Lisapetrison question re DHEA

Discussion in 'Fibromyalgia Main Forum' started by Gretchen12, Jan 12, 2007.

  1. Gretchen12

    Gretchen12 New Member

    What is "micronized" DHEA? What brand do you use? And,
    how much do you take?

    I saw a wonderful doctor on Charlie Rose the other night who said DHEA was very helpful for most people, with no deleterious side effects.

    I very much appreciate your thread on adrenal support.

    Will write more in the morning when I am more coherent, but I couldn't wait to hear your answers re DHEA. I really want to try this.

    Thanks,

    Gretchen
  2. Slayadragon

    Slayadragon New Member

    Micronized DHEA allows better and more consistent absorption (so that you know exactly how much you are getting).

    The package will say if the product is micronized. If it doesn't mention it, assume that it is not and buy something else.

    Most good brands sold in health food stores have micronized product, insofar as I have noticed. Many brands sold in drugstores do not.

    I use Pure Encapsulations for many of my supplements, including DHEA. It is supposed to be sold only through doctors' offices, but it is also available on the Internet.

    When I first got my adrenals tested, my DHEA level was about 1/10 of normal for my age and gender. It took 50 mg to bring my level to normal. At that dose, I felt much much better both physically and emotionally. If the world starts to seem totally overwhelming and too much to bear (especially if I've recently experienced a lot of stress), I suspect that DHEA is a problem.

    Over the years, I have used a great variety of means by which to strengthen my adrenals. (The most important measure is stress reduction---I do a moderately good job at that one.)

    Recently I seem to have moved to a point where my adrenals seem to be functioning pretty well on their own (with the help of some adrenal glandular).

    While I am herxing on the Famvir, I have benefited from taking 10 mg to 25 mg per day. (AV herxing really stresses the adrenals!)

    The rest of the time (including when I have cut back to a half dose of Famvir and stopped herxing), I do not seem to require any DHEA at all these days. I am having a blood test done to make sure, though.

    If I take any DHEA when I'm not herxing, I immediately start to get a bit of hair on my chin. (Oily skin and pimples are other signs of excess DHEA supplementation.) However, it could be that the DHEA is converting to testosterone and that my estrogen levels are not sufficient to cover it. Hopefully that will be clearer after I get my test results done.

    You really should have your DHEA levels checked before proceeding with this. I have worked with four different good doctors on DHEA and have a fairly good sense of it, and yet getting fairly regular tests to see how I'm doing is important to me.

    If you absolutely cannot find anyone to do the test, I suppose you could consider starting with a very small amount of DHEA (e.g. 5 mg) for a week or so and see how you feel. If you felt okay/good and didn't get those excess symptoms, you could try going up 5 mg at a time until you felt like you were getting maximum benefit or symptoms of excess.

    This one really should be tested if you can possibly find someone to do it. However, I believe that DHEA is important enough for CFS patients that very careful pursuit of it may be worthwhile if tests are absolutely inaccessible. If you must go this route, read up on the substance to a high degree first.

    Testing first is far preferred though.
  3. Slayadragon

    Slayadragon New Member

    I have never seen 7-Keto DHEA labeled as "micronized," even on brands where the regular DHEA is labeled as "micronized."

    My guess is that when they alter it so that it doesn't convert to testosterone and estrogen, they make it more absorbable as well.

    Thus, it seems that checking the label for the word "micronized" only needs to be done when buying regular DHEA.
  4. Gretchen12

    Gretchen12 New Member

    Thanks for your quick response. Yes, I do agree that this should be tested by a doctor and I will have my endocrinologist do the test. I am fortunate in that my daughter and SIL are both cardiologists, so I do have good access to doctors who are willing to try to help by testing for whatever I bring up with them regarding this disease.

    The problem is that there are no CFS specialists in the Houston area. In the vaunted Texas Medical Center there is really no one who specializes in this disease. Most in the medical profession still do not believe this is a "real" illness. So, I have to do the research myself and bring articles to them to read re this illness.

    I so wish I could just turn myself over to someone to help me with this illness, but I have found that this is not possible. I have found belatedly that you really have to be your own advocate or you will fall through the cracks, so to speak.

    I am very weak, fatigued, and in so much pain right now--in a monumental flare from Xmas. Even doing so very little just completely did me in.

    I so agree with you that stress of any type is the WORST.

    I taped the Charlie Rose program and will watch it again this evening and report exactly what was said.

    Too exhausted to write more now.

    Many thanks,

    Gretchen
  5. Slayadragon

    Slayadragon New Member

    I will watch for your report about the Charlie Rose program.