Looking for wise 50+ y.o. FMS/CFS sufferers

Discussion in 'Fibromyalgia Main Forum' started by kmelodyg, Jul 12, 2003.

  1. kmelodyg

    kmelodyg New Member

    Hi there! I have been coming to this board for quite a while now. My mother (who also has FMS & MS) and I have decided to write a novel. In doing my research, I need to find some inspirational women who are 50+ years old. We are going to find women of all different backrounds. Since both of us are Fibro sufferers, I felt that it was important that one of the characters is based on a woman who has gone through this condition in their life. If you have a story and you would like to share it, or you know of another inspirational women of a different backround, you can give me a summary here, or through my e-mail address on my profile. I hope to hear from you soon!!

    Big Soft Hugs,
    [This Message was Edited on 07/13/2003]
    [This Message was Edited on 07/13/2003]
  2. Hippo

    Hippo New Member

    But I'm over 50; somewhat shaky on the wisdom part. Been sick forever. If I can help, let me know.

  3. kmelodyg

    kmelodyg New Member

    I decided to change the age limit to 50 +. Barbara I would definatly like to hear from you and what you've been through. And you other women too. My e-mail address is kmelodyg@yahoo.com. I'm sorry that you're e-mails were returned. It may have been a temporary glich in the system or something. Please try again. I need as much info as possible. Thanks!!

    Lots of Love,

    INHISGRIP New Member

    Hi Kathryn:

    I have suffered with fms for a number of years and just diagnosed March 2002. I will email you and share my experience with you. I am 65 years old and have been retired since 1998. I have not been on board for a while and just decided to see what was going on. I am glad that I saw your post.

  5. kmelodyg

    kmelodyg New Member

    Hey out there! I know that there is more of you!!! I need your help to get the word out! I want to hear your stories!!

  6. kmelodyg

    kmelodyg New Member

    Yay! Thanks for your responses! I am basically looking for a summary of what you have gone through in your life, with this disease, how it affected your relationships, children, careers, any accomplishments, life lessons, etc. I want you to tell me what you would want to share with others to help them along their path in life. You can write as much as you want. The more the better! Thanks!!!

  7. lassiecass

    lassiecass New Member

    Hi Kathryn,
    Let me introduce myself first, my name is Sandy, as there are a number of Sandys on this board I usually put my nickname in this form (Cass) as my real name is Cassandra.
    I believe my Fibro kicked in after a plane ride to Europe for a family reunion in France. The plane was continuing to the middle-east and everyone was sick on the plane,coughing etc. I was sick the whole trip and came back with the worst case of flu I have ever had. It kept coming back every two months or so. At the time my sister-in-law and I were taking care of my Mother-in-law who had Alzheimers. After 6 years of everyday care she finally needed to be in a care unit because of broken hip and breast cancer. A very wonderful nurse in the unit noticed my limping and constant coughing and asked about my symptoms. She recommeded a great rheumy and I finally got a diagnoses of Fibro. That was in I believe 96. I am married 35 years and still live in the same hometown that I grew up in, Scottdale,Arizona.
    I have 2 grown children 1 darling Granddaughter who is five. I used to work in preschool and aftercare and really loved it. My husband and I own a shop and because our partner retired I now work with him as much as I am able. The Fibro has left me with many problems, I am sure you know many of the symptoms yourself. Lack of restful sleep, hand and arm problems and major leg problems finally progressing into using a cane many times for stablility and because somedays I am not sure of my balance, also pain. I am determined not to let the Fibro stop me in any way, yes I accomedate it when I have to but mostly I just keep on going, so far. Many have it so much worse than I do, I try to work out 3 times a week at Curves, a great place to exersice for old ladies like me,Ha Ha. I am not sure exactly what you are looking for but I hope this helps. Much luck to you and your Mom, I lost my Dad to Cancer when I was taking care of my mother-in-law and actually moved in with my Mom to help care for him at home for his final 3 months. I didn't want to miss a moment he had left on this earth and he was able to die at home like he wanted. My Mom is 75 and doing well and has a great boyfiend 85, she is so cute she has more energy than I ever had. Good luck with you novel. Hello to your Mom, what a great treat to work with her on a fun project.
    Soft Hugs,
    Sandy (Cass)
    P.S. My Granddaughter is the love of my life.
  8. kmelodyg

    kmelodyg New Member


    Would I be able to e-mail you, or could you e-mail me to get more info? The basic topic of this book is inspirational older women who share their knowledge and wisdom with others to make a difference. Any other info would be great!!!

  9. kmelodyg

    kmelodyg New Member

  10. lassiecass

    lassiecass New Member

    Hello Kathryn,
    I will E-mail you at your address but I want to warn you that Mikie and the other moderators think it is very unwise to put your E-mail address in your posts because of virus, weird people using your E-mail etc, I think you probably should remove it. I am glad you liked my post, I will E-mail you and you can ask me more specific questions if you like. Have a great evening.
    Soft Hugs,
    Sandy (Cass)
  11. Rosie

    Rosie New Member

    Hey Kathryn,
    I'm 50. Have both MS and FM. Not much of an interesting story however. Raised some kids with my husband. Worked as a nurse for 14 years etc. Although pretty much routine, I've loved evey minute of it!
    Take care,
  12. kmelodyg

    kmelodyg New Member

    Thank you to those who have responded. I am not really concerned about putting my e-mail address on here. I feel that this project is worth any risk. It will be able to help others who are going through this to hear the stories of others who have BEEN through it.

    If you would like to share with me, please send me an e-mail. I want you to tell me as much as possible. WRITE WRITE WRITE!!!! Then, I will write you back to find out more. I am so excited about the responses I have gotten already. This is going to be so great! There are some amzing women out there!

    Did you ever watch Oprah, when she has that guy who interviews everyday people and does a story on them? Well, that's kind of what I am doing too. Everyone has a story, everyone has lessons to share. That's the whole idea.

    My mother has already written one novel ,but it was never published. She became very sick afterwards. We both have many connections in the "industry". So, if it is a hit, we stand a good chance to make it happen.

    I hope to hear from more of you soon!

    Lots of love,
  13. mamafurr

    mamafurr New Member

    i'm gonna be 49 next month. i'll get back to you in a year LOL
  14. kmelodyg

    kmelodyg New Member

    It dosen't matter if you are 49!!! If you have a story that you would like to share, I want to hear it!!

  15. kmelodyg

    kmelodyg New Member

    Any more out there?
  16. Dara

    Dara New Member

    had FM since childhood. Of course, I/we never knew what it was back then but after doing research I've finally figured it out!! I will e-mail you with an outline of what the FM has done and or affected my life. It will take me some time to get my thoughts in order, as I do have a real problem lately coming up with the right words.

    I think it's great that you've taken this project on.

  17. kmelodyg

    kmelodyg New Member

    Thank you all so much for the bio's. There are some really amazing women on this board who have been through so many things in their life. One of you will represent spreading the news on Fibro and how it has affected your lives. Thank you again for the incredible responses!!! I am so excited about this project!!!!

    Lots of love,
  18. dolsgirl

    dolsgirl New Member

    email & referred you to my profile. Also, I wanted to bump this up for people to see. dolsgirl
  19. kmelodyg

    kmelodyg New Member

  20. kathyr

    kathyr New Member

    I have been diagnosed with FMS after a year of testing, probing, and seeing a dozen specialists. If you want to hear more, let me know.

    Kathy R.