Labs are normal in the ER Again!

Discussion in 'Fibromyalgia Main Forum' started by TeaBisqit, Apr 22, 2009.

  1. TeaBisqit

    TeaBisqit Member

    I went to the ER for the severe Hashimoto's attack. Thyroid hurts. So, four hours in the ER and they tell me that my regular labs are "normal". Oh, yeah. I could be bleeding out my eyeballs and they would tell me my labs are normal. However, they said it will take a day or two to get the thyroid test results. I don't even know if they ran the right ones. They did put down that I have Hashimoto's and they want my regular doc to give me thyroid hormone and for me to see an endo. I have an appointment to see her on Friday.

    So, draining experience for four hours just to be told what I already know. And none of them even knew what they were doing. The nurses never heard of Hashimoto's. The first doc had no personality and told me I'm probably headed toward losing the thyroid. Great. I have a fever and I was still told my regular labs are normal. My thyroid is swollen, the glands around it are inflamed, and my labs are still normal. I just wanted to scream, "No you didn't just tell me that again, no, no, no. There is no way these labs are normal." By whose standards? I am so freakin ill. For me to actually go to the ER, there's a real problem.

    I just wanted to say, if I die at your feet will my labs still be normal?

    I didn't tell them about CFIDS or Fibro or ME. I thought if I didn't say anything, they would take me more seriously. I think they did. I did tell them about the Lyme. That they took seriously. I said I was Advanced Lyme and had Hashimoto's.
  2. outofstep

    outofstep Member

    They're probably helpful if you have a hatchet stuck in your head, or something obvious like that. That sucks that you wasted all of that time & energy-a specialist should be able to help though.
  3. AuntTammie

    AuntTammie New Member

    I went to the ER this past weekend....overheated and passed out, couldn't breathe very well and was having chest pains....wound up throwing up a lot when I was there....the labs and tests were normal (such a HUGE surprise - ha ha, NOT), so they sent me home with a diagnosis that basically was my symptoms (syncope, vomiting and dehydration, chest pains), and the instructions said to come back if I had more vomiting, syncope, they could do what exactly if I came back?!

    interesting thing, though....actually a couple of interesting things......I was given nitroglycerin in the ambulance and it helped a lot with the chest pains and breathing (which makes sense if many of us have diastolic cardiomyopathy, as has been suggested)....the other interesting thing is that I also did not mention CFS....said ME instead and got a much better response.....the EMT had not even heard of it, and the Dr actually asked me if I worked in the healthcare field (not bc I mentioned the ME, but bc he actually listened to me,and had an intelligent discussion, instead of fixating on CFS and the assumption of being a mental case, like has happened before)....from now on I am not using the term CFS

    anyway, all that was to say that I totally get your frustrations, and I also found the reactions when I avoided the term CFS to be telling, to say the least

    sorry you are feeling so rotten....have you been able to sleep at all since? (That was the one good thing for me - I came home and slept for 30 HOURS!!!! soundly, too.....haven't slept soundly in a really long time)
  4. Catseye

    Catseye Member

    For me, having normal labs in the ER in the midst of a CFS attack WAS normal! At least you didn't get referred to a psychiatrist.

    Get a CDSA (comprehensive digestive stool analysis). THIS is a test that can show you are not normal while their other tests are showing you are.
  5. TeaBisqit

    TeaBisqit Member

    I'm still in screaming pain from the thyroid soreness. All they gave me was the non narc version of Fioricet. I'm going to the doc in the morning tomorrow, so I'm hoping she'll either give me Armour or send me to an endo who will.

    They don't run the right tests. None of us are within normal ranges on things. They just run a stupid standard panel that's probably sixty years outdated.

    From my experience, I would say, don't tell them you have CFIDS, CFS, or Fibro. You're better off saying Advanced Lyme even if you aren't sure you have it. They treat you better. And since most of the symptoms are the same, you might as well go with that. The docs didn't say I was nuts. They treated me like I had a real thing, which I do anyway. If I had said CFS, I have no doubt I would have been treated like a total nut.
  6. Pansygirl

    Pansygirl New Member

    Just wanted you to know your not alone.

    I definitely understand the part about pains being magnified.

    I accidently walked into a door about a week ago and got a nice lump on my
    forehead.......hubby said I didn't think you hit it that hard.......I guess that's why
    I saw stars and almost passed out.......hmm grrrr

    I noticed my glands are bothering me the past couple of days .

    I've also been to the doctor when I had an excrutiating ear ache thinking
    I had an ear infection only to have the doctor look at me and say I was okay
    and hurry me out the door~ to later find out that this ear pain is courtesy
    of fibro......

    hope you are feeling better, very gentle hugs, susan
  7. outofstep

    outofstep Member

    I say chronic EBV-they seem to understand that.

    It's so ridiculous that people are being told that they are well because of tests-and then they're not getting the right tests done.

    patient: My head started hurting when I got hit with this hatchet
    dr: Well your tests seem fine so just take some aspirin
    patient: But dr. what about this hatchet in my head?
    dr: Don't worry about it-your tests are fine
  8. TeaBisqit

    TeaBisqit Member

    Very true. I had a doc once tell me to ignore the white spots in my throat and my swollen glands, even though one of the glands was pushing on my ear and killing me with pain. Labs were normal. And he said to stop thinking about myself so much! Unreal.
  9. outofstep

    outofstep Member

    UGH I'm so completely fed up with them too. One of the best things re: getting well would be no longer having to deal with these "geniuses" and their "helpful insights"!

[ advertisement ]