Knots in the neck and back...causing my headaches?

Discussion in 'Fibromyalgia and ME & Chronic Fatigue Syndrome' started by kfsunshine, Feb 8, 2004.

  1. kfsunshine

    kfsunshine New Member

    I have knots in my neck and back and I get a massage every week but it is still not enough. I think these knots are causing my headaches because there are places I can push in my neck or back and the pain radiates up in my head. I try stretches but they don't really help. I have a shiatsu massager for the neck and I move it all the way down my back but ouch... I work the knots for 3 minutes and it hurts like heck and then it feels like giant bruises the next day and they still don't go away. Any ideas, input, etc..would be great. I have thought about going swimming a few days a week if I can some how gather up the energy....
  2. pattyjean19

    pattyjean19 New Member

    I have the same, neck , soulders and down my back. I get trigger point injections. They aren't a whole lot of fun to get, but they really help with the severe pain. The knots are still there, I get adjustments, and therapy - muscle stimulation and massage also. I'm certainly not pain free, but the trigger point injections helped when I was really desperate for relief. They did sets of shots within 10 days and now I get them once a week. Not sure what happens next. Good luck, hope you get some relief.

    Patty
  3. TaniaF

    TaniaF Member

    I've been working with a massage therapist for neck, shoulder and facial trigger point pain that were giving me headaches ---tension and sinus type. We are working very slowly not more than 1/2 hour total on all three areas and also drinking loads of water to flush out the toxins. I know when I stop the massage sessions, I'm back to square one. It's kind of a lifetime commitment.
    Tania
  4. aniek

    aniek New Member

    I definitely get headaches from neck muscles. I see a physical therapist who specializes in myofascial trigger point release. If you can find one in your area, you may want to try that.

    I also started taking flexeril, a muscle relaxer. It really has helped.
  5. steach

    steach New Member

    Hi kfsunshine and friends~

    This happens to me, too.

    For the past few of years,(before being dx with cfids/fm in April '03) I've been getting migraines. My family doc tried to treat them and sent me to a neurologist. The neuro has had me on soooo many different meds: to take as they occur and preventatives. The only one that has ever helped me has been butalbitol(Fiourcet).

    This past December, I was sent by my employer for an IME(Independent Med. Exam) to a well-known doc in the field of cfids/fm. He told me that the migraines are most likely caused from the trigger points in my upper body: head, jaws, neck, shoulders, mid-back, arms. He suggested getting trigger-point injections.

    Thanks to all of you wonderful people, I read a post about Lidoderm(lidocaine) patches. I am currently trying these as my first approach instead of the injections. They do help some if I do not do anything physical to cause more than "normal" pain.

    After this IME, I saw my neuro and told him what the specialist told me. Well.....the neuro was not happy- he does not believe in cfids and told me that fm is way overly diagnosed!!! He then asked if I wanted him to continue to treat me or have the other doc treat me!!! Unfortunately, the doc who did the IME is over 4 hours from my home and I would have to pay him out-of-pocket to be a patient of his.


    Once again, thanks to all of you, I have learned that I can order the migraine med from an on-line pharmacy; I have ordered, received, and it is the real thing-legit. Needless to say, I am not going to be wasting my time and money on this neuro any longer!!! :)

    I have just ordered a combo heating pad/massager from a health care catalog. I have a hand-held massager that is a hard plactic and blows warm air but it hurts when I use it. I hope I find success with this new purchase.

    I also find relief from the pain and migraines by seeing my chiropractor regularly.

    Hope this was of some help.

    Steach
  6. Hitz

    Hitz New Member

    Hi I also have lumps on my neck and right on the top of my shoulder blades which causes sever headaches. I feel like my head is going to fall off. I can,t move it, it feels so stiff. My doctor says it is FM. He puts shot in the knots, I also have
    such terrible ache in my legs. It use to be maybe once a couple mths. Now it is every night I can,t sleep cause I can,t get my legs comfortable. When I stand up I can hardly move. Is this also fm. I have had two knee replacements,but I don,t think it was caused from that. Please can anyone HElp !!!! I have osteoarthritis also. Hitz
  7. fllfibro2003

    fllfibro2003 New Member

    I too have TP under both shoulder blades, on both shoulders, both sides of my neck and right under the back of my skull, both elbows and wrists. I've had surgery on both wrists and elbows and it helped for about 1 yr. now it is back and nothing can be done.

    When I get headaches like you are describing I've been prescribed Imitrex nasel spray, it works ok.

    I also go to a massage therapist 1-2 times a week and she is really good at working on my release points and understands that I can't tolerate deep massages.

    I tried the injections but they didn't do anything for me.

