Knowing when to switch docs

Discussion in 'Fibromyalgia Main Forum' started by GBHope, Jun 30, 2006.

  1. GBHope

    GBHope New Member

    I have gone to the same doctor for 9 to 10 years. He is a kind man and that is not the problem. He just doesn't always seem to listen to me and all the problems I have he just kind of blows off, because all kinds of weird things happen to me. He is very supportive about my being disabled. He doesn't believe in the EBV connection. He says there is no validation to that, but every time I flare, that goes up, my sed rate goes up, my RA goes up, etc. He never digs for any new things and you can't take anything in to him to try. He is a Professor Medicine and has F.A.C.P.

    He is an Internal Medicine doctor. My husband goes to him too, but doesn't feel like he listens or has been very supportive. He is definitely not very aggressive, but I don't know if that is just my anxiety because this is such a weird disease.

    His office has also gone through a lot of changes recently. He had the same nurse for years and now she has to do another job because it is a state-run facility, so now he has another nurse. His old nurse always listened to me and was very supportive, but he is very busy because he teaches and helps at the clinic there besides his own private practice that I go to.

    My husband says it never hurts to get a second opinion. He also says though that it's hard to find a doc who will support your disability, so I don't know what to think. I know it's very hard to get in to see him anymore unless it is an emergency by his standards.

    In the last year I also had an extremely bad bout of hyperthyroidism and called his office because I was so sick and kept on losing weight, literally begging, quote "for the love of God, do something," for him to help me and he wouldn't see me and made me go to my endocrinologist since he was completely convinced that was the problem and there was no telling him otherwise.

    Any thoughts on this long-winded post, LOL?

  2. kb101

    kb101 New Member

    Do you think that maybe it might be time for a second opinion?
    Sometimes change is good.
    Sometimes not.
    But you will never know anything different unless you
    are seen with a new pair of eyes.
  3. GBHope

    GBHope New Member

    Not that I expect anyone to necessarily cure me, but at least listen and check things with a more open mind.

  4. Cinlou

    Cinlou New Member


    Well that is great your doctor is nice...but you say he doesn't listen, but he supports the disability.
    I would much rather have a doctor that listens to me and is willing to try things to improve my health.

    From what I understand is that you need to exhaust all possible treatments before you have a chance of being considered disabled? That is my understanding. I could be wrong. But, I think the more things that are tried the better chance of finding something that helps.

    I would try another doc, just to see what they say...if can always go back the doc you had..
    Take Care,
  5. place

    place New Member

    Went to a doc who was agressive (when ever I did not go to the female doc, I would always get a stern look and a little lecture from him), and knew my file inside and out. But he died and a new doc took over but same staff. so I stayed. She was not good at all.

    I decided to switch and it was the best decision. You got to have a doc who is going to listen to you. And they all do the first visit. I found it took 2-3 to get a good feel for him.

    Good luck!
  6. GBHope

    GBHope New Member

    I'll have to think on it some more.

  7. deliarose

    deliarose New Member

    Why can't u see 2 docs at once?

    Hang on to the one who is helping wiht disability... but scout around for a 2nd doc who is actually willing to TREAT you..

    Sounds to me like you're whistling in the wind with the once you've got. Just don't burn any boats until you're sure you've found someone better.

    I have been with a very competent CFS doc for a year now. He is very helpful, and will order most tests I want, he even bends teh rules so the insurance will cover the drugs I need.

    But I was going nowhere... so I started with an alternative doc MD.. who put me on Valtrex and I am doing fantastic on it so far.

    But the alternative doc cannot prescribe Xyrem, and my old doc can, so I'm pretty glad I kept seeing him...

    Just a thought. But you have to be your own best advocate. It's your life. Don't put up with mediocrity or worse.

  8. GBHope

    GBHope New Member

    I developed the thyroid condition I spoke of in my previous E-mail and see that doctor a few times a year. She is an Internal Medicine/Endocrinologist and has given me a couple of the meds I'm on now that have helped a bit, but my viral load and autoimmune tests just keep on going up and down with flares and no one will listen, not even the rheumatologist I've seen for the autoimmune disease. I know CFS/fibro patients can be a lot to deal with because there are so many things going on, but we deserve help just like everyone else and doctors need to be more open-minded. That is part of being a good doctor in my opinion and yes, we do have to be our best advocate.

  9. Shannonsparkles

    Shannonsparkles New Member

    I've had docs I liked and docs who ripped me up emotionally beyond tollerance. The jerks were easy to leave, but the ones I really liked were harder to let go.

    A doctor is a tool. If a tool isn't right for the job, you put it down and pick up another tool. It's nothing personal. I wanted the doctors I liked to have an answer for me, but they didn't, so I am continuing to find new doctors. I can't afford to spend my money, energy, and time on doctors who don't know what to do. I'm 95 years old, for goodness sake! (Only pretend, though, I'm really 24. But any ammount of time spent suffering is too much.) I have to make my time count by working with people who know what to do.

    It's good to shop around for someone new when you're not satisfied. And you can always keep your current doctor if you don't find someone better. Every doctor works differently, and there may be someone in your town who will take you more serriously and be more helpful. Have you seen the good doctors list on this website? Also, if there is a support group in your town, they can reccomend doctors in your area. That's how I found a CFS specialist in my town.
    (((GBHope))) Shannon
  10. GBHope

    GBHope New Member

    Unfortunately, our support group fell apart years ago. I did go a couple times though. I just need someone to listen and take me seriously and help me manage this illness better, even if they can't cure me.

  11. GBHope

    GBHope New Member

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