Klonopin Input needed here!

Discussion in 'Fibromyalgia Main Forum' started by marinemom, Nov 16, 2002.

  1. marinemom

    marinemom New Member

    I was wondering how many of you took Klonopin and for what did you take it?

    I am currently on Wellbrutin, and it doesn't seem to help very much. I still find myself gritting my teeth during the day, sometimes I feel like my skin is crawling, where as other times, I REALLY do just want to hide under my bed! I don't have the energy to even tackle the simplest chore such as vacuming the living room.

    I know that this is going to get worse, the closer we get to the "move" date, which is supposed to be over the Christmas break in school! Wonderful way to celebrate, huh?

    Anyway, just wanted some info. I really would like to keep from jumping off the refridgerator! My luck, I'd only break a bone and STILL would have to run the household and take care of 12 yo.

    Thanks
    Kathy
    [This Message was Edited on 11/17/2002]
  2. marinemom

    marinemom New Member

    I was wondering how many of you took Klonopin and for what did you take it?

    I am currently on Wellbrutin, and it doesn't seem to help very much. I still find myself gritting my teeth during the day, sometimes I feel like my skin is crawling, where as other times, I REALLY do just want to hide under my bed! I don't have the energy to even tackle the simplest chore such as vacuming the living room.

    I know that this is going to get worse, the closer we get to the "move" date, which is supposed to be over the Christmas break in school! Wonderful way to celebrate, huh?

    Anyway, just wanted some info. I really would like to keep from jumping off the refridgerator! My luck, I'd only break a bone and STILL would have to run the household and take care of 12 yo.

    Thanks
    Kathy
    [This Message was Edited on 11/17/2002]
  3. Mikie

    Mikie Moderator

    Klonopin has been a God send to me, but there are some here who tried it and couldn't tolerate it. There are others like me who have found it to be a lifesaver.

    The Klonopin is designed to stop the slight seizure state which exists in our brains. This seizure activity is responsible for our not being able to achieve the slight coma state that normal people achieve to produce good quality sleep. It is also responsible for our anxiety, panic attacks, sensory overload, RLS, and some of our muscle spasms.

    I immediately started getting eight hours of good restful sleep and awakening feeling refreshed. Slowly, over time, I am feeling less and less fatigued. I no longer have to sleep during the day every day. My anxiety and panic attacks are gone. My sensory overload is greatly diminished. It also has stopped my tinnitus which was a great relief.

    I like Klonopin because, unlike neurontin, you don't build a tolerance to it which means you don't have to continually increase the dose once you find your ideal dose.

    Read Dr. Chency's excellent article in our library on Klonopin. Our seizure state is due to overfiring of the neurons in our brains and left untreated can do damage to the brain over the long haul. Also read the sister article on SSRI's and stimulants which exacerbate the neuron overfiring problem. Dr. Cheney is an expert in CFIDS, but most of what he writes about is also applicable to FMS.

    Love, Mikie
  4. karen2002

    karen2002 New Member

    Take a Klonopin, and a finch a bedtime--

    I started taking it about two weeks ago (small dose) at bedtime, for improved sleep. (Elavil/Amitriptyline was not working).
    Outcome--Sleep has improved incredibly. As an additional perk, No Sleepless Leg Synd., Twitches or Spasms of Muscles, and I am a heck of a lot easier to live with--says the family, much less irritable and anxious. (Either that or they have finally discovered I was right all the time---naaahhhh) Will let you know after my forced outing today--how the social anxiety goes.

    Karen
    Hey I just read through Mikies post--and hadn't thought of it...but yes, the sensory overload has decreased, and I havent had a nap all week...either![This Message was Edited on 11/17/2002]
  5. kadywill

    kadywill New Member

    for restless legs at night. Helped, but then I went off of it and all the rest of my meds due to $$$$$$....... Ultram helps me with this now, though....Klonopin can cause depression if used long-term. At least that's what the PDR says!
    Love,
    Kady
  6. teach6

    teach6 New Member

    I started taking Klonopin several months ago. It has helped me get the full night's sleep I so desperatly needed as well as stopping my restless legs problem and easing my TMJ. I give it two thumbs up!

    Barbara
  7. fibolady

    fibolady New Member

    klonopin has also helped me a great deal. my anxiety was increasing (due to many factors, i think most of us dealing with these dd have some sort of anxiety, just having to deal with it day in and day out) anyway, my sensory overload was so bad i couldn't even enjoy a night out at a restaurant, noise, etc. everything bothered me. i was also starting in on some compulsive behavior......

    the ambien i was taking at night was not always working, i could take 2 and still not go to sleep. that is why we decided to try the klonopin. worked like a charm.

    i am going through a really tough time right now and the klonopin has really helped me deal and not get too whacked out. i am also sleeping great. i used to wake at the drop of a pin, but find myself sleeping through the night and i am waking up feeling less pain (notice i said less, not none!)

    i take .5 mg. during the day, half it. and about an hour before bed take .5 mg. the first week i started it made me really tired and i would nap, but now that my body has adjusted to it, i don't get tired. but the benefit i like is that if i feel like i need a nap, or really tired, i can lay down and nap for a short period. before, i could not do that.

    hope this is helpful,
    warm regards, fibolady
  8. granmama

    granmama New Member

    Hi Kathy,
    Klonopin has been a positive medication for me. I initially was treated with amytriptiline and got restless legs, which I found out later is a side effect of the drug.
    So, rheumy put me on Klonopin at 0.5mg at night only.

