Locating a Dr. who knows about FM/CFS and cares

Discussion in 'Fibromyalgia Main Forum' started by scootersrosie, Jan 29, 2003.

  1. scootersrosie

    scootersrosie New Member


    I am new to this website, but not new to FM/CFS, etc. I recently moved to Largo, FL, which is near St. Petersburg, and am trying to find a Dr. that is knowledgeable and willing to be helpful in providing the correct information regarding my SSDA case. I filed in 2001 and have been denied twice in the state of PA. When I moved to FL I contacted a lawyer to work on the appeal; that was 9 mos. ago. If anyone from this area has any referral I would greatly appreciate it. I do have a family Dr. here but I have so many problems it would take more time to discuss everything than I think he wants to hear. One 5 min visit, and he seems only willing to discuss one problem at a time. This is so hard as they are all connected in one way or another. Thanks again.

  2. teach6

    teach6 New Member

    Go to the top of this page and click on the purple button that says Doctor Referral. This will take you to a page with a list at the top. Click on Co-Cure Good Docs List. This will take you to a website which keeps a list of doctors who have been recommended by their patients as being good with FM and/or CFS.

  3. CATLADY912

    CATLADY912 New Member

    My Rheumy doctor really cares. He specialist in Fibro and he has been very good to me the two times I have been so far. He takes his time with you and discusses everything with you, but he is in Greenville, N.C. His name is Dr. Randal WHite. If you are ever up this way, let me know and I will direct you to him. Good Luck.

    Many Blessings.
  4. little

    little Member

    I moved here four years ago from Largo. I miss it terribly. My daughter was transferred here. I'm trying to get her to move back. She misses it to. Especially the beach. I went to a pain clinic in Clearwater on Grand Ave. It is across from Morton Plant Hospital. There is a Dr. Sally Marlowe who is suppesed to be very well know for her work in FM. She dxed me five years ago. I moved right after that and couldn't go back to her. She was very caring. She told me that if I had any trouble with disability that she would certainly help. She goes to court alot for her patients. She understands their pain and what they go through. I was already getting SSD and Workmen Compensation for a work injury in 1987. I wish you luck. And enjoy the beach. Gail

    I used to live in the Bardmoor area off Starkey Road.[This Message was Edited on 01/30/2003]
  5. scootersrosie

    scootersrosie New Member

    Hello Gail and Janice,
    Thanks to both of you for getting me started in the right direction.
    Gail, I live off of Starkey Rd. behind the Bardmoor area in The Bayou Club. Will talk to you soon. I hope you are feeling better. The FL sun sure helps, at least mentally. I was diagnosed with FM/CFS in "1992". Along with that came a diagnosis of Cervical and Lumbar Degenerative Disc Disease. On top of that in 1995 I received a DX of Osteoporosis. I've also had osteoarthritis since 1985. I worked for a telephone co and had 3 more yrs to work to retire with a full service pension but I couldn't stick it out. I was out of work more than I was there. I wanted to keep working but "no go". Thank heavens for FMLA. I stopped cold turkey a $50K per yr salary with all benefits and moved to FL where my sister is. She has helped me financially in that I have no mortgage; however, it is a shock to now have to pay medical benefits $400 per mo and $800 per mo in meds. I get my first SS regular check this Feb. My husband has been disabled for the past 10 yrs from a back injury. We have a daughter and granddaughter in PA and a son and 2 granddaughters in VA. By the way, I am 62. I will give the Dr. you recommended a call. Thank you again.

  6. Elvira

    Elvira New Member

    I grew up off Starkey Road, the neighborhood in front of Bardmoor! I just finally got out of Largo and moved to NC last year and I'm loving it. Got sick of FL and the crowds and congestion and traffic and never-ending heat. However, I hope that you are happy there and that you find a good doc. My fibro went undiagnosed while I lived there so I don't have any good doc. recommendations for you. Went to dr. after dr. with many symptoms and not one of them ever suggested that I might have fibro. Well, there is a good doctor who my mom used to work for. He is actually a cardiologist and may not be very familiar with fibromyalgia, but he is caring and may be able to direct you to a doctor who can help you. His name is Dr. Stanley S. Moles and his office in on West Bay Drive. Good luck to you!