Latest test results (EBV, HHV6, Mycolplasma)

Discussion in 'Fibromyalgia Main Forum' started by lbconstable, Oct 18, 2006.

  1. lbconstable

    lbconstable New Member

    Hi all,

    A year ago June I had test run that showed elevated IgG antibodies for EBV, HHV-6, and mycoplasma.

    After over a year of Heparin, Doxycycline (Vibramycin), and Transfer Factor my recent lab reports show Mycoplasma titers in range. Glad to know that's working. However the titers for the two virus' have actually increased a little bit. I'm a little discouraged, however I don't really know if these test results mean the program isn't working or if it needs to be tweaked or what???!

    Any thoughts would be much appreciated.

    Love & Light!
  2. spacee

    spacee Member

    Same with me. Nothing has budged the EBV. No one tests me for the HHV6 any longer. I have been sticking with my local pcp and not going to the specialist.

    I have not taken heparin (doc won't order it). But I have been on minocycline and the Immune Transfer C.

    I don't have any ideas on what to help. But I am feeling alot better so I am happy for that.

    Hugs!


    Spacee
  3. lbconstable

    lbconstable New Member

    Thanks for the reply and the Hugs!

    I'm feeling better too. And am thankful. Would love to be in complete remission. But any measure of relief is a good thing.

    My doc gave me the option of minocycline or doxycycline. How has the minocycline been for you? How long have you been on it? I haven't had any sun problems with the doxy, but it does upset my stomach a little.

    How come they won't test for HHV-6 anylonger? Were your titers very high? I ve been on Tranfer Factor Blend 100.

    How come doc won't order Heparin? I know it can be dangerous if dosage isn't quite right. Is it something you'd want to try? It really helped me feel 100 times better. But I wish I could go off it now. Shots are a pain. We're trying sublingual delivery now to see if we can get away from shots.

    Love & Light
  4. spacee

    spacee Member

    1. My doc won't precribe heparin because I have a low platlet count. (If only my doc could understand that the platlets are probably all collecting together and the heparin would help.) But I am going to order Nattokinase with my next order from Prohealth and approach it that way. Takes longer but probably is safer for me.

    2. I was on the Marshall Protocol and they use minocycline. That is the reason for that. I had to stop because of family issues. I find for me the Mycoplus Transfer Factor that Rich Carson uses gives me the same feeling of herx that the mino did...without abx. I had a C. Diff overgrowth in my colon from an antibiotic and neither my doc nor I really want to go the abx route....

    I am 56, I have a very good quality of life. The TF's do SO MUCH for me...man, if they had only had them 20 years ago. So I am happy where I am and looking to get better with more natural approaches such as juicing. I think the Marshall Protocol was my last major attempt at total health :)

    If I were your age...I would be wanting total health. And I think you are on your way!! I certainly hope so for you! Those are precious little girls you have. They remind me of my two nieces. (Brunettes too). My three sons are all in college and we did ok despite the CFS. They never thought of me as sick. I am grateful for that.

    Isn't this a great board? Even though I say I won't go for a total cure...who knows!

    Tc.

    Spacee

  5. lbconstable

    lbconstable New Member

    Hi Spacee,

    Thanks again for the reply. What a journey you have traveled so far! I wish you continued success.

    I'm interested in starting to juice too. I saw a juicer at Costco (warehouse store here) for $169.00. Jack Lalaine brand. Thought maybe I would look on ebay. Do you have any thoughts on the best type of juicer?

    I'm also considering Elaine Gottshall's Specific Carb Diet. I found the info when I was looking up Rich Carson's dietician, Dale Figtree. Ironically she goes to the same vetrinarian that I go to. I live in Santa Barbara where ProHealth is based. Would love to see her, but currently finances are not unlimited.

    I'm going to have to research the transfer factor that you've just started taking. My MD is going to call ProHealth about my current results too. So we'll see. I did herx when I started the TF I'm taking now. But I haven't had a herx in at least 6 months.

    I am so proud of my girls. Thanks for noticing! Loved the photo in your profile. Is that taken in Italy? I was able to visit Italy when I was still single. What an incredible place!

    Love & Light
  6. spacee

    spacee Member

    The pic in my profile is from Istanbul. My youngest son was there this summer. I am so glad you got to see Italy when you were younger...before the CFS. If there was a place I would like to see now, it is Italy. I spend so much money on the TF's and my husbands and son's meds plus mine, I just don't know if it is in the future.

    While the targeted TFs are about $150 a month, Mikie has taken the Immune C straight for 3 months and then pulses it by taking only two capsules every six weeks. That really brings the cost down. Too bad, that didn't work for me. I think I can get by not taking it for a month every 3-4 months but that is about it.

    The Mycoplus costs about the same but I am pulsing it. Right now I take it about 3 days a week The first herxs were quite strong with deep sleeping and chills but now they are mild. Yet, I feel stronger physically.

    The juicing. No, I have not begun to look into it. I may wait until after Christmas. My sis will be here for a month....she is my "brain" and together we might come up with a good choice. I wrote down the woman you mentioned. I have finally started a notebook on treatments that I want to check into... juicing, natto, Olive Leaf Extract. I find otherwise, they slip my mind until sometime later someone posts about them. :)

    Oh, I wanted to tell you about Enada nada that is sold at Prohealth. I took it for a number of months because of the D-mannose in it has helped my bladder woes terrifically. Keeps the bacteria from adhering to the lining of the bladder. I didn't think it did too much for energy or mental clarity.

    Well, I finally stopped drinking pepsi and I didn't need the Enada. My bladder was better since I wasn't putting the acidic pepsi in it. Well, my mind turned to mush and I thought...oh, no, I won't be able to drive to Orlando or Tampa. Well, one of my sons and wife were flying into Orlando and I had to "make an airport run" so I took THREE of the 5 mg Enadas. Man, my mental clarity was incredible for that day and the next.

    Then, I remembered that I always took 3 tablets when I traveled with my sis and I was able to keep up with her for 4 days. I thought all the pepsi and coffee I was drinking was keeping me awake and the Enada was keeping my bladder neutral...but the Enada was really helping my mind and energy.

    I know you are suppose to take it everyday as it builds up but to keep costs down, I am saving it for just the times I need it. But, this is kind of funny...after spending a nonstop 4 day weekend in Boston with my sis and kids, I got to my sis's house and slept for 36 hours straight...only getting up to eat. So, I would say the Enada only gives me four really good days, then I have to "recharge".

    Enjoy those girls....puberty is coming!!! lol

    Spacee