Discussion in 'Lyme Disease Archives' started by victoria, Nov 27, 2010.

  1. victoria

    victoria New Member

    FYI from GA LYME at

    I excerpted the important parts of this great post from the group. There are several good links/references below in this post)

    ... Dr. Jim Oliver at GA Southern has over 275-300 strains of Borrelia burgdorferi in his lab alone, and discovered 2 new SPECIES. So how many of these are not being detected by the limited tests? In Scotland, when they added regional strains and species to a Western Blot, it increased the test's sensitivity.... There are hundreds of strains and several species of Lyme disease bacteria (Bb, there are 6 here in the U.S.). They only use a single Northeasternstrain (B31) for the tests.

    When they used to use whole cell sonicated borrelia/WCSB for the tests, many Southerners with rashes tested positive for Lyme following lone star tick bites (see Dr. Master's old research papers). But when they changed the tests and no longer used WCSB, a large portion of patients no longer tested positive. That doesn't mean they're not sick or don't have LD.

    A recent Johns Hopkins study showed that current testing MISSED 88 OUT OF 200 patients! That is close to HALF! Expecting a Lyme patient to always test positive is totally unreasonable. This excellent article about Lyme testing by scientist Tom Grier (who was misdiagnosed with M.S. before he discovered he had Lyme) is very helpful:

    Here are 103 peer-reviewed, scientific abstracts PROVING "seronegative" disease: ...

    ...Patients should never be left to suffer, just because the tests stink.

    A final one that amazes medical folks is the Persistent Lyme/PL research report-it may also help you convince your doctor to try further treatment. ...

    All patients may wish to share these articles with their medical providers... especially here in the South. Many doctors aren't seeing these studies –(&)– they are astounded by the amount of medical and scientific literature about Lyme that is NOT reaching them.

    So this is something very important we can all do to help. (We) encourage you all to print out these research papers and leave them with your medical providers.

    Hope this helps a lot of people...

  2. Nanie46

    Nanie46 Moderator

    Thanks, Vicotoria!

    I think this info will help someone for sure.