Ladies.....please get Regular Paps. My awful fatigue has a cause

Discussion in 'Fibromyalgia Main Forum' started by achy, Jul 3, 2006.

  1. achy

    achy New Member

    I'm posting this seperate from my hysterectomy cry for help so I would get your attention. I haven't been able to post the past few months due to unbearable fatigue. Typing this is taking everything I have....

    I skipped getting a pap for "only" 3 years. I was so sick of docs I just didn't go. Now I am looking at a total hysterectomy at 45.

    I have 6 "aliens" (fibroids lol)growing in my belly. I was gaining weight, but just in my belly. Figured I was eating too much icecream. NOT. I figured the little "twinges" in my lower abdomen were just muscular...due to the FM. NOT. Afterall they didn't hurt as bad as my back...or hands....or hips. ROFL And the fatigue...well heck I DO have CFIDS...duh. NOT

    I know your sick of docs...but you HAVE to go. It sucks, I know, but sitting here for 2 weeks waiting to see if I have CANCER is much worse than 5 mins in the stirrups!!!

    If you haven't been in over a year go make the appt NOW. Log off...get the phonebook and make the appt. GO...NOW.

    Please....
    hugs and prayers
    Calla
  2. victoria

    victoria New Member

    Good advice... also to get second opinions if something doesn't seem right.

    My friend does not have CF/FM but has other multiple problems, and possibly MS they were thinking...

    Even tho she sees her gynecologist regularly ... she had gained extra weight around her middle, also chalked it up to age etc. Plus all her other problems were increasing.

    However, at her annual last June, her gyn. had a new associate following her around who took the time to palpate her abdomen, found she had an 8# tumor -

    not sure if it was fibroid or not exactly, but I do know they couldn't even find her ovary on that side, so guess it doesn't really matter... It's scary that her doctor had TOTALLY missed it for who knows how long. She had already examined my friend even at that exam, and missed it totally, until the associate questioned it. So had any other doctor she'd seen.

    My friend had surgery, it wasn't cancer, and she doesn't look 'pregnant' anymore. She too thought she had 'just' gained more weight... a year later she is still recovering tho, it can take a while depending on location, circulation, etc. of the tumor.

    Calla, I'm glad you found out now rather than even later! I agree we shouldn't let things go, one never knows, thanks for the reminder!

    ... And it does pay to be our own advocates, when something doesn't seem right, as hard as it is when we are sick of doctors!

    all the best,
    Victoria




    [This Message was Edited on 07/03/2006]
  3. carebelle

    carebelle New Member

    Oh my ,I am so sorry and you are so brave to think of others right now and warn them to get to the doctor.

    Your story really upsets me because of a problem I had years ago. It's to long to go into now. I really am finding that many people on this board have experienced an abuse .

    We are mentally abused by our medical system on a regular basis. Every time we get to a point where we ignore our own intowishin and body signals ,because we have been turned away from so many appointments without help.

    We begin to brush off the signs and symptom's to other real diseases because we are so worn down emotional and physically from the battle of "who believes us anyhow".

    We let the snide looks from the medical staff lay on our hearts and minds, that we skip appointments cause we just can not take the unspoken criticism that we are wasting every ones time with our returned visits.

    Your story should be a reminder to everyone that above everything we go thu, we need to trust ourselves .After all we are living with these body's. We know better then anyone when something just doesn't feel right.

    We need to be our own best friend and get check ups and test run that we sometimes skip because of someone else's attitude ,that we have abused the amount of appointments a person should have in a certain amount of time.

    You are in our prayers and today I am praying that God sends others to this post that may have skiped an appointment or was thinking about not going . You have been a good friend to us to share your time with us right now .Thank you and God bless you Calla
  4. findmind

    findmind New Member

    Thank you for saying again what I've been saying here also.

    Don't think every symptom is Fm or CFS! It is far, far too dangerous.

    Regular checkups for other things is vital to our future.

    Note: The National CFIDS Association has an information flyer about the types of anesthetic required for us, their website may list it. (It is an org.)

    Best wishes to you for your surgery, please let us know how you are, and take it VERY easy afterwards. Do NOT vac, do laundry, lift anything heavier than a quart of milk!

    there's always hope!
    findmind
  5. ckball

    ckball New Member

    I am so sorry you have to go thru this. It makes me realize how lucky I am to have a WONDERFUL female Dr who makes me see her every three months, I get full blood work up everytime, yearly or bi-yearly mammos and yearly paps.

    My pap a year ago came back abnormal for the first time ever. She sent me to a great gyno and I had pre-cancerous cells in my cervix. I had to have my cervix removed. This happenned in a years time. It was caused by HPV- human papivollion (sp?) virus. I had not had sex in over 2 years, then it hade been 4 years before that. So those little buggers can lay dormaint for years then something triggers them to life.

    She caught my hemochromtosis because of my 3 month labs.

