Discussion in 'Fibromyalgia Main Forum' started by ACYPHERT, Dec 19, 2002.


    ACYPHERT New Member

    I have been diagnosed with CFIDS. My family doctor has been treating me to the best of his ability. However, I continue to get progressively worse and am now reveiving medications to counteract the side effects of the medications. I am looking for a Doctor, preferably in eastern OH or western PA, who is willing to try some alternative, nutritional, and physical therapies in addition to prescribing medications to treat the symptoms. I have been contacting local support groups and CFIDS organizations, but have not been successful. Does anyone have any suggestions for locating a doctor or better yet have one they recommend?
  2. karen2002

    karen2002 New Member

    Looks like you have lots of good choices. Please be willing to drive a distance to see a good one! Having a FM/CFIDS specialist can make all the difference in the world!
    Best wishes,


    Canton, OH
    Mark J. Pellegrino, M.D.
    3801 Whipple Ave NW
    Canton, Ohio,
    Tel: (330) 492-7500
    (FM - Rehabilitation Specialist. Dr. Pellegrino has FM, and is an inspiration to his patients. He is the author of several wonderful & instructive FM books published by Anadem (800) 633-0055.)

    Cincinnati, OH
    Dr. Hal Blatman
    10653 Techwoods Circle, Suite 101
    Cincinnati, OH 45242
    Tel: (513) 956-3200
    (Dr. Blatman has committed his practice solely to patients with FMS/MPS. He studied under Dr. Janet Travell, of Travell & Simons, considered pioneers in the science of myofascial pain and trigger point therapy. Please see the following URL for more info on him -- http://www.chronicpainsolutions.com/contributors.htm

    Author Dr. Devin Starlanyl, with whom you may be familiar, is also a patient of his -- she sent me to him! I make the journey from Nashville, TN to see him, and she travels from Vermont! Pls contact Dr. Starlanyl before using her name, though: devstar@sover.net. Dr. B is the best FMS/MPS doc I've ever heard of, much less seen! He and his staff are exceptional!

    J. Turner Carson, M.D.
    9686 Cincinnati-Columbus Road
    Cincinnati, OH 45241
    Tel: (513) 777-2888
    (Note: Dr. Carson is self-referred to the list. "Have had and cured FMS. Treats the seldom looked for but common causes of FMS/CFIDS: aldehyde toxicity, adrenal insufficinecy, and yeasts. Recording of live lecture on nutritional treatment is available.") Web page: http://home.talkcity.com/karmaway/drtcarson/index.html

    Judy M. Schwartz, Ph.D.
    10653 Techwoods Circle, Ste. 101
    Cincinnati, OH 45242
    Tel: (513) 874-1711
    (Dr. Schwartz has a Ph.D. in Psychology and has post doctoral training in Neuropsychology (at the Menninger Clinic) and the fields listed: neurofeedback and Thought Field Therapy. "Uses EEG/Neurofeedback, Biofeedback and Thought-Field Therapy to treat fibromyalgia.")

    Cleveland, OH
    Dr. Julio Aponte
    18099 Lorain Ave., Suite 208
    Cleveland, OH 44111
    Tel: (216) 252-6282


    Emporium, PA
    John G. Hipps, M.D.
    Primary Care & Occupational/Environmental Medicine
    P.O. Box 243
    Emporium, PA 15834
    Tel: (814) 486-2084
    E-Mail: cntrydoc@penn.com
    Web site: John G. Hipps, M.D.

    Fairless Hills, PA
    Steven L. Katz, D.O.
    Infectious Diseases
    Oxford Crossing, Suite 510
    333 N. Oxford Valley Road
    Fairless Hills, PA 19030
    Tel: (610) 239-9044
    Fax: (610) 239-5944
    (CFS & FMS. "Initial evaluation generally takes about one and one-half hours with follow-up visits as needed that last about one hour. Accepts most insurances. Complete assessment in which social, biological and emotional factors are addressed deeply followed by traditional as well as alternative treatment strategies.")

    Glen Mills, PA
    Joseph R. Bellesorte, D.O.
    2 Woodland Drive
    Glen Mills, PA 19342
    Tel: (610) 558-8225
    Fax: (610) 558-8210
    ("Dr. Bellesorte is one of the best. He has a great deal of experience treating CFS patients.")

    Mechanicsburg, PA
    John M. Sullivan M.D.
    1001 South Market Street
    Mechanicsburg, PA 17055
    Tel: (717) 697-5050
    ("Excellent in treating cfids, and other enviromental illnesses. He has a full caseload of patients but is taking names of people to put on the waiting list. He is definitely worth waiting for!")

    Pittsburgh, PA
    Thomas Burk, M.D.
    1400 Locust Street
    Pittsburgh, PA 15219
    ("Dr. Burk is an Internist and is new to the practice of Campbell and Philben. He is willing to learn about CFS and knows some basic therapies for CFS/FM. He is open to trying different therapies that you might request.")

