Low Body Temperature

Discussion in 'Fibromyalgia Main Forum' started by dhcpolwnk, Dec 22, 2005.

  1. dhcpolwnk

    dhcpolwnk New Member

    Is low body temperature often associated with fibromyalgia? My normal temperature is usually about 97.2-97.6 degrees Fahrenheit. For the last several weeks, I've had slight fevers on the day after I get my shot of Avonex (for my multiple sclerosis). But today, after doing some holiday shopping and starting to feel extremely tired, weak and kind of "brain-foggy" (for lack of a better term), I decided to take my temp. It was 96.1 degrees F at 6 p.m. Even for me, that seems very low.

    I have an appointment coming up with my neurologist, and I'm working with my internist/PCP and with my urologist to deal with all this. If there's any information I need to know and/or share with the doctors, once again I'd appreciate your input and your insights.


    --Laura R.M.
  2. elsa

    elsa New Member

    It is often associated with fibromyalgia. A large group of us have endocrine problems and hypothyroid is one of them. Your low body temps reflect that although they can get lower!

    Mine before treatment 95-97.? Definately not right. It won't be easy getting a conventional doc to treat this. If you have an integrated doctor who treats clinically and not just by test results then you're in good shape.

    I hope you get answers soon and start to feel better.

  3. CanBrit

    CanBrit Member

    I'm currently on a synthetic thyroid pill for hypothyroidism. Had a nasty virus last year that kickstarted the FM and also attacked my thyroid. During those early days, my normal temp was around 96. Now that my levels have stabilized, I'm running closer to 98 now.

    I think I had problems well before last year though. Getting accurate testing of the thyroid/adrenal activity seems to be difficult for whatever reason. All I know was they kept telling me all my numbers were fine when in fact they were high normal (TSH 5). Last year it jumped to 15 and I was exhausted all the time.

    Funny thing is, I'm still exhausted but now I know it's the FM tired not the thyroid tired if that makes any sense.,

    Merry Christmas.

  4. karatelady52

    karatelady52 New Member

    I've always had a temp between 96 and 97. When I asked my pain specialist she said it could be a number of things but never would tell me what or if there was something I could do for it.

    Now that I'm going to the Fibromyalgia and Fatigue Center and had extensive blood work done, I know its from the lyme dissease and 3 viruses that they found.

    They've also given me thyroid meds because their blood work is more extensive for the thyroid. My pain doc told me my thyroid was fine when it wasn't.

    I've been on the thyroid meds for 5 months and the body temp is still low so I know its the bacteria and viruses causing it. I am currently taking antibiotics and anti-virals for these.

  5. pam_d

    pam_d New Member

    Just agreeing with others who mentioned thyroid---low body temp is often associated with those issues. I'm sure yours has been tested before---but you might have it tested again if it's been awhile.

    Sounds like you have appts. upcoming where you could deal with this---let us know what you find out.

  6. caroleye

    caroleye New Member

    Mine always came up normal for years; finally found a "smart" Dr. who referred me to a thyroid specialist because of my symptoms.

    Sure enough, he ran a special test "FAMA" & found I was hypothyroid. Now on Armor Thyroid, and have had to increase it over the years. Without it, I'm totally bed ridden.

    We just can't depend on "testing", as many are just not sensitive enough. That's why the most important thing is to have a "smart Dr."..........not easy to find!!
  7. dhcpolwnk

    dhcpolwnk New Member

    I've been checking my temp more often recently, more out of curiosity than anything else. It's usually between around 97.2 and 97.8, but it's reached normal normal (i.e., 98.6) once or twice in the last few days. This morning, it was lower agis, specifically 96.7.

    I took my temp before taking my morning meds, and that's when it occurred to me that one reason for low body temperature in people with fibromyalgia might relate to the fever-reducing properties of some of the meds we take for pain.

    If that's the case, is this a problem? I know that fevers indicate that the body is fighting off an infection. If you suppress the fever--especially to the point of causing a low body-temperature--does that interfere with the body's infection-fighting capability?

    I realize that low thyroid also would account for low temp, and that condition clearly needs attention. But I was wondering whether people with fibro who *don't* have thyroid problems might have medication-induced low body temperature. And if so, does that mean we shouldn't use NSAIDs (likw Tylenol, Advil or aspirin) for pain relief?

    --Laura R.M.
  8. CanBrit

    CanBrit Member

    All very good questions re meds

    Strangely enough it my case, since I had the virus last year that kickstarted this whole thing, I have not had any other type of virus or bacterial infection since. There are been a couple of times where I thought I was coming down with someone only to be back to my version of normal the next day.

    My doctor believes that my system is in such a fight with FM/Thryoid/CFIDS that it isn't even allowing any other virus in. I find that really strange but it does seem to be true.

    Best regards,


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