by Linda Crowhurst Eastern Daily Press June 25th 2008 p. 18 (may be reposted) All ME sufferers in Britain and around the world will draw hope from Kevin Short ‘s momentous victory in court (Norwich ME suffer wins court ruling EDP June 19th 2008). I am severely affected and my ME needs go completely unmet in Norfolk. Luckily, I have a very supportive GP, who knows that my condition is neurological, but his hands are tied when it comes to referring me to consultants, because there is not the interest nor the knowledge nor the understanding or the availability of biomedical clinicians to treat me. I am left with virtually nothing, no hope and worse, no biomedical understanding to ease the pain, the paralysis, the numbness, the digestive, the autonomic and endocrine issues : the fifty plus physical symptoms that I experience . The level of sickness in severe ME has been compared to that of an AIDS sufferer two months before death or a terminally ill cancer patient and I have been like this for almost fifteen years, while all that NICE is prepared to recommend is useless “activity management”; without dealing with the underlying disease. I need proper tests, treatment and advice on specific symptoms and issues. I want to be able to access services in Norfolk, as any other person with a chronic illness is able to do.