    I asked my primary for an increase to 1mg at night. But, I also took Mikie's advice and give myself 1/4 tab. during the day. I usually do that at naptime, no break thru restless legs anymore!

    I feel comfortable with this dosage at the present.

    My doctor did ask me if I would be interested in neurotin, I told him no.

    best of luck with your decision,
    granmama
  9. marinemom

    marinemom New Member

    to everybody who responded. I have an email out to my doctor now, asking for his opinion of me taking this med. I'm slowly going crazy here!

    Karen, let me know how your trip went, oh, and by the way, YOU can have the finches! I'll just take a nap. =)

    Grins and Giggles
    Kathy
  10. dizzymindy67

    dizzymindy67 Guest

    klonopin is the best thing ive found to get you to sleep and most of all to stay asleep!! i take .05miligrams times 2 when i cant sleep and the next morning im not hung-over. thanks.
  11. Mikie

    Mikie Moderator

    Klonopin works great with ZMA which is a supplement of zinc, magnesium, and vitamin B-6. It is sold here. The ZMA seems to work synergistically with whatever else you are using and it isn't another Rx but rather a vitamin supplement.

    Love, Mikie
  12. MicheleF

    MicheleF New Member

    you've got some great advice. I'll just add that I was given Klonopin (.5mg) to help like someone else said for the twitching, spasms I was having all over my body. I do believe the potassium, magnesium, & B vits I was taken helped reduce that some, but the Klonopin took care of the rest.

    It's the only med I'm on for fms/cfids symptoms. As far as the anxiety, the Klonopin has helped with the heart palpitations I was getting at night. When PMS hits, I do take a 1/2 during the day to smooth things out...my husband & 2 boys thank me!! LOL

    Good luck on the move, hugs, Michele
  13. marinemom

    marinemom New Member

    What is this Gabatril that you mentioned? Is it a Rx or something I can buy OC? Just curious.

    Kathy
  14. beans

    beans New Member

    I take a small amount at bed time and it helps my legs relax so I can sleep.
    I have PLMD.
    Jumpy legs.
    I was afraid of tolerance build up.
    So I go off it every few months for a one or two nights.
    Beans
  15. Vamp

    Vamp New Member

    Hi all

    I am also on Klonopin and can't say as I like it, but it does work for better quality sleep. The gal who posted this mentioned gritting teeth and such...Anxiety - they say that is. For those type of symptoms I take Buspar ....
    I am interested in dosages of Klonopin taken by you all that take it.
    I take 2 mgs. a night right now - may change tomorrow -
    Have been on it for 13 years or more.
    Vamp
  16. contessa

    contessa New Member

    Initially, my psychiatrist gave me .5mg at bedtime. It didn't work very well at all. My brain would still race. When he dropped me because I don't have mental illness I went to a neurologist/migraine specialist. She prescribed Klonopin again but the dose is 1/2 tab every six hours and a full one or two tabs at bedtime. It has made a tremdous difference. I can think again without obsessing on useless background brain noise. I'm also still on Wellbutrin and just added Effexor to mix. She also changed my hormone therapy and we're trying migraine meds now. She's on the correct track because although I'm still in the groggy stage I've gained in the thinking, sleeping area. Lost the anxiety and panic as well. So happy to have found someone that can work with fibro 'head' problems in a constructive way.
  17. Mikie

    Mikie Moderator

    Every evening, I take 1 1/2 .5 mgs (or .75 mgs.). The usual dosage is two tablets or 1 mg. During the day, instead of takin 1/2 tablet twice during the day, I take 1/4 tablets under my tongue. If I'm not feeling anxious or having sensory overload, I do not take it, but I can easily slip 1/4 tablet under my tongue and mainline it right into my system when needed. It acts fast that way. Both my doc and pharmacist said this is perfectly acceptable. I rarely have to take more than 1/4 tablet and that's good because if I take 1/2 of a tablet, it can make me tired.

    Love, Mikie
  18. marcia41

    marcia41 Guest

    Hi Kathy,I've been taking 1mg. of the Klonopin for 2 different sleep disorders.One,the RLS and other is called Posturing.I would sit up in bed(asleep)with arms crossed,chin on chest,or on stomach(asleep)elbows on bed,head being held up by my hands!Wondered why I ached so much every AM and always tired!My husband finally told me I did these things.He waited months before he mentioned it! Anyway,it eliminated those problems.Just recently been having trouble getting a good night's sleep(past 6 mos.).I go to sleep,but wake 2 or 3 times,return to sleep,but need so much sleep(10 hrs)and still feel sleepy most of the day.
    New Dr. has me trying 1 early in evening,1 before bed.So far,no luck.Will see him again in week.He'd tried few other things inbetween that didn't help either.
    As so many wrote,it helps in lots of ways besides sleep problems and most seem to tolerate it,so sure would give it a try.Hope it helps you in whatever it is you need.Please let us know how you're doing.
    Your friend on the board,
    Marcia