Last chance before I see the doc

Discussion in 'Fibromyalgia Main Forum' started by lisjhn, Dec 9, 2002.

  1. lisjhn

    lisjhn New Member

    Any questions I should bring up?

    I'm going to see an internist/immunologist/infectious disease specialist tomorrow afternoon. I guess in the phone book he's a little of all three.

    I'm really really scared because I feel this is my last chance to try and find what's up with my system and to fix it, otherwise I'll have to live with the pain and misery which I cannot do anymore.

    Still looking for anyone who's been to one and what tests they do. Also anyone who hasn't and if they could, which tests/illnesses would you bring up?

    Wish me luck.

    ~LISA
  2. lisjhn

    lisjhn New Member

    Any questions I should bring up?

    I'm going to see an internist/immunologist/infectious disease specialist tomorrow afternoon. I guess in the phone book he's a little of all three.

    I'm really really scared because I feel this is my last chance to try and find what's up with my system and to fix it, otherwise I'll have to live with the pain and misery which I cannot do anymore.

    Still looking for anyone who's been to one and what tests they do. Also anyone who hasn't and if they could, which tests/illnesses would you bring up?

    Wish me luck.

    ~LISA
  3. pam_d

    pam_d New Member

    I'm sorry, I've never been to one of those! Seen just about every other kind of doctor. Right now, I'm seeing an allergist, who's been testing me for food allergies, metal toxicity, yeast overload, etc., to see if any of this plays into my FM symptoms. I would love to know what kind of tests an infective disease/immunologist DOES do, so please let us know how you make out. I'm sorry I can't be of any help; I'm hoping someone else here has more knowledge about this type of MD for you.

    Good luck,
    Pam
    [This Message was Edited on 12/09/2002]
  4. karen2002

    karen2002 New Member

    I'm not sure I should even post, tonite, as this has been a poor week or two. I would like to tell you the infectious disease specialist I saw was tremendous, but such was not the case. I have began seeing him in June this year, and my last appointment with him was the end of November. From the beginning he told me depression, and he has stuck to his guns on this diagnosis, throughout. I have managed to get him to run the tests I thought necessary, (to rule out other possibilities for my symptoms). I asked for the appropriate tests from the research I did on my own.
    My last appointment resulted in a prescription of Elavil, which I did not fill.
    The second appointment I had with him, I mentioned Fibro. His reply? "95% of people diagnosed with Fibromyalgia, are simply depressed people." I knew at that point, I would have to be my own advocate, and simply have used him from that point on to run the tests I deemed appropriate, to rule out all other possibilities, as this is diagnosis is one of exclusion. I never mentioned fibro to him again.
    Karen
  5. lisjhn

    lisjhn New Member

    I don't know if I wanted to hear that Karen, but I asked for it and I've had many docs like that already. I'm so sorry that they didn't help you, but what's new, right? Ughh..

    Now I'm really scared and anxious because I was gonna admit to him that now, finally, yes, I am getting a bit depressed. Now, after what you said, I don't know if I should say that or not. He might not go any further. Just give me some anti-deppresants...

    Well, the reason I actually got the appt. was because I asked my PCP (HMO) to do tests on my immune sytsem and to test for the HHV-6 virus among others. She wouldn't do it, just stalled for time, then finally got her to give me a referal.

    So hopefully he can do those tests and answer some of those questions for me. I am scared shitless now because I've been to all other kinds of docs (except allergist) and don't know what I'll do if it goes bad or if he's a jerk or can't help.

    OK, I'll calm down and not try to play it out in my head already. I am bringing a friend, thank god.

    ~LISA
  6. karen2002

    karen2002 New Member

    Oh...darn..now I've done it! I wasn't trying to freak you out. I am still going to conventional specialists because I can with out payment.....therefore I can get my testing done etc. Thank goodness I have found an integrated doc who specializes in fm/cfs. I pay for that out of pocket though.

    I don't expect much when visiting the others anymore....but they do serve a useful purpose.

    There are more joining the conventional ranks who are believers in this syndrome---I will be praying that this appt. tommorrow...will be a beneficial one for you. Will you post when you get home?

    Karen