Letter I wrote to my congressman

Discussion in 'Fibromyalgia Main Forum' started by lilac123, Nov 16, 2005.

  1. lilac123

    lilac123 New Member

    Bumping this for onnaroll. Hope you find it ok.

    Dear Mr. Hurn:

    Thank you for your prompt response to my letter concerning my Social Security Disability.

    I will try to give you a brief history and description of my situation.

    In January of 2003, I took classes to become certified through the state as a Nurse’s Assistant. I have always loved working and volunteering with the elderly and had found my niche in life. I was working for a Private Home Health Care Agency and my primary patient was a Gentleman with End-Stages Alzheimer Disease. I had been with the family for approximately a year working 4 hours a day, 5 days a week. I started noticing extreme pain in my lower back and tailbone. I would come home completely exhausted feeling like I had a bad flu virus or something. I made an appointment with a Chiropractor and received a couple of treatments. I thought this would help and I could continue as normal. After no relief from treatments, he ordered x-rays of my back. After he reviewed the x-rays, he said my back was a total mess due to Osteoarthritis and Degenerative Disc Disease and he could not help me. At this time I started seeing my Family Doctor who suspected a soft tissue disease and Myofascial Pain Syndrome, Fibromyalgia and Coccyndia on top of the other diagnosis mentioned above. I went through MRI’s, Blood tests and test after test. At this point my daily pain and exhaustion made it impossible for me to continue working. I had already become totally unreliable and had to miss days due to my pain and exhaustion. I continued going to the Doctor and was referred to a Rhuematologist who specializes in my Conditions. My Primary Physician had prescribed all different kinds of pain medications. I must have tried 6-8 different ones until we found something I could tolerate. The Rhuematologist started me on a Morphine treatment that is time released so I don’t have to take so much of the other narcotic pain medications. I continue to see him once a month.
    I have always been able to work, I am an educated 40 year old white female. I have always found much satisfaction in volunteer work and helping others. Since all of this started I find that I need the help now. I would have never imagined I would be in this position. As a very athletic, active person to becoming an invalid. The most basic activities of daily living are a major chore for me now and I live in constant pain even with the medications I take. My favorite things to do are no longer possible. This has all been a major adjustment for me and very depressing.
    I realize Social Security has to go through their processes because of fraud and less than honest people. But, I am not one of those people. My medical records show that this is all very real and true. Being the kind of person I am, if there was anything at all I could do to earn an income, I would be doing it. Unfortunately, I am not able. As I said before, the most basic things, (cooking a meal, bathing, taking care of household chores, etc.) can put me in bed.
    All of this has become very stressful for both me and my husband. He has had to take full responsibility of our income. Due to the cost of my medications and all of the medical bills, we barely get by and are very behind. I may be looking at bankruptcy if there was a way to not damage his credit. The dreams we had of buying the farmhouse we live in and renovating have been set aside. We are very honest, frugal people who are watching our dreams fade away due to my illnesses. I have to borrow from my 82 year old Grandmother to get my medications some months. This is just not right.
    I am just asking for help from somewhere that this process can be speeded up and found favorable for me. It has become an emergency situation for me financially. If there was anything I could do to earn my own way, I would already be doing it. It would be much less stressful than this whole process.

    Thanking You in advance for your help and consideration.


    LISALOO New Member

    It gives me ideas on how to write my letter. It's a very good letter

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