Long acting narcotics

Discussion in 'Fibromyalgia Main Forum' started by Kryssie, Nov 25, 2006.

  1. Kryssie

    Kryssie New Member

    Does anyones dr believe in long acting narcotics? Mine currently believes that narcotics do not work. however he gives me Lortab for flare only which has only been once. He keeps me on tramadol and darvocet, rotating every 3 hours and I feel like pain killers ARE a food group. I take 2 of one, 3 hours later 2 of the other.
    Why in the world can I not get something longer acting like vicodin or oxy ... something Id only take 2-3 times a day? Im in NC. Anyone with any advice on a dr that believes in scripting stronger narcotics would be of great help. Im getting sick of eating meds every 3 hours. Especially ones that dont hardly touch my pain. Thanks for any help! Should I take the plunge and go to a pain clinic?
    Would anyone like to share their experiences with pain clinics and what they prescribe?
  2. Kimba4318

    Kimba4318 New Member

    Hi Kryssie - First, I thought Lortab is hydrocodone, just like Vicoden, but maybe they work in a diff. way. I was on Lortab 10 mg. for a while, then saw a pain management specialist, which I would reccommend to you.

    I told him I had to take 1 1/2 - 2 pills at a time. He brought up that I was on a roller coaster chasing the pain. Too many highs and lows... so he reccomended a long acting Avinza (morphine). I actually chose not to take it too often. I wait for really bad days, then I know I am taken care of for those days. Other days I take Percocet and feel out the pain.

    My PM doc happens to be wonderful though I know alot of ppl. here suffer a great deal because the doctors do not seem to understand. I went thru 3 rheumys before finding a good one and a PM doc. They are both great. They will give me what I need. One Rheumy I went to, came highly reccommended and when I finally got in to him, barely able to walk or move... he said Tylenol and exercise!!! I thought I would blow. He, like many others, did not believe in narcotics for FM.

    I guess what I am trying to say is be persistant in finding DOC that will help you and understand. Don't give up. It is not fun suffering every day. I have a good team behind me now. Don't get me wrong, I do not live Pain Free, but I am functioning alot better these days.

    Please don't give up and keep searching until you find the right one. Good luck to you!

    Hugs
    Kim

  3. Kryssie

    Kryssie New Member

    Thanks for your advice Kim. Yes, Lortab and Vicodin are the same drug. Sorry for the confusion.. LOL. ANYTHING at this point would be better than taking 14 or more pain pills a day!
    I think I might just schedule an appt with a pain management center and go from there. I think TrishHicks recommended a pain mgmt doc that is in the general area where I am.
    Dont you have to sign something stating you wont get treatment elsewhere? What if i dont like their treatment plan, what happens then? I just dont want to be put on med after med again. Give me ONE or TWO that I can take a couple times a day. Everyone at work looks at me like Im nuts for taking all this crap and I am starting to think I am as well!
    Would I see the PM doc and my rheumy as well? Or drop the rheumy once I am with a pm doc? Thanks in advance for any info. Im still quite new to all this.
    [This Message was Edited on 11/26/2006]
  4. Kimba4318

    Kimba4318 New Member

    Yes, you have to sign something, but if you are not happy with them, it just means you cannot get other drugs while under their care (narcotics, etc.). So, if you do not go to them anymore, you have nothing to worry about.

    If your like me, I still see my Rheumy for new symptoms and to follow up, I just do not get narcotics from him anymore. He can address joint problems and new symptoms, where my PM doc addresses pain and mine even helps with the sleep issues. They sort of work together.

    I hope the PM doc works for you. Good Luck.
    Hugs
    Kim

  5. caffey

    caffey New Member

    How do you keep the timing straight? I have a headache thinking about it. I am fortunate that both my docs agreed on long acting narcotics. When I was diagnosed with fm a couple of months ago I was referred to a pain clinic. I am so glad she did. We are still adjusting my meds. But I have learned so much about pain and how it works and should be treated. Again I am so fortunate. I am in Canada so I don't know how it works in the US. My opinion is try all options and then pick what works for you. You deserve the best care you can get.
    Cath
  6. Kryssie

    Kryssie New Member

    The timing is a whole issue within itself. I try to remember to take the meds at the same time everyday starting @ 6 am.
    I have taken a double dose, more than once because my fog is awful most of the time.
    I think I will try a pm doc. I wonder if I need a referral. My rheumy recommends their treatment prg but you have to take a MONTH off work and do their PT as well. Well, Im a single mom and I cannot do that. I think this is why he just keeps throwing stuff at me that really doesnt work in the first place. UGH the frustration! You guys give me hope tho, that one day I will be where I want and have meds that actually work for me other than just feeling like Im eating a handful of nothing most of the time. :(
    Thanks so muchh for your help yall!
    I have even considered ordering online but I dont want to do anything illegal or get scammed out of my money. I work hard for my money and its like being backed in a corner, take time off work to run find a doc that will work for me and/or lose money or try something else and lose money..
    [This Message was Edited on 11/26/2006]
  7. RedHeadEMT

    RedHeadEMT New Member

    Hi Kryssie.

    My suggestion would be to definitely see a pain management doctor or as you said, go to a pain clinic. You will probably continue to get the run around until you go to a pain doc.

    For me, it did take a long time to find the right drugs that would work, what dosages, what short acting drugs for break through pain, but once I found the right combo, my life has been more stable than before.

    For the time being, though, may I please suggest that you keep a small piece of paper with you every day and write down what you take and at what time right after you swallow it or while you are looking at it in the palm of your hand. It's too scary, with our fibro fog, to be depending on our own memories and taking double doses of anything. In fact, it could be dangerous!

    Take care and I hope you find what you are looking for.
  8. Angel1964

    Angel1964 New Member

    I think if you went to a pain clinic instead of your regular fmaily doctor that you'd have more luck. Family drs tend to shy away from prescribing Oxycontin and Morphine Sulfate. However, the pain clinics usually will play ball w/ you if they see that you've tried the lesser narcotics and that nothing else is working. Good luck to you.

    Angel
  9. Kryssie

    Kryssie New Member

    Thanks yall and Trish I am going to give him a call today. I hope I dont need a referral lol.. I'd hate to tick my rheumy off with his...uh....theory. LOL Thanks yall!