Just told I have Fibromyalgia - Questions

Discussion in 'Fibromyalgia Main Forum' started by Dansen, Sep 15, 2005.

  1. Dansen

    Dansen New Member

    I was told a month ago I have fibromyalgia after several months of different muscle pains etc. Now taking a lot of supplements, not working as hard and trying to relax which is hard when sport and exercise have been a major part of my life. The condition seems to have settled but I'm not sure what is ahead. The rheaumatologist said people get different levels of severity and mine is mild and that there is no reason why it will progress further if I continue to lok after myself.
    I'm also not sure whether ther is more chance of getting over it if it is in the early or mild stages. I'd even look at goung to China for stem cell treatment as many stories I have read on the internet about fibro are very servere and concerning. I want to make sure I do everything right from the start and would greatly appreciate advice.
    Regards
    Dansen
  2. poodlemommy

    poodlemommy New Member

    the best advice I can give is to keep your stress levels down. If you do you will be fine. Stress is the big killer with fibro. Its what got me in the end. So I had to make some tough choices and change my life. Now Im feeling way better after being in severe flare. A fibro specialist I saw 2 years ago said she had never seen such a severe case like mine. Then I made some big chances to eliminate some big stressors in my life and I was reborn. I look and feel 20 years younger and my pain levels are so good now. I know though I must be very careful with stress and not make any major decisions that will uproot my life. So far its working. good luck
    poodlemum
  3. rrsbaby

    rrsbaby New Member

    I agree that stress plays a huge roll in FM. Try to keep your stress level low, easier said than done.

    Sleep also has a huge part. Not sleeping or waking up at night and not sleeping correctly, can cause a flare up.

    I use to sleep all night but was not getting into the "rem" of sleep that rests the muscles, and I didnt even know it... thats why I was wakeing up as tired as I was when I went to bed...Had a sleep study done,and sure enough I wasn't sleeping "right".

    Ice and heat help in mild cases, so do rubs like ben-gay or what ever. Steching exercises help, do them every day. Massage is good if the person is very clear with the fact that you have FM.

    My FM is severe and I hope yours stays at "mild". I have had FM for 25 years...

    Good luck
    rrsbaby
  4. Pianowoman

    Pianowoman New Member

    It sounds like you are doing a lot of the right things already. It's hard, I know,to give up what has been important in your life. It is true that keeping the stress down is crucial.

    You will find a lot of information here on this board. People here have a lot of experiences with different treatments. Take your time, research and try some things if they make sense to you.

    Good Luck.

    Kathy.
  5. LakeErie

    LakeErie New Member

    First make sure you are getting good consistent sleep.

    Avoid stress. Eliminate toixic people in your life,

    Take magnesium. Take just enough to not cause loose stools.

    Take charge of your own health. Research Fibro, learn, because you will probably have to teach your doctor.

    Exercise as much as you can. Warm water arobics is great.

    Go easy on your self when you can't do everything you used to be able to do. Don't push beyond your limits, rest when you need to.

    Accept the disease, but control your future.

    Final thought, guickly learn to tell the difference between "how are you doing" as a greeting or does the person really want to know.

    Good luck

  6. Dansen

    Dansen New Member

    Thank you all for the advice. It is greatly appreciated. It is hard to comprehend what so many people have had to suffer with fibro. It is scary, doesn't seem fair or right and makes relaxing so much harder not knowing what is ahead. I'd love to hear that there are also people out there that only have it mildly and it hasn't progressed or even people that have got over it, if there are any. This gives hope and confidence because it would seem the mental battle is just as hard as the physical conditions.
    I have searched the internet extensively and have found little information on the different levels of fibro that people suffer and what stages there are in its development and whether if it is diagnosed early does that mean its progress can be slowed so it doesn't develop to the severe level.
    Has anyone heard whether stem cell treatment has cured fibro because I would seriously look at that if it was an option. It just seems to have taken a toll on so many peoples lives for so many years. I admire the courage and strength of all those who had had to live with it for so long.
    Kind regards
    Dansen
  7. Mikie

    Mikie Moderator

    You can read about the Guai treatment. If you think this is something you want to try, you can buy the book, "What Your Doctor May Not Tell You About Fibromyalgia," by Dr. St. Amand. The Guai treatment is not a cure but it does reverse the symptoms of FMS. It isn't instant, but if you have not had FMS for long, the reversal would be pretty fast.

    There are a few for whom the Guai does not work. No one knows why. In many cases, failure is due to hidden sals (explained in the book) or an incorrect dose. It takes commitment and patience, but it is the next best thing to a cure.

    Take a look and see what you think. The Guai is available here at the store. What the Guai has done for me is nothing short of a miracle. I was on Morphine for pain a little more than four years ago. I was also bedridden most of the time. I also have CFIDS, so I am not well. Still, having the symptoms of FMS 90 percent reversed has allowed me to concentrate on treating my CFIDS.

    Best of luck of you. Even if you do not do the Guai treatment, the book is an excellent read and very informative.

    Love, Mikie
  8. kalley167

    kalley167 New Member

    So far I can say it hasn't progressed. I am trying to keep active as my body allows. I have good days and bad days. I hope it doesn't get worse but I realize it could. I am living life on day at a time. I have learned from all of this to stop and smell the roses and enjoy what God has given me.