    There are several different approaches but massage therapy seems to be best for me. I also have a seat like massager and heating pad that helps when I can't seem my therapist. It also has an adapter for your vehicle and if I didn't have that sometimes in the car I wouldn't be able to go anywhere.

    GOOD Luck, sounds like you have alot of good suggestions here.

    FLlfibro
  8. JustAmy

    JustAmy New Member

    I just posted to some else about Headaches.

    I had all of the same neck and shoulder pains.

    My new chiropractor told me before making an appointment
    to start taking Magnesium.

    You take it untill you get loose stools, about 250mg twice a day.

    Then back off to just 250mg once a day. After 4 days my headaches are almost gone. I only have a 1 or 2 minute headache twice aday. I was having all day headaches.

    It also made my shoulder pain go away. And I have a lot of excess energy. I just thought that this might help others.

    Let me know if this works for any one else.

    JustAmy

  9. lgaye

    lgaye New Member

    I had headaches for years... I was taking Tylenol all day long; also got migraines really badly. It wasn't until I found out I had FMS and CFS and I treated my neck pain that I have gotten real relief from my headaches by treating the neck muscles. I use Arizona Pain Formula; which is a compounding formula (prescribed by Dr. Teitelbaum) and that gives me some relief. I also use the Lidoderm patch, but it gives me major skin irritation. And also, I bought this Conair neck thing that has heat and massage and it really feels good.I did notice that when I started increasing my Magnesium intake, I have overall less pain in my muscles.
  10. lumediluna

    lumediluna New Member

    and I think you should also get adjusted by a chiropractor. I highly recommend it! The combo of massage and chiro works really well and you should feel a lot better.
    I also get those headaches and feel so much better after an adjustment! I swear by chiropractors! Good luck!
  11. jole

    jole Member

    I have had the knots in my back, shoulders, etc. for years, along with migraines. Have taken so many Tylenol, Advil, etc. that nothing was effective. Then my doctor told me they were tension triggered migraines. She gave me Midrin (pain reliever and muscle relaxer combo) which really did help, and it's cheap!!

    It not only got rid of the tension and knots in the back, but also the headache, and were cheap enough that I didn't feel I had to wait until it got so darn bad before I took them.

    Also, my husband was great at massaging them out, but there were times it really did make it worse and I would go from a bad headache to a full-blown throwing up migraine, so never really knew what was the best to try.

    You might consider asking about the Midrin, though.

    Friends - Jole
  12. mammothclan

    mammothclan New Member

    My pain specialist sent me to a therapist who specializes in fibromylagia and she came up with a cheap item for me to use when those lumps get painful beyond help (i.e. no husband to massage me)
    Take three semi soft tennis balls and tie them up in a soft sock. Put a knot in between each ball. Tie a knot at the end.
    When the pain becomes unbearable, use the balls to rub on each sore point. Or, if you can stand, put the balls against the wall and rub up against them. It works wonders. When my neck gets real bad, I have even fallen asleep with them wrapped around my neck.
  13. kfsunshine

    kfsunshine New Member

    Well I haven't had the energy to start the swimming yet but I still plan to. My neurologist said they were migraines and he increased my doxepin from 10 mg to 25mg as a preventative and I have to say that I haven't had any headaches this week. I think that some of my headaches are definitely from trigger points and muscle pain but the doxepin has helped with the headache pain and that is all I care about right now. My neck and back still ache so I have to work on that but the headaches were unbearable day after day. One thing at a time I guess.Thanks for all the suggestions!!
  14. anjie

    anjie New Member

    I also go for massage (myofascial release) once a week, combined with acupuncture and (rarely, trigger point injections). I combine this with medications - amytriptaline and baclofen. Together, my migraines have disappeared!

    Something that I do to fill in the gap during the week is to do self-massage.

    What I have found helps is using large marbles. I roll the marble around at the base of my head, where it joins my neck. Don't press too hard, or you will feel that "bruised" feeling the next day. Sometimes I warm them up first in some warm water, or use a heating pad on my neck/shoulders/base of my head first to warm up the muscles.

    Also, if you put a few tennis balls in a long sock or a leg from some pantyhose, you can use this to massage your back. Just put them between your back and the wall, lean up against them, and move up and down.

    ~Anjie~


  15. anjie

    anjie New Member

    Also, see if you can get your husband, family member, or friend to go with you to your massage appointment. A lot of times, the massage therapist is more that willing to show some of the techniques to someone so that you can get more treatment during the week.

    My doctor encouraged me to bring someone, but, my husband is not willing. That's why he has shown me how to massage certain acupressure points and has given me suggestions like using the tennis balls.