Looking for great doctor in SE Florida

Discussion in 'Fibromyalgia Main Forum' started by CathySt, Jun 30, 2006.

  1. CathySt

    CathySt New Member

    I live in Coral Springs and need to find the best doctor I can. Coral Springs is between Ft. Lauderdale and Boca. This past Monday, I went to the Mayo Clinic/Jacksonville and the doctor's "best guess" is Fibro/CFS. Now that I am back home, I need to find a doctor to follow up (& 2nd opinion).

    The Neuro's tell me to see the Rheum - the Rheum's tell me to see Neuro. I am so tired of going to the doctor's. UGH!

    Thank you so much for you help!
    Cathy
  2. najerry

    najerry New Member

    I have lived in s.Florida for 9 years and have been to many Rheumys. My insurance changes and I usually have to change dr. One Dr. is in Delray bythe name of Philippe Saxe. He's very understanding and thorough. I now see Dr. Mark Jaffe in Weston, also has an office in Pembroke Pines but he is well worth the trip. He, too is very knowlegable and understanding. He recently put me on cybalta and it seems to be helping for now. With fibro you never know what each day brings. good luck.
  3. CathySt

    CathySt New Member

    Thank you so much for responding. Which doctor would you say is the best? At this point, I have my cardiologist, gynecologist and GI all at the Cleveland Clinic in Weston. It only takes 25 minutes to get there on the Sawgrass.

    Would you recommend the Weston doctor over the Delray Beach Doctor? Aside from looking for a great doctor - and I know this is alot to ask - but I would love a doctor with an understanding bedside manner.

    Thank you again - I truly appreciate it!
    Cathy
  4. CathySt

    CathySt New Member

    Just bumping it up to see if anyone else has a recommendation.

    Thank you so much!
  5. jbgoth

    jbgoth New Member

    What exactly is the Cleveland Clinic? I live in Miami and cant find a good GYN anywhere. I had to fly to Atlanta to see an endometriosis specialist for surgery a couple of years ago.

    Thanks

    Jordan
  6. CathySt

    CathySt New Member

    The Cleveland Clinic, obviously is in Cleveland, OH. They have two satellite locations. One is in Weston on 75, the other is in Naples. The building is divided into two sides - one is the clinic the other is the hospital. The facility is only four years old. I was in the hospital a few weeks ago for a few days and felt like I was at the Four Seasons! Since it is right on 75, it might not be too difficult for you to get there. If your condition requires urgent attention, they may squeeze you in. Also, just put Cleveland Clinic - Weston in key words and it will come up and you will be able to look at his bio.

    They have a great reputation. My GYN is on TV alot, giving his opinion on different things. His name is Steven Zimberg. He is hard to get in to see, but I feel confident he is a great doctor. AND, he listens! Imagine that??

    Before moving to Florida, I lived in the Valley Forge area of PA. All of my doctors were at the University of Pennsylvania - the best of the best. My GYN - Dr. Robert Weinstein was my favorite doctor. It killed me to leave him after 24 years.

    Good Luck!
    Cathy
    [This Message was Edited on 07/01/2006]
  7. Mikie

    Mikie Moderator

    Is this a duplicate post? I know I answered it and my reply is not here.

    Love, Mikie
  8. CathySt

    CathySt New Member

    Yes, thank you for your previous reply. Ft. Myers is a little far - at least two hours. Hopefully, I'll find someone in my neck of the woods. Someone mentioned that I should put the location in the title to get more attention.

    Does anyone have a doctor at the University of Miami? I want to gather as much information as I can.

    Thanks Again!
    Cathy
  9. najerry

    najerry New Member

    Before moving to Fl, I lived in Philly and s. Jersey. The dr. that diagnoed me 15 years ago was at TEMPLE hOSP. iT WAS CULTURE SHOCK WHEN i MOVED TO fL. dR. Dr, Jaffe in Weston is right next to the Clevland Clinic. But so far I have been very pleased with him. Dr. Saxe in Delray has a very big practice and is involved with clinical trials for fibro. I had to change asI said because of insurance but they both are very compassionate.
  10. CathySt

    CathySt New Member

    Wow, I grew up in Palmyra, Riverton and Cinnaminson. I went to Sacred Heart School, Holy Cross High School and Cinnaminson HS. You are not kidding about culture shock - Ugh!! One reason I like my cardiologist at the Cleveland Clinic is he says that he will not tell people he is a Florida doctor - he says that he is a NY doctor practicing in Fl. I would kill to be able to go back to Penn. I always felt like I was in the most capable hands.

    My friends and family from home are begging me to go to Penn. I would if it was not so inconvenient for follow up appts, etc. Plus, I do not want to be staying anyplace but home when I am feeling so sick.

  11. CathySt

    CathySt New Member

  12. fmcurepls

    fmcurepls New Member

    I go to an immunologist in Hollywood. His name is Dr. Robert Keller. He does a lot of blood work that most rheumatologist don't do. He is out of network for most insurance companies. Some of the bloodwork can probably be done at Quest or whoever your insurance takes. Just ask him for a prescription for the lab work so you don't have to pay a fortune. I also go to a sleep doctor in Boca named Dr. Chediak. He is excellent. He really has helped me with my sleep problems. Good luck.

  13. pawprints

    pawprints New Member

    I also see Chediak. I did a sleep study and never got into deep sleep. He put me on Xyrem but I just could never get the dosing right without bad side effects.

    What medications did he put you on? Are they helping you with the pain and fatigue?

    Also, how often does he like you to see him? I have not been in awhile due to problems driving.
  14. fmcurepls

    fmcurepls New Member

    I see Dr. Chediak about every six months. The Xyrem is helping me sleep but my pain and fatigue are still the same so I know there is something else going on that the doctor's are missing. This is why I am going to the FFC in Atlanta at the end of the month. I'm sorry that the Xyrem did not work for you. Were you taking it with something else? What side effects did you have? Maybe its worth trying again. Good luck.

    Sharon
  15. pawprints

    pawprints New Member

    What dose are you on of the Xyrem?

    I took it with Klonopin. It just made me so jittery during the day...not a comfortable feeling at all. I seemed to have more energy, but not the good kind.

    I keep telling myself to try it for longer, but the feelings were so unpleasant. When I did try it again, the aggitation began again as soon as I would wake up. Almost like I sprung up in the early morning.

    Chediak made it seem like his patients who responded to the Xyrem were all doing so much better. I agree there must be something else going on that is causing the sleep problems to begin with.

    Thanks for your help. Wishing you well.[This Message was Edited on 07/09/2006]
  16. fmcurepls

    fmcurepls New Member

    I am currently taking 7ml 2 times a night. I sleep about 3 hours and then another 3 hours which is much better than not sleeping at all. Let me know if you try it again. I wonder if something else was making you jittery during the day as the xyrem wears off very quickly. Maybe you only need one dose a night. I have read some posts where people take it only once a night. Good luck and feel good.

    Sharon
  17. TaniaF

    TaniaF Member

    Dr. Gray Fenton is an integrative DO doctor who treats FM/CFS with natural supplements and also does IV infusions. He is booked now, but you can put your name on a waiting list.

    He has helped me with my FM as well as other issues like osteoporosis and mitral valve prolapse syndrome, just to name a few.

    I go to him every three weeks now for a check up and trigger point therapy (also cranial sacral release) which he does himself.

    His office is just outside the Sawgrass Mills Mall.

    T
    [This Message was Edited on 07/09/2006]