    I have had Drs in the past that did not believe or listen to me and I know that feeling of hating to go. I had cancer 10 years ago so the first 5 years after I had to go get a CEA every 3 months. So I would give or take a few weeks and go when something else was wrong and do the BTW since I am here. I have had pain in my joints for years (20 or so) and finally I got my Dr to do the blood work and it came back neg. So he said no RA

    Fast forward 4 years, I move to another state to care for my mom. Got a whole new set of Drs and yes, I have sero-neg RA, now I am on plaqunal and much better with the joint pain.

    If you are not happy with your Dr, do everything you can to find one that works for you. Yes, it is hard, but is well worth it. I am alive today because I found my great Dr.

    Go get that pap and get the mamo too.

    I will say a prayer for you that those tumors are not cancer. After my cancer I would live my life 3 months at at time. I would be fine then when I got my bloodwork, those 3 or 4 days were hell. But I have been clean for 10 years now. Best of luck to you- Carla
  6. kirschbaum26

    kirschbaum26 New Member

    Dear Calla:

    So sorry that you are going through all of this on top of the normal ails. I have a couple of quick questions for you. Did your internal vaginal ultrasound reveal your "aliens". Did you have an abnormal period? I ask because I am fairly convinced that I have fibroid as well. I am 44 years old, and have one 7 year old daughter. I have been bleeding almost non-stop for 11 months. I have unbelievable pains in my abdomen (that I have always thought were just FMS or female issues). I am anemic (from the bleeding).

    I was scheduled for a D&C and hysterology (?) a few weeks ago, but had atrial fibrillation episode, and my ob/gyn canceled the procedure. My new cardiologist has okayed the D&C, but my ob/gyn is on vacation for another 2 weeks. Should I see someone else? I have had large ovarian cysts come and go for many years...and have had pap smears every year, even had to have a few other procedures done when the pap smears have come out abnormal.

    Thanks for sharing your story, as I am sure that others will go ahead and call and make that appointment.

    Ingrid
  7. lorraine50

    lorraine50 New Member

    I'm so sorry to hear (read) what your going thru.. I myself had polystitic ovaries. and when I was in my young 20's I myself had to have a hysterectomy. my sister this past nov. had a big belly but she was overweight and never thought of it. she was outside helping her husband and hurt her belly. It hurt so much for so long she had to see a doc. then it started. they found a cyst or tumor not sure. then ultra sound, then CAT then MIR. finally they had to operate and she had everything removed and it turned out to be a large cystabout 16 1/2 cm. but it was borderline cancer. whatever that was..anyway they decided not to do treatments..they are still checking her of course.
    Now my granddaughter is waiting to go in surgery she is only 13 and they have found a 19 cm. cyst they think..the reason they found that is that she has some disease like dark skin in some places and went to a drematalist and he sent her for ultra sound because he thought it was hormonal thing. then same as my sister she has a 19 x 12 cm. cyst. so it is very hard waiting to see if she will be ok....lots and lots of prayers..

    I wish you well and good luck.sorry its so long
  8. lorraine50

    lorraine50 New Member

    I want to tell you I had an hysterectomy almost 30 yrs ago and once in a while I'd have a bad smear come back.this is after surgery.
    some drs. believes when everything is gone even the cervics is gone you don't need paps. well let me tell you keep getting paps. the cavity is there. and I see the specialist every six months and there is always polyps (spelling) there sometimes 6-8. and he snips them off and sends them away. he says if left alone could turn into cancer..so keep up the paps no matter what.
    I too bleed all the time but the darn dr. kept putting the surgery off..because I was so young..
    so please everyone don't think with everything gone your ok. your not..

    keep going to your dr.

    keep healthy everyone..
  9. shelbo

    shelbo New Member

  10. shelbo

    shelbo New Member

    week and I need to arrange one but I am such a baby! Does it hurt? TIA Shelbo :)
  11. optimistic1

    optimistic1 New Member

    How can we thank you enough for caring so much about us? We are so sorry you have to wait for your surgery and of course the findings.

    I have had a complete hysterectomy. I realize that this is not what you want. But the main thing is that they will get all of the cells if they are questionable. We will pray that this is so.

    I hope this 2 week period passes quickly for both you and your husband, and again I thank you for all of us for your very generous and wonderful post. We must get to the Doctor!

    Much love,

    Arlene
  12. achy

    achy New Member

    As far as my "symptoms". I had heavy bleeding....things were normal one month, then the next month I had to use a Super Plus Tampon AND an overnight pad every 2 hours!!
    I let this go on for 3 years!! DON"T...get checked.

    I had abdominal aches...nothing bad, not sharp, just little twinges here and there, esp. around my ovaries.

    the final thing that got me in to doc...an icky, slimy brown disharge. Not like what you have at end of period.
    It was not constant, it came and went. Even when I went to gyno the first time and had the pap she tested it and it showed yeast!!! And, the yeast meds stopped the discharge!!
    But it came back, and I was sick of dealing with this "stuff"....I called for another appt and the tests.

    Anything unusual needs to get checked out. A pap test does not hurt!! it takes 3 mins.

    Stop making excuses and go....go on...pick up the phone!!

    Love ya'll
    Calla aka Achy