this as much as good nutrition and effective treatment. (I often say that books are my major pain meds.)
    5. Do not tolerate the presence of people who scold, 'put down' or otherwise denigrate you in any way. (Go to the bathroom if necessary to get away from them). People who behave this way are usually afraid of illness and of any form of disability themselves and want to believe that it is possible to control and 'fix' all problems..including illness and all of life's struggles. But do not try to explain or argue with them as they are seldom open to learning there are no 'quick fixes'.

    And finally, keep coming here and to other supportive places. You'll find many of the greatest, kindest people on earth!! With heaps of hugs, Dorothy
  7. BabyArtina

    BabyArtina New Member

    I was talking to my Ant today and she asked my how big the Fibro is...I'm like i dont know, then she told me to go to the Dr and ask....I'm like ok she said that i can have Sergery and get it removed and FIX my Fibro,.....i dont get what she mean, but i have had this for year and she was trying to act like i was wrong then she told me i need to learn about what i have...i said i know what i have and there not a treatment for it...then i droped the subject...she told me that it is fixable to ask my Dr....i dont think she knows what she is talking about...
  8. Marta608

    Marta608 Member

    I bet she's thinking that you have uterine fibrocystic disease!

    If you didn't feel so bad it would be funny. Aw, well, laugh anyway. I did.

    And welcome to the board.

    Marta

  9. BabyArtina

    BabyArtina New Member

    How do i explane was going on with me to my Family...they already think everything is in my head.Like i said i have had these probs for Years...and they all look at me like I'm crazy....sometime it makes not want to ever leave the house....i just want them to understand me and say i'm there for you not tell me to fix it..witch i cant i can only make it alittle better. Someone PLZ help me on this!
  10. BabyArtina

    BabyArtina New Member

    PLZ Replie back, Ty
  11. dragon06

    dragon06 New Member

    I, like you, have had symptoms all my life and alwways had doctors telling me it was in my head. My mother also has FM and has dealth with the same problem too. I am 31.

    It took a couple years of trying different meds to work with all my various problems but I have finally found a set that have given me some relief. I think each doctor/patient have to work together to find out what will work for each of us since we are all different. I will list my meds for you though to give you an idea:

    Lyrica - 75mg x3/day (nerve pain and more)
    Naproxen - 500mg x2/day (anagesic/anti-inflammatory)
    Prozac - 40mg x1/day (anti-depressant)
    Protonix - 40mg x1/day (GERD Treatment)
    Metoclopramide - 10mg as needed up to x3/day (for digestive)
    Lisinopril - 10mg x1/day (High Blood Pressure)
    Dimenhydrinate - as needed (anti-nauseant)
    Vicodin - 5mg/500mg as needed up to 4 a day (narcotic)

    The Lyrica has offered me the most relief so far.

    FM is certainly hard to deal with and I think that it is great that your husband is supportive we all need support.

    As far as telling the rest fo your family...If you search on here and another site called FibroHugs you will find letters with titles like "Letter to Normals" "letter to family" etc. that help explain the problems that you go through on a daily basis. I would get some information off the internet printed out so that you can give them that information as well so that they can read it at their leisure. Give them the websites you have visited and even tell them about this one.

    In the end, try to explain it as best you can and hope they are as understanding as your husband. Hopefully they will be happy you have at least found a cause to all of your ailments. If they do not take it well then hopefully they will come around in the near future. Maybe they will just need time to mull it over.

    All in all what really matters is you, your husband and child (children?). As long as that part of your family sticks together then you will be ok! A supportive home unit will help make this dd bearable. I know my husband does for me!!!

    My mother has FM so it was not hard for me explaining when I finally got my diagnosis.

    I wish you well and would love to answer questions or anything should you have any :)

    Dragon
  12. SusanEU

    SusanEU New Member

    I was just diagnosed in January and tried many supplements, etc.

    I just went on Effexor 3 weeks ago and find it does help with the anxiety and pain as well as depression. Hasn't helped with the sleep issue though.

    I also take 0.5 lorazepam for sleep and occasionally during the day which I find helps.

    Still working through this thing, too. We are all different.

    Best Wishes, Keep your chin up.

    Sue in Ontario
  13. BabyArtina

    BabyArtina New Member

    The Effexor XR is strating to work....thank God...I though I was going to Never get out of bed in the morning....i dont wake up as if i'm going to fall to the floor anymore..but it still takes me sometime to get up just not as much....I went to the Dr today and got some head ache meds...wish me luck..and ty all for your suport
  14. CockatooMom

    CockatooMom New Member

    you have what we do! But WELCOME, and hope you find this a great support resource.

    I was diagnosed at 26, I am 37 now. I just wanted to mention a terrible side effect of the effexor: excessive sweating.

    It is MISERABLE! Hopefully, you will not experience this unpleasantness, but if you do...you'll know why.

    I've been told Cymbalta causes the same thing.

    Good luck and keep us posted!

    gentle hugs,CockatooMom
  15. Granniluvsu

    Granniluvsu Well-Known Member

    Hi "Baby",

    So sorry to hear about your dx. Believe me I know where you are at but didn't have all this when I was your age. I am now 65 and have had the pain and weird symptoms about 20 years ago and was finally dxed about 2 months ago. I think you said you were dxed. Correct me if I am wrong.

    Just makse sure you have had all your test done first , esp thyroid testing. Hopefully he or she will go the whole route and do all the testing besides just the TSH. For years supposedly had a normal thyroid but come to find out by the new standards I was and am now hypothyroid which can also cause alot of these weird symptoms. Well, my endo put me on thyroid meds and got my TSH down from a 5 plus to a 1 something or another but I stil have alot of symptoms esp my head and neck. So, Iwent off to the rhemy ( one that deals with people with FM/CFS/CMP as I have. I asked first over the phone to make sure first Tell me about your labs . I think I read something about that.

    It only took me 20 years with the right rheumy to dx me with FS/ CMP. I am now working with her with different meds. Flexoreril (generic) and Klonopin (generic)I think that is the name of it. I take them both at ight before bed time. I understand how hard it is for people to uderstand esp when you look fairly healthy an are not lying down and half dead. I am feeling a little better now and go back in another couple of weeks. Please keep me and us advised.

    I have 5 children and 8 grandkids. Hope your meds start to help you. I know how hard it must be with you little one. At least mine were much older when I got this stuff but lots of stress at that time with kids, and an ailing grandfather with alzheimer that lived with us plus other things kicked this DD into high gear. I know that husbands do not always understnad unless you are lying on the floor gasping for air. However, he has gotten a little better since I have gotten dxed finally.

    Please keep in touch !!!

    Blessings,

    Granniluvsu
  16. BabyArtina

    BabyArtina New Member

    I just got another med called Topamax has anyone tryed this?..It's for headaches/migraines (which I get on a daily basis).

    I think I'm going to have to go see a diff doc...this one is great...just isnt looking in to this like i would like him to...let me know if you have tryed this med and how fast is starts to work..and if its worth taking?
    [This Message was Edited on 06/08/2006]
  17. BabyArtina

    BabyArtina New Member