Know a great doc in DC, Maryland or VA?

Discussion in 'Fibromyalgia Main Forum' started by hubcap_halo, Jul 19, 2010.

  1. hubcap_halo

    hubcap_halo New Member

    Hello all,

    I'm seeking a smart, open minded, compassionate, out-of-the-box thinking doctor. A medical detective!
    That takes insurance. (I know, laughs.). And if they don't take insurance, then just a great doc.
    One versed in ME/CFS would be great, but they don't have to be a "CFS" doc.

    Preferably a doctor not too caught up in their own protocol, but as I said---a medical detective. An open minded mainstream doc even. Primary Care, Infectious Diseases, a specialist...I'm open.

    I've seen Vinitsky, Blackman, and Jaller. They were all good and perhaps I could revisit, but looking for a fresh perspective on my case.

    Any recommendations?

    [This Message was Edited on 07/19/2010]
    [This Message was Edited on 07/19/2010]
  2. Nanie46

    Nanie46 Moderator

    Here is a link to a blog of a Dr in Maryland.

    He treats all kinds of patients and he seems like a Medical Detective.

    He writes a blog about treating Lyme patients, but he treats many others too.

    You can read back through his many posts from months past and see that he is willing to think outside of the box.[This Message was Edited on 07/20/2010]
  3. hubcap_halo

    hubcap_halo New Member

    I know that doctor. I've seen him. He's very smart. Very much a lyme doc.
    But that you so much for the reply!

    Good health to you.
  4. hubcap_halo

    hubcap_halo New Member

    I've been over that site a few times.
    I've seen a few of the doctors on the list.
    There are two I'd like to see, but they don't take insurance
    and first consults are near $2000.
    But I will keep going back to it.

    I was hoping there might be some under the radar good doc
    that perhaps wasn't on the usual lists.

    Thank you though because that is a very good resource.
  5. bigmama2

    bigmama2 New Member

    i used to live in that area. i had cfs then, but it went undiagnosed. i do not have any docs that i could recommend to you, sorry.

    i did want to ask how you are doing, cfs-wise?? same? any better? worse? how has the change in location affected you (cfs) and in general? what are you up to? do you think you will get tested for xmrv eventually?

    in last year or so, i moved from penna to florida. its a very long story. total rollercoaster of ups and downs - more about life than cfs. my cfs has improved a little since being in florida. i think that is due to being outside more, and getting more gentle exercise, like walks on the beach, and also being able to see the stunning natural beauty in this area every day.

    unfort i have recently had severe clinical depression, but that is a whole nother story.

    best wishes in finding a good doctor, and improved health.

  6. hubcap_halo

    hubcap_halo New Member

    Thank you for your recommendations Susan. I appreciate you taking the time!

    I'm glad Florida is helping you bigmama2, but sorry to hear about the depression.

    I'm in a low myself, a re activated EBV infection (I've had these before) and so
    I'm a bit sick and pretty exhausted. But I will bounce out of it. It may take time.
    I'll keep searching for that medical detective.
  7. hubcap_halo

    hubcap_halo New Member

    Two very good suggestions!

    I'm curious about Glessner and will approach with your words of caution. Thanks for being so frank!