LDN/Progress Update

Discussion in 'Fibromyalgia Main Forum' started by MicheleK, May 30, 2012.

  1. MicheleK

    MicheleK Member

    I have been taking LDN now for 7 weeks. I am getting some cool results, though they are not the results I was supposed to get.

    In 7 wks. I have lost my allergy to Tramadol and Codiene. I can take a dose of whichever one I feel I need once a day (not within 6 hours of the LDN) and I do not react. I have reacted to codiene all my life. And the last 3 years I've had to take an allergy pill to take a pain pill. So no more of that!

    Also since my second son was born 33 years ago, I have had to take a water pill every day. They made some mistakes when they did my cesarean delivery and ever since I've needed a water pill. If I skipped 2 days I would gain ten to eleven pounds in those 2 days. It made me feel very sick and since it mostly collected in my abdomen, hard to breathe.

    I noticed 2 weeks ago that I wasn't retaining fluid in my tissues and I went 6 full days without having to take a water pill! This week the same thing! This after 33 years!!! Amazing!

    I have no idea why, but LDN is an immune modulator and allergy is evidently being helped plus for whatever reason I needed the water pill it is correcting that reason. I'm thrilled.

    Will keep you all posted.

    Oh and I have amazing, adventurous dreams all night sleeping. It's actually fun to go to sleep. lol
    Hugs,
    MicheleK
  2. spacee

    spacee Member

    I have always read that one could not take tramadol with LDN but you have as long as it is 6 hours apart?

    I tried the LDN but had to quit because of need the tramadol. I felt like the
    LDN was doing something really good and I hated to quit it.

    Please tell me anything more about the LDN and Tramadol!

    Thanks so much!!

    Spacee
  3. deepak

    deepak Member

    There was a big discussion on another board re this and most thought it was ok to take both as long as 5-6 hours apart.

    Michelek- have you noticed any change in the pains and fatigue ? I have stopped LDN for a week - am waiting for my anti candida supplements to come. LDN aggravates yeast and I am getting a lot of bloating so I thought I may have that.


    Love,
    Deepak
  4. deepak

    deepak Member

    There was a big discussion on another board re this and most thought it was ok to take both as long as 5-6 hours apart.

    Michelek- have you noticed any change in the pains and fatigue ? I have stopped LDN for a week - am waiting for my anti candida supplements to come. LDN aggravates yeast and I am getting a lot of bloating so I thought I may have that.


    Love,
    Deepak
  5. MicheleK

    MicheleK Member

    Hi ladies, Yes, you can take Tramadol or an opiate it just has to be not within six hours of your LDN dose, before and after. There is a window of opportunity for pain medication during the day.

    There is a group called "The LDN Research Trust". They are the most up to date group on LDN. The originator of the group has interviewed tons of Drs. who have used LDN for years. They have a YouTube channel with the same name. In a couple of those videos the subject of both pain medication and steroid use comes up along with LDN.

    The thing about LDN is there is so much misinformation out there on the internet about it. People repeat what other people told them etc. I left a couple LDN groups because that's the way it was. It would make your head spin. Also some love to claim it can cure everything, which is not reasonable and there is no evidence of that at all.

    Even my own doctor who put me on LDN didn't know I could take the pain medication. I did the research and I informed them so other patients wouldn't give up on trying LDN. Pain is a big issue for those of us with M.E, CFS, or FMS. I'd give it another try.

    The idea that you cannnot take opiates came from it's original dosage and use in addicts. When Low Dose Naltrexone began to be used as an immune modulator in very small doses, (doses for addicts is 50 to 300mg. Doses for immune system issues is .5 to 10mg with 3mg being standard for MS and 4.5 mg usually for other illnesses.) It took a while to figure out where, how and for how long the drug was active in the brain after a dose. Added to that is the lack of accepted research by mainstream medicine and it's a recipe for utter confusion.

    I hope this information helps others out there who might benefit from LDN in some way. Some do benefit and some don't, just like any other treatment.

    Hugs,
    MicheleK
  6. MicheleK

    MicheleK Member

    By the way, I forgot to mention. I take 150mg of Tramadol or if the pain is beyond what that can do I have Oxycodone which I take a dose of 30mg. These are higher doses but the timing of them does not block the LDN.
  7. deepak

    deepak Member

    Michelek- have you noticed any change in the pains and fatigue ? I have stopped LDN for a week - am waiting for my anti candida supplements to come. LDN aggravates yeast and I am getting a lot of bloating so I thought I may have that.


    Love,
    Deepak
  8. MicheleK

    MicheleK Member

    Hi Deepak,
    I have pain off and on. When I do have it it's strong pain. Then I will go for days with no pain, just a little aching which I mostly contribute to having to always be sitting or laying around due to the M.E exhaustion. I really think if I could move around more often I would have little pain. The body needs to move!

    I do not have any yeast problems and never have in the 20 years I've been ill and tested routinely. I am grateful to that since overgrowth of yeast can cause so many yucky symptoms. I hope you will feel better soon friend.
    Hugs,
    MicheleK
  9. MicheleK

    MicheleK Member

    Great question jam. Simple answer might be that M.E is a neuro/endocrine/immune disease recognized by the World Health Organization. CFS is the name that the CDC made up to describe a fatiguing illness that most think is actually M.E. The CDC covered up the severity of the illness when there were outbreaks across the country in the 80's. It was the same time as the HIV/AIDS outbreaks.

    Is M.E and CFS the same illness? We don't know definitively since there hasn't been enough research done.

    Most specialists who have treated CFS for a quarter century now, do beleive they are the same illness. They see the severity of it day in and day out. They also believe many patients who have been diagnosed according to the criteria put out by the CDC may actually have other health issues and not true CFS or M.E. Further research and time will tell.
  10. deepak

    deepak Member

    Thank you Michelle for your warmth :)

    One thing is for sure - the days I take LDN - I just feel so much better mentally and happier. When I get up in the morning it seems so much more "normal" .

    I am going to restart it soon and persist for a while since so many people report such good effects with it.

    Hugs.
    Deepak