Kansas city doctors?

Discussion in 'Fibromyalgia Main Forum' started by deb20003, Oct 8, 2006.

  1. deb20003

    deb20003 New Member

    Hi,

    I'm new and have a son with CFS. Does anyone know of any doctors in the KC area that work with CFS patients? My doctor is no longer in practice and we went to a new doctor last week who ran a bunch of blood tests and called to inform me that all the labs were "normal". He suggested exercise and sunlight. Both are good ideas, but isn't there anything else we can do? BTW he's a bit reluctant to try alternative treatments, he had had cranio-sacral therapy, accupuncture, taken some suppliments.

    Thanks in advance for any ideas.

    Deb
  2. deliarose

    deliarose New Member

    joe brewer at st luke's ... plaza medical center.
    infectious disease specialist.
    delia
  3. pam_d

    pam_d New Member

    Joseph Brewer is well-known and has been dealing with FM/CFS patients for a long time, but I understand there's a substantial wait to get in. But he's a CFS expert, so may be worth the wait...

    Another good doctor is Steve Simon; he's a physiatrist (or, physical medicine doctor---an MD); he's still in Lenexa, I believe, at Mid-America Physiatrists. I saw a collegue of his , who was OK, but everyone tells me Dr. Simon's great!

    Good luck!

    Hugs,
    Pam
    [This Message was Edited on 10/08/2006]
  4. deb20003

    deb20003 New Member

    Pam and Delia,


    Thanks so much for the information. Actually, my son saw Dr. Brewer once, it took 6 months to get in and the follow-up visit was going to take at least another 6 months. The only thing that he did was look at the labs that we brought in and told him to take a transfer factor suppliment. He did spend a good deal of time just talking with us, but I guess at that time I was hoping for "a cure" and was really discouraged that he didn't run any other tests and that it was going to take so long to get back in. I think that the suppliments helped somewhat, but they weren't covered at all by insurance and were $150 per month. He also got tired of taking 6 a day and Dr. B said that he would probably have to take them for the rest of his life, not a fun thing to think of at 17.

    I was hoping to be able to work withing our insurance system, and I don't think Dr. Simon is in it, but I'm ready to check him out. There is another doctor in the area, but she doesn't file with insurance at all, and insists on the lab work being done by her staff.

    Thanks again.

    Deb

  5. cats3

    cats3 New Member

    Hi

    I go to Jeremy E Baptist,M.D.,Ph.D in Overland Park Kansas.

    He is an immunologist and allergist.

    He treats the cause, not just the symptom.

    He deals with fibromyalgia, chronic fatigue, ibs, allergy, asthma, ADHD and many other problems.

    Also Dr Baptist takes his time with his patients none of this 15 min time frame. Most appointments are for 30 min. but if it runs over that is no problem.

    His practice is called Allergy Link,P.A.

  6. deliarose

    deliarose New Member

    but if u check out teh board.. people do seem to be having some success with TFs and anti viral treatments.

    Dr B only recommends 2 a day now...or at least that's what he has me on now..

    If u check out Wango Tango, another patient of dr b's also on the board, he says he is 60 or 80 percent recovered after 2 years on the TFs.

    Also check out Rich Carson's posts.. he mentions TFs were part of his recovery protocol and pianowoman.

    Best
    Delia
  7. deb20003

    deb20003 New Member

    Delia,

    Thanks for the information. We still have a bottle left from before, it's not past it's expiration date, maybe I can get him to take some.

    I'll check the boards for the other information.

    Deb
  8. deliarose

    deliarose New Member

    u know.. i just re-read some of the literature from Immunity Today. and it said the same thing u did.. '

    ie some people have to take the TFs indefinitely...

    I wasn't planning on that.... That gives me pause for thought. Makes me wonder if anti virals are a quicker fix?


    Or at least, I'm wondering about the pros and cons ,.. TFs versus antivirals.

    Any thoughts?

    Delia
  9. deb20003

    deb20003 New Member

    Delia,

    That's kind of the way that I felt. We've been going through this for four years now and I haven't kept a good log, but I think that the tranfer factors did help. He was able to go to classes and work a little. Then he quit taking them. He then got hit with a virus this fall and now is not doing as well. I think that the TFs do help, but all they do is reduce the viral load, they don't get rid of the viruses. (I'm not sure that anything can.) The antivirals sound promising, but you need a prescription and doctor's care for them. Goodluck.

    Deb