    Plymouth Meeting, PA
    Steven L. Katz, D.O.
    Infectious Diseases
    531 W. Germantown Pike, Suite 201
    Plymouth Meeting, PA 19462
    Tel: (610) 239-9044
    Fax: (610) 239-5944
    (CFS & FMS. "Initial evaluation generally takes about one and one-half hours with follow-up visits as needed that last about one hour. Accepts most insurances. Complete assessment in which social, biological and emotional factors are addressed deeply followed by traditional as well as alternative treatment strategies.")

    Pottstown, PA
    Dr. Paul P. Doghramji
    1590 Medical Drive
    Pottstown, PA 19464
    Tel: (610) 326-7820
    (Referred by CFS group. Family Medicine)

    Quakertown, PA
    Dr. Harold E. Buttram
    Woodlands Medical Center
    5724 Clymer Road
    Quakertown, PA 18951
    Tel: (215)536-1890
    (Referred by CFS group.)

    Willowgrove, PA
    Dr. H. James Day
    2701 Blair Mill Road, Ste. 16
    Willowgrove, PA 19090
    Tel: (215) 443-8625
    (Referred by CFS group. Oncology/Hematology. Affiliated Temple and Abington Hospitals)


    ACYPHERT New Member

    Thanks for the info. I have the lists and have been calling, but have been finding that some doctors will not treat patients out of state. I was hoping someone had experience with a doctor they could recommend. I will go whatever distance I need as long as I have someone recommending the doctor. Otherwise, it is like picking a name out of the phone book.
  4. karen2002

    karen2002 New Member

    There is a way you can take the guess work out of picking a name out of the phone book. Interview the receptionist each time you phone a new Doc on the list---don't call with the idea of making an appointment. Call to gather information. Honestly, I did this and it works....really narrows the list down.

    Ask how many fibro/cfids patients they are currently seeing. The larger clientele....the more experience, and usually research they keep abreast of...
    Ask about treatments you are interested in....
    A biggie for me was integrated treatment....I have to have conventional meds (pain meds, bp meds, sleep, etc.) plus wanted the benefits of alternative meds and treatments.
    Write a list of the questions, and give it a go....you can knock out quite a few, that you would have wasted your time and money on.
    Office staff is important--You can usually find attitudes carry over onto the receptionist.
    I found my Doc this way, not only is his staff great, but he is too! By the way....most on these list are patient referrals---the patient comments are in quotations. Some doctors on the list are self referred, and those are noted as well.
    Good luck,
    [This Message was Edited on 12/19/2002]
  5. Shirl

    Shirl New Member

    Hi, welcome to the board. I think Karen has given you about all the advice that anyone could, unless there is a member here in your area that can share a doctor with you.

    Just stopped to welcome you, and wish you the best in finding a doctor. As for a Support Group, you could call the Arthritis Foundation in your area. They should be able to help with a local group.

    Again, welcome to the board.

    Shalom, Shirl
  6. garyandkim

    garyandkim New Member

    But, he is near Phila. We and others here see him. It's Steven Katz. He has been great for us and others we know. We have CFS and FMS and more.

    You can call and or see different docs and interview them to see if you like them and their treatments approach that is how we found Dr. Katz and he talked to us on the phone for over an hour before he even saw us.

    Good luck in your search and welcome.

    Gary and Kim
  7. Jasmine

    Jasmine New Member

    I have been seeing Dr. Poesnecker of Quakertown, Pennsylvania for the last three years and I highly recommend him. He does ask that his patients read the book Chronic Fatigue Unmasked and take an Adrenal Stress Index Test before coming in to see him. He also has a reasonably priced sanctuary for patients to stay since people come from all over to see him. I am driven down from Connecticut to see the doctor and he is wonderful. He's the only doctor who has helped me with my Chronic Fatigue and Fibromyalgia. He has a wonderful website also.

    Love, Jasmine
  8. Carlacat

    Carlacat New Member

    he is in Canton OH and he is very good cause he has it himself and if you live close to him, they even have their own theorpy right there. I wish I lived closer, its a 2 1/2 hr drive for me and I also live out of state in WV so they do take out of state patients. It costs me 200.00 up front then they bill your ins co(my ins co paid 100%)so they sent me a check for the full amount so I didnt end up paying anything in the end.

    ACYPHERT New Member

    Thanks for the info. I called Dr Pellegrino last week since I only live 1 hr from his office in OH. I live in PA and he told me he was not taking out of state patients. He would give me an initial consultation, but would not prescribe any meds or treatment if I was out of state. I will have to call him back again.
  10. crimsontide

    crimsontide New Member

    I live in Eastern Ohio and see a good Doctor in Wheeling. I don't know how far you are from Wheeling but I wanted to let you know about this great doc. He is very caring and genuine, something that seems to be less and less common among doctors these days. I found him through the Wheeling support group and am incredibly grateful to have him as my doctor. His name is Dr. G.P. "Jeep" Naum III and he is at the Wheeling Clinic.
    lee ann